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Dr. Karen Wyatt, hospice physician and author of "7 Lessons for Living from the Dying," interviews experts on all aspects of the end-of-life, including: caring for the dying, funeral and burial practices, planning for the end-of-life, conscious dying, grief and loss, caregiver support, afterlife, death and the arts, and community initiatives to improve end-of-life care. Access show notes at www.eolupodcast.com
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Hello and welcome to Untangling PANDAS & PANS, a podcast about two relatively unknown medical disorders characterized by the sudden and dramatic onset of obsessions and compulsions, vocal or motor tics, or restricted eating behavior -- and a whole host of other symptoms -- following strep or other bacterial or viral infection. Sometimes overnight. I have the privilege of interviewing some of the top researchers and clinicians in the rapidly growing field of Infection-Associated, Immune-Media ...
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Interviews with authors of Care at the Close of Life reviews in JAMA about management issues in end of life and palliative care. JAMAevidence is an evidence-based medicine (EBM) resource created and maintained by the JAMA Network to promote the use of EBM to improve patient care.
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As our policy makers, medical experts, and first responders grapple with the choices forced upon us by the novel Coronavirus, doctors and hosts Dr. Zeke Emanuel and Dr. Jonathan Moreno will guide us on the codes of ethics that are the backbone of modern medicine. They will answer the key questions raised by COVID – 19 including “How do we decide who gets a ventilator?” “Who, if anyone, can force you to stay home in the interest of public health” and “When there’s a vaccine, who will get it f ...
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Learn about a book of quotes gathered by a compassionate oncologist from deep conversations with her patients. My guest Dr. Christina Gomez is a gastrointestinal medical oncologist at Banner MD Anderson Cancer Center. She is the author of the book Stopped in My Tracks: A Physician’s Collection of Cancer Patients’ Quotes, which she discusses today. …
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In this powerful episode, we are joined by Zac Matthews, a miraculous survivor of a self-inflicted gunshot wound to the neck that resulted in a total paralysis for many months. Against all odds, Zac regained his feeling and now looks forward to a new life ahead of him. One year ago, in July 2024, Zac attempted to end his life with a bullet to the n…
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Learn all about end-of-life doulas from this comprehensive deep dive into the archives of EOLU Podcast! This week I’m sharing a new feature: the “Podcast Playlist” which is a topic-focused deep dive into the archives of EOLU. I’ve created several anthologies of episodes that deal with specific subjects that might interest you. This is to make it ea…
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Learn about a guidebook that teaches how to offer appropriate nutrition for a loved one approaching death. This week I’m welcoming my recurring guest and friend Barbara Karnes RN, hospice nurse, author, thought leader and expert on end-of-life care and the dynamics of dying. Barbara is the author of Gone From My Sight, “the little blue book” used b…
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Earl Harley, MD, FACS, FAAPS is a highly regarded pediatric otolaryngologist (Ears, Nose, and Throat doctor or ENT) at Georgetown University Medical Center and a beloved assistant professor at the Medical School. Dr. Harley is widely respected for his expertise in working with patients who have been diagnosed with PANDAS and PANS. Families travel f…
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Learn about a grief book that combines personal experience with expert advice and a touch of humor. My guest Dina Gachman is a Pulitzer Center grantee, an award-winning journalist, and a frequent contributor to the New York Times, Texas Monthly, Vox, and more. She wrote her second book So Sorry for Your Loss: How I Learned to Live with Grief and Ot…
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Learn about the importance of sacred rituals and practices at the end of life. This interview was recorded several years ago with Kitty Edwards, a shamanic practitioner, public speaker, published author and master teacher. She served as the director of The Living and Dying Consciously Project and as the co-founder of The No Regrets Project. Kitty’s…
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Learn about a helpful tool for organizing all your records and files for your later years and your loved ones. My guest Maria Fraietta is the founder of The Nokbox, which is a complete system that helps you organize all of your accounts, possessions, social media presence, communities, kids, pets, personal history, and estate plans. Maria is a form…
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M. Elizabeth “Beth” Latimer, MD is a pioneer in the field of autoimmune encephalitis and is known across the country and in Europe for her expertise in treating PANDAS and PANS. She received her medical degree from Tufts University School of Medicine in Boston, Massachusetts. She completed her residencies in Pediatrics and Neurology at Walter Reed …
