Best Ibdet Podcasts (2024)

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S2 Episode 19 - We went back to Disneyland's Club 33 and share the menu and our adventures! 41:50

6h ago41:50

41:50

Send us a Text Message. Welcome to S2 episode 19! We got the chance to return to Club 33 and wanted to share new details on the spring menu and also share a few pictures. We were excited to share our Disney cast member stories as well. It was a magical getaway and we are so thankful we were able to do it! We are family friendly and want our audienc…

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S2 Episode 18 - New Disney DAS pass changes and how it will affect those with Crohn's and Colitis. 38:29

7d ago38:29

38:29

Send us a Text Message. Welcome to S2 episode 18! We finally fixed Mason's microphone! This week we discuss the recent changes to the Disney DAS pass and how it will specifically affect the IBD community. We go over Magic Keys, the reservation system, how we currently use the DAS pass, and how we think Disney might need to make some changes. We kno…

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Season 2 Episode 17 Overview of IBD from Rady Children's Hospital's IBD Day. 28:26

14d ago28:26

28:26

Send us a Text Message. Welcome to S2 episode 17! There was an issue again with Mason's microphone so we do apologize for the sound quality! Working on getting that fixed. This is our final episode in the Rady's IBD day series. We end it with an overview of IBD, how it affects children, remission goals, biosimilars, and more! These were all discuss…

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S2 Episode 16 - Not Your Average Food and Restroom journals and IBD symptom trackers! On Amazon! 42:33

22d ago42:33

42:33

Send us a Text Message. Welcome to S2 episode 16! If you scanned the QR code in the front of your journals, you are in the right place! We are so excited to announce we published two new books/journals. Not Your Average Food Journal and IBD Symptom Tracker is an excellent tool to help you find food triggers or help with any reasons you might want t…

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S2 Episode 15 - Types of surgeries for IBD discussed at IBD day at Rady Children's Hospital 35:04

29d ago35:04

35:04

Send us a Text Message. Welcome to S2 episode 15! Today we are going over what the surgeon at Rady Children's Hospital discussed on IBD day. While there are many surgeries and variations, we are only discussing the surgeries he went over at IBD day. Lots of great information that will hopefully better help you understand surgery options for IBD. We…

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S2 Episode 14 - More from IBD day about why research is also important for pediatric IBD patients. 28:05

1M ago28:05

28:05

Send us a Text Message. Welcome to S2 episode 14! We are digging deeper into what we learned at Rady's IBD day. Today we discuss research and how important it is not only for adults, but for the pediatric IBD world. Research can help provide more options to these kids as well as provide more information on the efficacy and side effects of treatment…

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Season 2 Episode 13 -Diet and nutrition help for IBD patients from a dietitian at IBD day! 39:49

1M ago39:49

39:49

Send us a Text Message. Welcome to S2 episode 13! We are sharing all things diet and nutrition for Crohn's and Ulcerative Colitis from an IBD specialized dietitian from Rady Children's Hospital. We took notes from her presentation at IBD day so we could share anything helpful with all of you. We will cover flare diets, day to day diets, trigger foo…

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S2 Episode 12 - Recap on IBD day 2024 at Rady Children's Hospital with lots of useful info! 38:16

2M ago38:16

38:16

Send us a Text Message. Welcome to S2 episode 12! This episode is part of a series we plan to do covering IBD day. We got to hear a lot of great information from doctors, a dietitian, a psychologist, and a surgeon. We do a recap here of how the day went and what was covered in the IBD world. We will break it down in upcoming episodes so we can go i…

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S2 Episode 11 - What to include in a 504 plan if your child/teen has Crohn's or Ulcerative Colitis. 38:21

2M ago38:21

38:21

Send us a Text Message. Welcome to S2 episode 11! This is part two to last weeks episode on all things 504 plans for kids with IBD. This week we discuss what to include in a 504 plan to help you make sure you don't miss any small details! We also go over the do's and don'ts of what to do with the 504 plan. These two episodes should help get you org…

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S2 Episode 10 - All about 504 plans for kids with Crohn's disease and Ulcerative Colitis! 38:12

2M ago38:12

38:12

Send us a Text Message. Welcome to S2 episode 10! This is the perfect stop for all things 504 plans for kids with IBD. We will go over how they qualify, what a 504 plan is, and the entire process to create one and get it put in place. 504 plans are a must for any child with Crohn's disease and Ulcerative Colitis. We are family friendly and want our…

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S2 Episode 9 -Question and Answer session with a teen (Mason!) on living with Crohn's disease. 48:39

