Best Sean Crowley Podcasts (2024)

1
Brain, Am I? 28:43

6h ago28:43

28:43

Chapter 9: In this episode, we uncover the history behind mind-body dualism and ponder over the materialism of neuroscience. So, don the headphones, lay back, and take a pause in the crazy. And be sure to check our weekly visualisations at: https://www.youtube.com/@InfiniteNow_withSeanCrowley #philosophy #metaphysics #hardproblem #consciousness #mi…

1
255 - Season Finale - We’re Riding the World’s Highest Road 44:57

1h ago44:57

44:57

In the final episode of season 11, The Dudes discuss their major upcoming event: a challenging 200-mile bike ride in the Himalayas - to the top of the world’s highest paved road - over 19,000’. They talk about the logistics, the elevation challenges, and their preparation, including the use of altitude training masks. They also address concerns abo…

1
254 - From Dad to Advocate to CEO: John Crowley's Continued Commitment 50:02

5h ago50:02

50:02

This episode (254) features an interview with John Crowley, who shares his journey into the rare disease space. John's involvement started in 1998 when his daughter Megan was diagnosed with Pompe disease, a rare form of muscular dystrophy. Determined to find a cure, John and his family embarked on a journey of research and entrepreneurship, ultimat…

1
253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases 34:06

17d ago34:06

34:06

Rob Long shares his journey with Uplifting Athletes, an organization dedicated to leveraging the influence of athletes to support those impacted by rare diseases. Rob and Brett Brackett took over leadership in 2018, revitalizing the organization's mission. They have several powerful initiatives including The Young Investigator Draft, Lift for Life,…

1
252 - NFL Plans Crushed, His Response Changes Lives 47:02

7h ago47:02

47:02

In episode 252, Rob Long, executive director of Uplifting Athletes, revisits his rare disease journey. He recounts his college football days at Syracuse University and the abrupt onset of symptoms during his senior year. Rob shares the initial confusion and fear surrounding his diagnosis of a brain tumor, leading to surgery and a challenging recove…

1
251 - From Canes to Canines: Linda's Path to Mobility 54:08

18d ago54:08

54:08

In episode 251 we welcome our dear friend Linda Snyder! Linda shares her personal journey living with a rare genetic type of ataxia and discusses how she discovered the benefits of having a mobility service dog named Cedric. She talks about the rigorous process of applying for a service dog, the extensive training Cedric underwent, and the various …

1
Atom, I Am 24:30

1M ago24:30

24:30

Chapter 8: In this episode, we unfold the pillars of quantum mechanics—from superposition to wave-particle duality—and continue our ongoing inquiry into the physical self. So, don the headphones, lay back, and take that pause in the crazy while I meander through some of the many timeless riddles that have plagued humanity since we first looked up a…

1
250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation 1:01:15

14d ago1:01:15

1:01:15

Our friends at Jett Foundation invited us into their community once again for a conversation with 5 panelists on Rare Disease Day. We were honored to moderate the discussion with these friends: Race Martinez - Architecture Student, living with Duchenne Kris Napper - Graphic Designer/Illustrator, Business Owner, living with SMA Chris Schlechty - Sof…

1
249 - 20 Years in the Making: REATA's Story of Skyclarys 51:14

1M ago51:14

51:14

This episode delves into the journey of Skyclarys, the first FDA-approved treatment for Friedreich's ataxia (FA), a rare genetic disorder. The discussion features Dr. Colin Meyer, former executive at Reata Pharmaceuticals, who shares his experiences from the inception of Reata to the acquisition by Biogen. The conversation offers a compelling narra…

1
248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer 43:42

28d ago43:42

43:42

In this insightful interview with Jen Farmer, CEO of the Friedreich's Ataxia Research Alliance (FARA), we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field, emphasizing the importance of community involvement and…

1
Cell, I am 27:48

2M ago27:48

27:48

Chapter 7: In this episode, we begin our exploration of the self, asking: Is there any physical basis for our idea of self? Where does the thread of life really begin? Body or life, colour or eye, chicken or egg — what came first? Who is the observer? So, don the headphones, lay back, and take that pause in the crazy while I meander through some of…

1
247 - Tenacity and the Power of Persistence 34:58

1M ago34:58

34:58

In this episode, Sean and Kyle discuss the importance of maintaining discipline and focus, particularly in the face of distractions and competing priorities. The conversation delves into the concept of knowing what one wants and being clear about goals to stay motivated and driven. They reflect on the significance of surrounding oneself with suppor…