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Learn how this hospice doctor’s important research sheds light on the dreams and visions of the dying and why they are meaningful. In this interview from the archives of EOLU my guest is Dr. Christopher Kerr who currently practices at Hospice Buffalo in Buffalo, NY. He is conducting a research project on the dreams and visions of his patients as th…
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In this session, we talk with guest Jenny Ahlstrom, a true survivor of one of life's most dangerous cancers in our lifetime. I person every 9 minutes is diagnosed with a (Myeloma) Blood Cancer each year and is 10% of all cancers. Jenny tells us of her battle to not only overcome this dreaded disease but she has gone on with her husband Paul to deve…
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On a ten year anniversary of a near death incident my niece Elizabeth Howard said on this last Father's Day, that she had a desire to share her story and give thanks to her Dad Phil Howard, my brother, for the life saving action he provided to save Elizabeth from plummeting off a 50 foot cliff in Southern Moab Utah National Park. This will be the y…
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Learn more about the continuing bonds theory and various ways it is beneficial for grievers. This special episode is a follow-up to the previous interview with Dina Stander about the phone of the wind. I’ll take a closer look at the Continuing Bonds theory of grief to see how using a wind phone might actually be helpful for grief. I’ll share excerp…
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Learn how the “phone of the wind” can help us establish continuing bonds with our loved ones who have died. My guest Dina Stander is an end-of-life navigator, funeral celebrant and burial shroud maker. She is also the founder of the Northeast Death Care Collaborative, an author and a propagator of phones of the wind, which she discusses today. Lear…
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Kyle Rivera is an action packed character who has sky dived, BASE jumped and Wingsuited hundreds of times from airplanes, hot air balloons, cliffs, buildings, everything you can imagine that test a persons nerves and bravery. On one recent flight, Kyle had a scary malfunction of his equipment causing the lines that operate his Shute to wrap around …
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Learn how two creators each facing serious illness came together to produce an award-winning masterpiece. My guests Christina Holbrook and Walker Vreeland are joining me today to talk about their personal stories of serious illness and facing mortality in the midst of working on a creative project. Numerous synchronicities and little miracles came …
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Dr. Shannon Delaney, a psychiatrist with expertise in PANDAS/PANS, Lyme, and other vector-borne diseases, talks with Susan Manfull about how these complex disorders present in children and adults. Much of what she came to learn about Lyme came from her work with Dr. Brian Fallon at Columbia University. After her residency at Harvard Longwood Psychi…
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In Part 2, the discussion with Dr. Shannon Delaney continues with a focus on the diagnosis and treatment of Lyme and other tick-borne diseases. Recorded May 13, 2024 Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent. Credits: Mu…
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In Part 3, the discussion with Dr. Shannon Delaney continues on her soon-to-be-released study in Frontiers in Psychiatry Journal about the prevalence of Bartonella in patients diagnosed with Bartonella. Recorded May 13, 2024 Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the vie…
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Learn about a senior living community that is bringing end-of-life doula training to residents, thanks to the efforts of its chaplain. My guest Tom Waknitz is a chaplain and end-of-life doula who is working with Walker Methodist Senior Living Community to establish a unique end-of-life program for residents called Passages. He is certified by INELD…
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This interview is with Peter Ballentine, a guy who lives life large!!! We get into a terrible crash in his 911 Porsche in San Francisco, Near Death Hypothermia on the Snake River, and a Firey Crash on his BMW Motorcycle when he went through a Black Angus Cow in the dark coming home from Jackson Hole Wyoming!!! Peter is an action hero and should hav…
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Learn about a powerful NY Times bestselling memoir that teaches how acknowledging our mortality helps us live a more authentic life. My guest Alua Arthur is the founder of Going With Grace, a death doula training and end-of-life planning organization. She is a frequent guest on television and radio and has been featured on CBS’s The Doctors and in …
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Learn about an innovative model for compassionate end-of-life care that meets the needs of individuals and communities. My guest Dr. Bob Uslander is the co-founder, with his wife Elizabeth, of Empowered Endings, a unique palliative and end-of-life care model addressing the physical, emotional, intellectual and spiritual needs of patients and famili…