2M ago48:39

48:39

Send us a Text Message. Welcome to S2 episode 9! We thought it might be interesting to hear Mason answer questions about IBD. Everything from when he was diagnosed, how he feels about his medical team, how he handles infusions and injections, his best advice received (and worst!), and he even discusses what music he is currently listening too. We h…

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S2 Episode 8 - What does it mean to be in remission with Crohn's disease and Ulcerative Colitis? 28:48

3M ago28:48

28:48

Send us a Text Message. Welcome to S2 episode 8! Today we discuss what remission means in the IBD world and the different levels of remission. There was a lot of confusion when Mason was diagnosed on what remission meant. We did a lot of reading and asking our doctor questions to learn more about what remission truly means and we hope we can help s…

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S2 Episode 7 - Mason is receiving a proclamation from our city and a special "Mason Harvey Day" on Feb.21st! 38:16

3M ago38:16

38:16

Send us a Text Message. Welcome to S2 episode 7! In honor of Mason receiving a proclamation and "Mason Harvey Day" in the city of Vista, we decided to talk more about proclamations. We discuss how you can get one, the work Mason has done over the years and is being honored for, and how we are using it to raise awareness and fundraise for the Crohn'…

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S 2 Episode 6 - Take Steps & how it is one of the Crohn's and Colitis Foundation's major fundraisers. 37:26

3M ago37:26

37:26

Send us a Text Message. Welcome to S2 episode 6! Today is all about Take Steps! Take Steps is one of the Crohn's and Colitis Foundation's biggest fundraisers. Today we go over how it helps the foundation, how it helps IBD patients, how you can participate, how you can fundraise, and how much fun it is! Take Steps takes place in many cities around t…

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S2 Episode 5 - We discuss IBD diet myths and facts 37:26

3M ago37:26

37:26

Send us a Text Message. Welcome to S2 episode 5! We asked a group of IBD patients and caregivers about what they hate being told when someone finds out they have Crohn's or Ulcerative Colitis. One recurring topic was diet advice, which was generally unwanted advice. We know this is a sensitive topic and everybody is different! We did our best to go…

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S2 Episode 4 - Introducing The Reggie Project! 27:27

4M ago27:27

27:27

Send us a Text Message. Welcome to S2 episode 3! Reggie, our main character from our book, "Not Your Average Slice of Pizza", has become a symbol of the hope, determination, and courage that comes with a tough diagnosis, especially IBD. We wanted to raise awareness for pediatric IBD patients, adult IBD patients, and any other children/teens/adults …

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S2 Episode 3 - Repeat after me, IBS is not IBD! 36:00

4M ago36:00

36:00

Send us a Text Message. Welcome to S2 episode 3! There are a lot of things that are said to people who have IBD, some terrible, some incredible! After listening to fellow IBD patients, today we discuss something that we all hear quite a bit, that IBS is the same as IBD. They are not and we go into how they are not related, their different symptoms …

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S2 Episode 2 - Dual biologics in the treatment of Crohn's disease and our own experience with them. 31:28

4M ago31:28

31:28

Send us a Text Message. Welcome to Season 2 Episode 2! Today we go into dual biologics in the treatment of IBD, when they started being researched, and Mason's own experiences with being on dual biologics. We are family friendly and want kids to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well de…

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S2 Episode 1- Homeschooling with Crohn's disease and how homeschool works for us. 45:31

4M ago45:31

45:31

Send us a Text Message. Welcome to season 2 episode 1! With school starting this week we thought it would be a great time to talk about homeschooling. It is becoming more popular and for those with chronic illness it is a great option. We go over statistics on homeschool, why we chose it, and how it is structured for Mason. For more information on …

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Episode 25 - Season 1 finale and a recap of our first year with a podcast! 23:47

5M ago23:47

23:47

Send us a Text Message. Welcome to our season 1 finale with episode 25! We had fun discussing our first year making a podcast, go over our most watched episodes, and share were our listeners are listening from. We also discuss future plans and season 2 of IBDetermined! For more information on Crohn's disease, fundraising, and general info go to htt…

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Episode 24 - Episode 24 - The role of stress with IBD plus our own story with stress and an IBD diagnosis. 39:12

5M ago39:12

39:12

Send us a Text Message. Welcome to episode 24! Today we are talking about one of the triggers of IBD flares, which is stress. We go into a personal story about Mason's diagnosis and how stress could have played a role in his flare at the time. We are sure that you watching will also be able to make your own connections to stress and health conditio…

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Episode 23 - Talking about mask wearing and other social situations with IBD! 33:25

5M ago33:25

33:25

Send us a Text Message. Welcome to episode 23! Today's topic is a very popular one about mask wearing. This episode is not about the efficiency of masks or telling anyone what they should do. It is simply to teach understanding of why you will still see some people (in the IBD community) wearing masks. We hope it creates to more respect and a diffe…