1
Exploring Reality's Dependence on Observers 16:21

2M ago16:21

16:21

Welcome to Unfoldings, a subseries designed to support our regular monthly 'Infinite Now' chapters. Offering a deeper reflection upon some of the more nuanced philosophical and scientific concepts, as well as a place for our community to offer their thoughts, insights, and feedback. This week, we discuss the philosophy of science, the expansion of …

1
246 - Empowering Accessibility, One Review at a Time 42:50

1M ago42:50

42:50

In this episode, we discuss the groundbreaking work of Roll Mobility, a platform revolutionizing accessibility for people with disabilities. Roll Mobility functions as a Yelp-like app, providing users with vital information on the accessibility of restaurants, destinations, and sightseeing locations. By ranking establishments based on their accessi…

1
245 - Settle or Soar? Embracing Uncertainty 35:39

2M ago35:39

35:39

The Dudes talk about life changes and the significance of pursuing growth and opportunities, even in the face of uncertainty. Reflecting on personal anecdotes and advice, they underscore the value of acceptance, adaptation, and gratitude in embracing life's journey. Also in his episode: Kyle's most recent challenging experience with airline travel …

1
244 - Change & Consistency with Progressive Disease 21:22

2M ago21:22

21:22

In Episode 244, the Dudes delve into the topic of change and consistency, particularly in the context of living with progressive diseases like Friedreich's ataxia (FA). They discuss the challenges of navigating constant change, setting expectations, and managing the desire for both fast and slow change. Also in this episode: Emergency haircuts and …

1
243 - EveryCure and the Power of Collaboration w/ Dr. David Fajgenbaum 50:36

2M ago50:36

50:36

In this episode, Dr. David Fajgenbaum shares his journey of discovering a drug that saved his own life. He emphasizes the importance of repurposing existing drugs for new uses and highlights the potential of artificial intelligence in identifying such opportunities. Dr. Fajgenbaum discusses his nonprofit organization, EveryCure, which aims to unloc…

1
Of Moss & Men 35:14

3M ago35:14

35:14

Chapter 6: How are Time and Free Will connected? Does determinism deny both? And what type of universe would allow either to be actual? We're starting to get in the thick of it now - so don the headphones, lay back, and take that pause in the crazy while I meander through some of the many timeless riddles that have plagued humanity since we first l…

1
242 - Dave Lynch: 27 Years, 700+ Patients, and the First Treatment 43:57

2M ago43:57

43:57

Dave (Dr. Lynch), a seasoned clinician and researcher specializing in Friedreich's ataxia (FA), sheds light on his nearly three-decade journey at the forefront of FA care. Throughout the conversation, Dave emphasizes the indispensable role of patient participation in research, underscoring the collaborative spirit driving advancements in FA drug de…

1
241 - Feeling Helpless? Here Are 4 Ways To Help 29:36

3M ago29:36

29:36

For Rare Disease Patients, the drug development process can feel huge and overwhelming. It seems like everyone has a role to play; Doctors, researchers, advocacy organizations, pharma industry...we can see how they all fit in the process. What about the patient's role? Listen as The Dudes discuss 4 of the many ways patients can have an impact. Also…

1
The Ends Of Time (Part 2) 24:14

4M ago24:14

24:14

Chapter 5: How does physics use infinity? Does it tie us into some grander emptiness, or should infinity be considered an end in itself? And can this help us in our investigation of Time? Don the headphones, lay back, and take that pause in the crazy while I meander through some of the many timeless riddles that have plagued humanity since we first…

1
The Ace Records Podcast #30 Eddie Chacon 1:02:19

4M ago1:02:19

1:02:19

The Ace Records Podcast #30 Eddie Chacon by Ace RecordsBy Ace Records

1
240 - Adapting to Life's Curveballs 25:24

3M ago25:24

25:24

Adapting to changes is a big part of life for everyone. Listen as The Dudes discuss their approach to adapting. In this episode: Kyle uses a voided ID to get past TSA on his way to North Carolina and back. Newsworthy from Instagram: Young man paralyzed from the shoulders down after a spinal cord injury in 2020 The Dudes get into a discussion about …

