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You might imagine a podcast interviewing people with MND may be depressing or sad. Whilst the guests with MND do not sugar-coat their disease, they all know their outcome, these conversations are insightful, at times joyful, at times it will make you cry. Unusual for a podcast, some of the guests are unable to speak, but thanks to AI they have a voice. These are the stories behind the MND Beast. The people behind the label, the people we are trying to help with fundraising, care and research.
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Dr Rachel Yerbury (Phd) is a registered psychologist as well as a lecturer and researcher in the School of Psychology and Public Health, La Trobe University Australia. Her research area focusses on the connection between humans with Nature / animate worlds and how this impacts mutual well-being. In particular. Rachel is also an author, a mother and…
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Kathie Barker Many of us don’t know that once we’ve been diagnosed with a terminal illness we have access to our Superannuation. Kathie is the CEO of "Release My Super" and she tells us how you can access your Superannuation You also may be eligible to make a TPD super claim for compensation if you’ve suffered an injury or illness that permanently …
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Candid with Kimbra, a podcast. In this podcast, Kimbra Westervelt interviews Katie Gee Salisbury. To learn more about the podcast visit CandidwithKimbra.com Katie Gee Salisbury is the author of Not Your China Doll, a new biography of Anna May Wong, Hollywood’s first Asian American movie star.By candid-with-kimbra
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Our guest this week is Michael Thurn the CEO and Managing Director of PharmAust, a clinical-stage biotechnology company. He tells us about Monepantel which is a well-known veterinary drug. It has been shown to have an effect on the abnormal accumulation of protein in cells. This accumulation is associated with motor neurone disease. Monepantel work…
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The episode of Let’s Talk MND is about the best practice of research collaboration between Dr Marnie Graco and people with MND which is crucial for advancing understanding and care. This approach not only improves the relevance of research programs but also fosters a sense of empowerment and involvement among those directly affected by MND. It's a …
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Pat Cunningham Pat is one of the 3 Amegos’ of Neale Daniher, Dr Ian Davis and himself who started Fight MND. Pat’s wife Ange had MND and lost her battle with the beast in 2016, leaving behind Pat & their two small daughters Pat has spearheaded the project management of the Fight MNDs largest public fundraiser – Big Freeze at the G, and also leads t…
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Matt Nable is famous, he is an Australian film and television actor, writer, director and acclaimed author. He works non stop in Australia and overseas alongside the likes of Robert DiNero and Clive Owens and Vindisel. In his latest film Infusion, on Stan, he wrote directed and starred with Sam Worthington. He is former professional rugby league pl…
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Candid with Kimbra and Ly, a podcast. About our guest: Joanne Paratore, Recording Artist /Producer / Composer Joanne Paratore is a singer, songwriter, pianist / keys / keyboardist, classical music producer, commercial music arranger, she has contributed to both contemporary instrumental music and New Age compositions.…
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David Neitz or Neita, was the longest-serving captain in the history of the Melbourne Football Club and the first Melbourne player to achieve the 300-game milestone. Which basically means in Melbourne he is a hero. However, David is a co-founder of Brewmanity which is more than just a brewery; it’s a Melbourne beer brand committed to doing good. Si…
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Emeritus Professor Surindar Cheema PhD Honours and PhD degrees. Since 1978, Professor Cheema has held research and teaching appointments at Monash University, The University of North Carolina at Chapel Hill USA, The University of Melbourne, The Walter and Eliza Hall Institute of Medical Research and The Howard Florey Institute. He spent approximate…
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Bec Daniher was living her best life. Bec represented Victoria in both junior and senior level rowing, winning two Queen’s Cups during her time. She had the honour of being selected to represent Australia culminating in the World Championships in 2013 in South Korea. Bec studied business and pursued a career in accountancy, working in the field of …
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Sophia Levin has been a freelance food and travel journalist for more than a decade. You will have read her in Lonely Planet, The Age and Sydney Morning Herald’s Good Food, SBS Food, Domain Review, National Geographic, The Guardian, delicious, in-flight magazines, Broadsheet, Time Out and more. She has co-authored travel guidebooks and reviewed for…
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Hayley and Cameron McNeill are brother ans sister, they lost thier dad to MND recently. Earlier they lost thier aunt. They are both from Warnabool. Hayley is lving in Ballarat where she is studying biomedical science and goal is to become a bio technician to aid in MND research. Her brother Cameron is a town planner married with 2 little children a…
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Professor Dominic Rowe is the Foundation Professor of Neurology in the Faculty of Medicine and Health Sciences at Macquarie University; Chairman of Macquarie Neurology, and Consultant Neurologist at Macquarie University Hospital. Dom was my husband Robert’s Dr. For ten years he was Chairman of the MND Research Institute of Australia, taking this fu…
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Prof Bedlack is a Professor of Neurology at Duke University in Northern Carolina He is the Stewart, Hughes and Wendt Distinguished Professor.Faculty Network Member of the Duke Institute for Brain Sciences.Associate of the Duke Initiative for Science & Society Rick is going to discuss the phenomenon he has witnessed and studied of MND reversals. He …
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John Hanley was diagnosed with MND about 10 years ago. John's attitude to life is inspiring, always giving first. As he says "When God closes a door he opens a window" John has always loved music, now he is following his passion, writing and recording songs......that make you sing and dance around the house, John gifts joy. You can listen to his so…
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The sound on this Podcast is pretty terrible - Carl and I were going to re-record in the New Year. He said all he wanted to achieve in life was to be a fater nad play professional football - well you did that mate. RIP Carl. Carl Webb is a former Australian professional rugby league footballer who played as a prop, second-row and lock in the 2000s …
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Adam Walker is a Ross Maclean Senior Research Fellow, the Bill Guest Fight MND Mid- Career Research Fellow. He works from the Walker Lab at the Queensland Brain Institute Adam has focused on uncovering the mechanisms of MND and FTD for over 15 years. He obtained his BSc(Hons) in biochemistry from the University of Tasmania, PhD in neuroscience from…
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Bruce and Natalie Parke are a dynamic duo. Bruce has been diagnosed with MND and it is inspiring how they are working together. The are finding thier new normal Bruce and Nat don't have a bucket list they want to spend their time walking and holding hands, and being with family and friends. Bruce is excited for BBQ season he can’t use his arms or e…
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Gethin Thomas has been the Executive Director, Research at MND Australia since 2019. He oversees the research grant program and manages national and international partnerships. Gethin has over 20 years of experience as a biomedical researcher, having published widely and secured almost $4M in research funding. Over the last 10 years as a senior res…
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Tim Eggert is 50 years old. He was officially diagnosed with MND in December 2022 after a few years of symptoms. Tim is married with 5 children and a serving police officer for over 20 years. He was previously involved in playing rugby league and maintained a good level of fitness and continued to keep physically active. He has no links to family r…
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Sheffield Wednesday fan Chris McClure joins us to chat about the massive game for Derby this weekend and potentially three games between the teams in a week! He also talks about his pride in his brother's band Reverend and the Makers, being on the cover of an Arctic Monkeys album and being in a Dire Straits video at the age of 5....…
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