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Being a parent is a juggle. But what about when your child has an illness, injury or disability? Grace & Sarah are mothers and paediatric nurses in this podcast we chat with parents, carers and health professionals to shine a light on the many families that also manage hospital admissions, specialist appointments, waiting for diagnosis and navigating a world that might not be as set up for their family. We want to know what life is like for them, and understand how we can support them. Email ...
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Sarah & Izzy H. - Navigating Autism, Sensory Processing, as a Paediatric Nurse
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In this heartwarming episode of Paeds Small Talk, we delve into the extraordinary lives of Sarah Hunstead and her daughter, Izzy, offering an intimate glimpse into their daily challenges and victories. Sarah, is a seasoned paediatric nurse with a rich background in paediatric emergency care and founder of CPR Kids , and shares her unexpected journe…
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Maddi H. Part Two: A Life Saving Moment: Parents experience of performing CPR
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In part two of our special Sweetheart Day episodes with Maddie she is sharing her story of York, who has aortic stenosis, a severe heart condition. She poignantly recounts the heart-wrenching moment when she and her husband, Josh, had to perform CPR on York, they affirm the profound bond they share with the PICU staff and the exceptional medical te…
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Maddi H. Sweethearts Day: A Heart Warrior's Journey
42:58
42:58
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This episode is part one of two episodes where we have a heartfelt conversation with Maddi, the mother of York, who born with a congenital heart defect known as Aortic Stenosis. Maddi's recounts her unfathomable journey through York's diagnosis, multiple surgeries, and the struggles of reconciling everyday life with living in the hospital. Maddi gi…
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Nat C - Navigating CP from Childhood to Adulthood
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Turning 18 and becoming an adult is a big deal in anyones life. In the health system when you have a disability, illness or complex medical condition you move from paediatric centric care to adult care at around this time. This means that not only the model of care changes but the person is now potentially more responsible for their own health deci…
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Kate - Supporting Parents and Children with Autism; Is 'Stay Strong' the right thing to say?
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In this episode we are speaking with Kate who is a mum of 3. Her eldest child was diagnosed with Autism Spectrum Disorder (ASD) early in life. Kate describes her experiences the diagnosis in New Zealand, the struggle of acceptance, the lack of immediate support post-diagnosis, and her pursuit to ensure her daughter reaches her full potential. We al…
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Mim - Part Two- You Know Your Child Best
1:10:46
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We are back for part two with our chat with Mim! In this episode, Mim discusses her second pregnancy and birth which was a little earlier than her first. Although she had some experience of prematurity the first time around and knew a little of what to expect from a NICU admission, Covid struck! Being a parent to a sick child in NICU, while your hu…
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Mim - Part One - Its Okay to Say When Things are Hard
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Mim had quite a long journey to parenthood, with struggles with infertility. When she and her husband finally did welcome their first born into the world it was a bit earlier than they had planned at 27 weeks gestation. She discusses the experience of being a first time Mum to a new baby in the NICU and brings with it her insights as being a nurse …
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Maddi R - Finding a way to resonate
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Maddi found herself stepping into a carer role at the age of 13 while she watched as her mother became more affected by the symptoms associated with Huntingtons Disease. She discusses what that role looks like to a teen who is still finding their own purpose and identify in the world and yet dealing with concepts beyond their years. Her bond with h…
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When Claire was pregnant with her second child, antenatal scans revealed that he had a congenital heart disease and a high chance of a Trisomy 21. Whilst she and her family were coming to terms with this information she went into labour at 37 weeks and little Max was rushed across to PICU for his first open heart surgery. We spoke with Claire about…
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Melanine Dimmitt is a writer, author, editor and broadcaster. She is also a mother of two young children, one of whom has a profound medical disability and one she describes as "medically boring". She has interviewed some of Australian royalty and written for well know publications such as The Age, Sydney Morning Herald and MamaMia, and when her so…
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Ania - Patience and kindness, it goes a long way
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Just before Ania's eldest daughter turned 2 she noticed Grace was not meeting her developmental milestones. She was fairly quickly diagnosed with autism and rapidly linked in with NDIS support. In 2020 admits the COVID pandemic and after the birth of Ania's third child, Grace began having seizures which resulted in her ending up in hospital to inve…
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Chantal Donnelly has a strength that could move mountains and a positivity that will fill your day with such joy. Her beautiful son Soul was born with a rare condition called SENS, only diagnosed this year after 18 months of investigations, discovering new symptoms and piecing together a very complex puzzle. In this episode we chat about Chantal's …
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Join us as we chat with Kate, a paediatric ICU nurse and friend of ours who has been on an incredible journey. As an adult who had a congenital heart disease herself, she brought a unique perspective to her career as an ICU nurse, offering support and encouragement to her young patients and their families. When her first son Josh was born, he neede…
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We acknowledge traditional owners of the land and pay respects to Elders past, present and emerging. We recognise their connection to Country and their role in caring for and maintaining Country over thousands of years. Join us on the PAEDS ‘Small Talk’ Podcast, where we chat about some pretty big topics with everyday families, doing incredible thi…
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