1
Apples Don't Exist 22:43

4M ago22:43

22:43

Chapter 4: Can certain infinities be larger than others? If so, what does that really mean? That's what we shall be asking today as we continue to unfold our understanding of Time. So don the headphones, lay back, and take a pause in the crazy while I meander through some of the many timeless riddles that have plagued humanity since we first looked…

1
239 - Season Premier - Are You a Doer or a Talker? 35:37

4M ago35:37

35:37

Listener Brian lets the Dudes know that Kyle has in fact been driving illegally for 10 years. Does Kyle have a plan to address this dilema? In the Season 11 premiere, Kyle and Sean dive into the challenges and triumphs of pursuing dreams, overcoming fears, and embracing new opportunities. The Dudes also discuss the power of setting goals, the fear …

1
The Ends Of Time (Part 1) 20:50

4M ago20:50

20:50

Chapter 3: We continue our investigation of Time with the help of three greatly influential thinkers and consider how their thinking has shaped the modern understanding of time's beginning and end. So don the headphones, lay back, and take that pause in the crazy while I meander through some of the many timeless riddles that have plagued humanity s…

1
Know Your Metaphysical Framework 13:20

4M ago13:20

13:20

Welcome to Unfoldings, a subseries designed to support our regular monthly 'Infinite Now' chapters. A chance to enable a deeper reflection upon some of the more nuanced philosophical and scientific concepts and also provides a place for our community to offer their thoughts, insights, and feedback. This week, we discuss metaphysical frameworks. Whe…

1
An Even Briefer History Of Time 39:22

5M ago39:22

39:22

Chapter 2: We begin our unticking of 'Time'. How long has it been, and how much longer can it continue? And how does it all stack up against infinity? Don the headphones, lay back, and take that pause in the crazy while I meander through some of the many timeless riddles that have plagued humanity since we first looked up at the stars. And be sure …

1
The Ace Records Podcast #29 Gary Crowley 56:59

6M ago56:59

56:59

The Ace Records Podcast #29 Gary Crowley by Ace RecordsBy Ace Records

1
238 - Season Finale - The Dynamics of Friendship 33:15

6M ago33:15

33:15

In episode 238, The Dudes delve into the theme of friendship, highlighting the significance of chosen family and exploring the dynamics of their own unique bond. They draw inspiration from questions curated by MindPath Health, leading to an unscripted and genuine conversation. From childhood influences like movies to bucket list aspirations, The Du…

1
237 - The Vital Role of Caregivers in Rare Disease Advocacy 1:02:52

6M ago1:02:52

1:02:52

We are thrilled to have Effie Parks and Daniel DeFabio in this powerful episode! Together, we discuss the pivotal role of the caregiver’s voice in the realm of healthcare, particularly in the context of rare disease. Our dialogue revolves around the essential role of caregivers, whether they are parents, aunts, uncles, or other family members, in a…

1
An Astronomically Quantum World 42:21

7M ago42:21

42:21

Chapter 1: We go day-tripping through the universe, big and small, and start to consider how it all might stack up against infinity. So don the headphones, lay back, and take that pause in the crazy while I meander through some of the many timeless riddles that have plagued humanity since we first looked up at the stars. And be sure to check our we…

1
236 - A Mom's Perspective on Devastation and Gratitude 42:49

7M ago42:49

42:49

Sean and Kyle engage in a heartfelt conversation with Caley Caroll, a mother, caregiver, and fierce advocate for her son Whitten John and his health challenges. Whitten John was diagnosed with Diabetes Insipidus and Langerhans Cell Histiocytosis, two rare diseases. Caley shares the emotional journey of receiving the diagnoses, the difficulties of c…

1
235 - Addressing the Epidemic of Wheelchair Damage by Airlines 43:00

7M ago43:00

43:00

Zach Wichter joins us to discuss the massive, yet not-so-commonly known incidents of damage to mobility devices caused by airlines. Zach is a consumer travel reporter for USA Today and focuses much of his writing on air travel specifically. Zach discusses his project where he has been tracking incidents of airlines damaging mobility devices through…

1
234 - World Duchenne Awareness Day - Jett Foundation 1:20:00

7M ago1:20:00

1:20:00

The Dudes recently had the privilege to host a virtual panel for Jett Foundation's celebration of World Duchenne Awareness Day 2023. This panel includes Patients, Caregivers, and Medical Professionals. Some of the topics discussed include: Understanding Manifesting Carriers Common Misconceptions About Female Carriers Challenges of Transitioning fro…