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Learn about Rosie Grant’s unique project to memorialize those who have died by cooking their special recipes. My guest Rosie Grant has a library science degree from the University of Maryland and now works at UCLA as an archivist. She is well known on social media as a “cemetery tiktoker” who researches recipes found on gravestones in cemeteries ac…
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In episode two, Susan Manfull interviews Dr. Kyle Williams, Director of the Pediatric Neuropsychiatry and Immunology Program at Massachusetts General Hospital, and Andrew about the potential link between strep, psoriasis, psoriatic arthritis, and obsessive-compulsive disorder (OCD). Andrew shares his personal experience of how his psoriasis and OCD…
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It seemed our conversation from Episode 2 was left dangling so we continued talking. If you would like to hear a wee bit more, listen to this bonus content which captures most of that conversation, mostly musings about navigating the medical system and whether the division between psychiatry and neurology is artificial (another dangling conversatio…
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Learn how planning ahead for after-death care can help loved ones with grief and loss. My guest Jokotifa Alaye is a licensed funeral professional and NEDA certified end-of-life doula with a focus on grief. She created Mourning Space to fill the gaps in education and support that society requires for healthy grieving. She discusses the importance of…
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Learn how a physician creatively meets the needs of patients who don’t qualify for hospice services. My guest Dr. Kaishauna Guidry is an author, podcaster, healthcare advocate, mentor and educator. She came to medicine and hospice later in her career and founded Mourning Dove Medical as a private mobile medical practice, serving home-bound patients…
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Learn about a movement with a goal to train 1 million death doulas around the world. My guest Suzanne O’Brien RN is the founder and CEO of Doulagivers Institute and a pioneer in the global death doula movement. She was awarded Worldwide Leader in Healthcare by the International Nurse Association and named Humanitarian Ambassador for Oprah Magazine …
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Lauren Breithaupt, PhD, Assistant Professor of Psychiatry, based in the Eating Disorders Clinical and Research Program at Massachusetts General Hospital, will discuss her cutting-edge research about the immunological basis of eating disorders and PANDAS and PANS. After briefly describing her work on eating disorders, she talks about her new researc…
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In this bonus episode, I will be talking about our second annual PANS/PANDAS Advocacy Day on Capitol Hill, a joint event planned by the National Alliance of PANS/PANDAS Action (NAPPA) and The Alex Manfull Fund (TAMF) to be held on Friday, April 12th in Washington, DC. My guests -- Amanda Peel Crowley, co-founder of NAPPA, and Paul J. Murphy, Treasu…
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Learn about an informative and inspirational book to help seniors find love in their lives after experiencing loss through death or divorce. My special guests this week, Drs. Gloria Horsley and Frank Powers, are a senior couple who met later in life, after experiencing loss. Gloria is a marriage and family therapist and Frank is a psychologist so b…
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Learn how the concept of human-centered design can improve how we care for people at end of life and also how we operate our businesses. My guest Isabel Knight is a human-centered designer and end-of-life guide who founded The Death Designer to provide design services for deathcare businesses and non-profits. She is also the president of the Nation…
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Learn about a powerful international model that calls for a public health approach to end-of-life care and how we are championing it in the U.S. This week I am hosting three guests who are my collaborators in a “think tank” on the Compassionate Communities Model: Elizabeth Johnson and Erin Collins of The Peaceful Presence Project and Qwynn Galloway…
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Learn about THE LAST ECSTATIC DAYS, a film about a young man with brain cancer in search of community, and the hospice doctor who gives up everything to honor his dying wish. My guest Dr. Aditi Sethi-Brown is a hospice and palliative care physician, end-of-life doula, and musician. She is the founder and executive director of the Center for Conscio…
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Learn about grief from the perspective of two hospice providers on their personal experiences of loss. This week I’m happy to be speaking once again to my recurring guest Barbara Karnes RN, hospice nurse, author, thought leader and expert on end-of-life care and the dynamics of dying. Barbara is the author of “the little blue book” used by hospices…
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Learn about contemplative practices for medical providers offered by the NY Zen Center for Contemplative Care. My guest Koshin Paley Ellison is an author, Zen teacher, and Jungian psychotherapist. He co-founded the New York Zen Center for Contemplative Care, which offers contemplative approaches to care through education, personal caregiving, and Z…