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Episode 22- Recognizing the signs of grief with a Crohn's diagnosis and how to help support someone who is grieving 40:58

5M ago40:58

40:58

Send us a Text Message. Welcome to episode 22! Grief is a tough subject and a complicated one at times. Crohn's and Colitis is a difficult diagnosis and it is only natural to feel a sense of loss and grief. Going through grief with IBD is very real and in this episode we discuss our own grief with the diagnosis. We also go over not only 5 stages of…

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Episode 21 - The Story of Karmatude Candles and how we use them to fundraise for the Crohn's and Colitis Foundation 35:44

5M ago35:44

35:44

Send us a Text Message. Welcome to episode 21! We wanted to share the story of where the Karmatude Candles originated, how we make them, and how we use them to fundraise. Making candles has turned into something very special for our family and continues to also be a way we can raise awareness for IBD. We enjoy fundraising for the Crohn's and Coliti…

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Episode 20 - Basics of biologics and and the different classes of biologics used to treat Crohn's disease and Ulcerative Colitis. 36:35

6M ago36:35

36:35

Send us a Text Message. Welcome to episode 20! We have wanted to jump into the top of biologics but it is a lot to talk about. So we did our best to start at the basics in this episode. We discuss (in simple terms!!) what biologics are and the three different classes when it comes to IBD. We go over TNF-blockers, integrin blockers, and interleukin …

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Episode 19- The San Diego Blood Bank, blood transfusions, and the importance of donating blood. 23:44

6M ago23:44

23:44

Send us a Text Message. Welcome to episode 19! We attended a Team Survivor event at the San Diego Blood Bank. Mason has received over 5 blood transfusions and is part of Team Survivor. We share what we learned at the San Diego Blood Bank and discuss why donating blood is so important. We also share ways and ideas you can help! We are family friendl…

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Episode 18 - The importance of recognizing everyone with IBD and not just outliers who are excelling. 32:59

6M ago32:59

32:59

Send us a Text Message. Welcome to episode 18! Outliers are something we learned about in math but totally works in our episode. Crohn's can vary so much but sometimes the public only will see those who are excelling or living above average lives with this disease. It is important to celebrate everyone though and continue to share our stories to ra…

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Episode 17- Beads of Courage and going to the Crohn's and Colitis Foundation gala! 22:48

6M ago22:48

22:48

Send us a Text Message. Welcome to episode 17! We attended our local Crohn's and Colitis Foundation Gala and are excited to share the importance of these fundraising events and how you can also attend. Our recent local chapter Champions of Hope gala in San Diego raised close to $500,000 for the Crohn's and Colitis Foundation. We also discuss a fun …

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Episode 16 - Colonoscopy and MRI/MRE helpful tips and prep methods! 25:09

7M ago25:09

25:09

Send us a Text Message. Welcome to episode 16! We had requests to discuss ideas, hints, or methods we use to have an easy prep for colonoscopies and MRI's. We go over the methods that worked best for Mason and should help you too! We hope this episode will help you if you are an adult or child suffering from Crohn's disease or any chronic illness, …

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Episode 15 - Time management difficulties and our tips with Crohn's disease and Ulcerative Colitis. 28:44

7M ago28:44

28:44

Send us a Text Message. Welcome to episode 15! When dealing with any disease or chronic illness, time management can become complicated. In this episode we discuss the difficulties of time management, handling work and school, and how we manage our schedules with Crohn's disease. We know there is no one way to do this but at the very least hope tha…

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Episode 14 - Overcoming a fear of needles, shots, injections and IV's! 34:18

7M ago34:18

34:18

Send us a Text Message. Welcome to episode 14! Today's episode focuses on overcoming a fear of needles, shots, injections, and IV's. For children and adults this is a real fear and sometimes phobia. With IBD or any chronic illness the reality is that injections and IV's can become a way of life and it sometimes a challenge to overcome fears. After …

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Episode 13 - Our dinner at Club 33 at Disneyland and staying at the Grand Californian! 41:19

7M ago41:19

41:19

Send us a Text Message. Welcome to episode 13! Today's episode goes over our very exciting overnight stay at Disneyland complete with a visit to Club 33. A lot of you were curious and had questions so we are here to share details and pictures of our entire evening at Club 33. However, we didn't want to stray far from the goal of our channel which i…

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Episode 12 - Fighting insurance denials for medications and biologics and how to win! 29:14

8M ago29:14

29:14

Send us a Text Message. Welcome to episode 12! Today's episode focuses on the steps you take to fight an insurance denial for medications and biologics. Some of you are familiar with a doctor ordering a particular medication or biologic and insurance will deny it. The process might be short or it might be drawn out but we are here to help you with …