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Learn how an innovative curriculum is tackling loneliness and social isolation in older adults and bridging the generation gap. My guest Dr. Jeremy Holloway is Assistant Professor and Director of Geriatric Education at the University of North Dakota. He discusses his research which focuses on the social determinants of health, specifically self-eff…
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Learn about a trilogy of documentary films that inform and inspire conversations about death, dying and the afterlife. My guest Johanna Lunn is an award-winning producer, director, and writer, who has crafted many compelling, entertaining, and profoundly thought-provoking programs during her 20+ years in the business. She is the director and produc…
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Learn about a helpful new tool kit that’s not just for end-of-life doulas but can benefit anyone who cares for others at the end of life. My three guests this week, Diane Button, Gabby Elise Jimenez, and Angela Shook, are all end-of-life doulas who have teamed up to create a helpful guidebook for other doulas: The Doula Tool Kit: The Complete Pract…
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Enjoy this deep and soulful conversation with “The Griefwalker” Stephen Jenkinson. My guest Stephen Jenkinson is the author of the award-winning book Die Wise: A Manifesto for Sanity and Soul and the creator and principal instructor of the Orphan Wisdom School. He discusses the Nights of Grief and Mystery project, which he created with singer/songw…
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Our interview is with the lone survivor Stein Rosvquist, a flight Nurse Medic whose helicopter went down one night in a dense fog over Salt Lake City's western border near Salt Lake City International Airport. Stein suffered a severed lower back and other life threatening injuries and yet survived. The pilot and other medic on board did not make it…
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Learn how hospice chaplains can offer support to people who choose medical aid in dying. My guest Dr. Terri Daniel is an inter-spiritual hospice chaplain, end-of-life educator, and grief counselor, who is the author of four books on death, grief and the afterlife, and a frequent guest on the podcast. Today Terri and I talk about medical aid in dyin…
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Learn tips for choosing the best hospice and asking all the right questions. This week I welcome back my recurring guest Barbara Karnes RN, hospice nurse, author, speaker, thought leader and expert on end-of-life care. She is the author of ‘the little blue hospice book, Gone from My Sight and the recently published By Your Side: A Guide for Caring …
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Learn what it actually means to “hold space” for others during times of challenge. My guest Amy Wright Glenn is a Kripalu Yoga teacher, birth and death doula, hospital chaplain, and prenatal yoga and wellness instructor. She is the founder of the Institute for the study of Birth, Breath, and Death, known for its teacher training programs. Amy is th…
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In this special brief episode I’m bringing you an invitation from casting director Kim Clevenger to contact her about appearing in a new docuseries on grief and loss. She is looking for people experiencing grief over any type of loss who are willing to share their journey with others in this series. In the recording she explains a bit about the sho…
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Find out what you may have missed in 2023 if you haven’t listened to every episode! In this solo episode I recap some of the episodes of this podcast that had the greatest impact on me personally and professionally! All of the interviews from 2023 were fantastic but if you missed any of these be sure to take a listen! Thanks for your support this y…
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Learn how to create a home funeral ceremony that can honor and celebrate the life of a loved one. My guest for this interview from the archives is Jerrigrace Lyons, founder of Final Passages, where she offers training for death doulas and home funeral guides. She shares the beauty of a home funeral and describes step-by-step how to honor a loved on…
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Learn how celebrants co-create ceremonies to help people navigate the milestones of life. My guest for this interview from the archives is Charlotte Eulette is the International Director of the non-profit educational organization Celebrant Foundation and Institute. The foundation certifies and trains people to become ritual experts who create cerem…
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Learn about a unique medical practice that focuses on end-of-life issues for patients including medical aid in dying. My guest Dr. Bob Uslander is an emergency medicine physician whose career evolved toward caring for the elderly and those facing the end of their lives. He created a novel approach to end-of-life care called Empowered Endings with h…
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