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Episode 11 - Importance of Mental Health with Crohn's disease and Ulcerative Colitis or any chronic illness 47:36

8M ago47:36

47:36

Send us a Text Message. In today's episode, we cover a very important topic which is, mental health. Something we learned before recording this is that rates of depression are higher with Crohn's disease and Ulcerative Colitis as compared to other diseases and the general population. Mental Health was also the most requested topic amongst those wit…

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Episode 10 - We give you a behind the scenes look at our children's book about chronic illness, "Not Your Average Slice of Pizza" and explain the publishing process 27:19

8M ago27:19

27:19

Send us a Text Message. Welcome to episode 10! We had some issues with editing (like the up late, sweating over your laptop in a panic it wouldn't work) so we apologize for the repeating of scenes. But it is what it is and we made it to the big 10!!We decided to give you all a behind the scenes look of our children's book, "Not Your Average Slice o…

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Episode 9 - How to handle unsupportive family and friends of Crohn's patients and help people better understand how they can support you! 28:44

8M ago28:44

28:44

Send us a Text Message. Welcome to episode 9! Mason is still in a flare but feeling better! We decided to proceed with our regular series since he was excited to do it. Today's episode focuses on our ideas to handle unsupportive family and friends who don't try to understand Crohn's disease (or really any chronic illness). We also go into how to he…

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Episode 8 - Mason is still in a Crohn's flare and we go more into what a Crohn's (IBD) flare is. 28:58

8M ago28:58

28:58

Send us a Text Message. Welcome to episode 8! Still off of our scheduled programming but this is what worked for Mason this week. We find out the potential cause for his flare (spoiler alert, he has a bacterial infection which we talk more about), talk about his treatment regimen, and then look more at what a Crohn's flare is. Of course there is al…

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Episode 7 - Mason is in a Crohn's flare. 23:41

9M ago23:41

23:41

Send us a Text Message. Welcome to episode 7! Today's episode was a change of plans since Mason is in a flare. We had an episode all planned but instead decided to have an impromptu discussion about how he is feeling and talk about flares. We both agreed it would be a little much to do a regular segment but we also know how important it is to discu…

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Episode 6 podcast - The Restroom Access Act, how we created a bill and passed a law in California! 26:16

9M ago26:16

26:16

Send us a Text Message. Welcome to episode 6! Today's episode is very important to us as it discusses the Restroom Access Act law and your rights. This law, while in other states, was just enacted this year, 2023, in the state of California. Mason and I played a role in creating the bill, AB1632, and getting it to pass into a law. We detail step by…

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Episode 5 - Simple tips and tricks to monitor IBD symptoms and food sensitivities. 26:30

9M ago26:30

26:30

Send us a Text Message. Welcome to episode 5! We wanted to discuss our simple way we keep track of and monitor Mason's IBD symptoms on a day to day basis. Crohn's disease flares can be tricky or impossible to predict but hopefully with some of our ideas, you will find some useful tools to stay on top of symptoms. These ideas work if you don't have …

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Episode 4 - What is it like for a child living with an incurable disease like Crohn's? What is it like to be a caregiver or parent to someone with an incurable disease? 45:54

9M ago45:54

45:54

Send us a Text Message. Welcome to episode 4! Today we discuss a question we get asked a lot. So, what is it like to be a child or teen with an incurable disease like Crohn's? Also, what is it like to parent and caregiver for these kids? We start of by sharing Mason's diagnosis, the fears it can cause, and the ways life can change. We did our best …

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Episode 3 - What it's like to be immunocompromised. 27:44

10M ago27:44

27:44

Send us a Text Message. In this episode Michelle and Mason discuss what it is like to be immunocompromised, how it can vary among Crohn's disease patients, and also offer advice on how to support those with suppressed immune systems. It provides a first hand point of view from both a caregiver and patient perspective, while also incorporating the p…

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Episode 2 What is Crohn's disease? 28:57

10M ago28:57

28:57

Send us a Text Message. In episode 2 we explain more about Crohn's disease, how it is diagnosed, and how different it can be for patients. Mason talks about his own experiences with the diagnosis in comparison to the medical descriptions of Crohn's disease. For more info on Crohn's disease, symptoms, diagnose, fundraising, and more, visit https://w…

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Episode 1 Introduction to IBDetermined 21:12

10M ago21:12

21:12

Send us a Text Message. Episode 1 of IBDetermined introduces you to Michelle Harvey and Mason Harvey, a mother-son duo who discuss Crohn's disease and overcoming obstacles with any chronic illness or challenge. The focus is on the caregiver-patient relationship and is a family friendly podcast so anyone can listen and find ways to overcome challeng…

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