1
233 - Should Disability Heighten Our Sense of Responsibility? 24:53

7M ago24:53

24:53

In this episode, Kyle and Sean discuss various incidents that prompt them to contemplate the responsibilities and expectations within the disabled community. The dudes discuss whether people with disabilities sometimes misuse their rights or privileges, particularly in situations like pre-boarding on flights. They explore that every right implies a…

1
A Pause In The Crazy 24:50

7M ago24:50

24:50

Series Introduction: Don the headphones, lay back, and take that pause in the crazy while I meander through some of the many timeless riddles that have plagued humanity since we first looked up at the stars. Science or Philosophy? Has science won, or is philosophy (as Steven Hawking so bluntly put it)..."dead"? Join us for the inaugural step on our…

1
232 - Can Rare Disease Create Heroes? 39:03

7M ago39:03

39:03

Episode 232 welcomes Matt LaFleur who shares his journey as a rare disease patient with Friedreich's ataxia (FA). Matt talks about how he transitioned from viewing himself as a victim of FA to seeing himself as a hero in his own story. He describes the impact of the diagnosis as an "inciting event" and highlights how the hero's journey is not just …

1
231 - Speak Up, Stand Out: Silence is Not Advocacy 31:52

7M ago31:52

31:52

In this conversation, Sean and Kyle discuss the concept of advocacy and its various forms. They reflect on their experiences with advocacy, from meeting with legislators for rare disease-related issues to everyday interactions. They emphasize the importance of not staying silent and making one's voice heard, whether it's through legislative meeting…

1
230 - Navigating Mental Illness: Parent Stories 49:11

8M ago49:11

49:11

In this interview, podcast hosts Bill Nowicki and Laura Graham discuss their podcast, "Navigating Mental Illness: Parent Stories." They talk about their personal journeys and experiences with mental illness in their families, emphasizing the importance of storytelling and providing a platform for parents to share their stories. The podcast aims to …

1
229 - Exercise and Motivation: Challenges of Disability 36:51

8M ago36:51

36:51

Keeping an exercise routine is difficult for everyone. Add a rare disease in the mix and there are even more difficulties. The Dudes talk about their motivations, and the difference between motivation and discipline. Also: Hear Sean's most recent travel story about his lost walker on Southwest Airlines. This story was recently featured in USA Today…

1
228 - Podcasting Insights and Reflections 22:46

8M ago22:46

22:46

Advancement is about learning and implementing new ideas and techniques. In August, The Dudes attended the Podcast Movement conference in Denver, CO. They learned a lot about the podcast industry and how to improve the show - and a few things that apply to their everyday mindset. Links and Resources: Podcast Movement This episode brought to you in …

1
227 - Pushing Boundaries: A Blind Athlete's Story 36:09

8M ago36:09

36:09

Despite being visually impaired, Dave Wilkinson has accomplished remarkable feats, including marathons and Ironman competitions. His next ambitious goal: the Race Across America, a 3,000-mile non-stop bike race. Dave shares his journey, emphasizing the importance of trust between guide and athlete, and how he overcomes challenges. His story is a te…

1
226 - Navigating Disability & Long-term Relationships 30:36

9M ago30:36

30:36

Join the dudes as they dive into a candid conversation about the complexities of commitment, relationships, and disability. They explore how disability can introduce uncertainty and self-doubt into one's pursuit of a long-term partnership. Discover valuable insights and reflections on the role of societal norms, personal growth, and human nature in…

1
225 - From Preterm to Pediatrician: Tyler's Triumph with CP 49:42

9M ago49:42

49:42

Dr. Tyler Sexton is the Medical Director of pediatrics at Singing River Health System in Mississippi. He's also an international motivational speaker and author, and he has cerebral palsy. Dr. Sexton discusses his journey and how his disability motivated him to become a pediatrician. He shares his early struggles, as he was born prematurely and giv…

1
The Ace Records Podcast #28 Corinne Drewery 1:19:00

9M ago1:19:00

1:19:00

The Ace Records Podcast #28 Corinne Drewery by Ace RecordsBy Ace Records

1
224 - The Power of the Patient Voice - BIO International 44:56

9M ago44:56

44:56

To kick off the inaugural Film Festival at the BIO International Conference, we had the opportunity to moderate a panel about using podcasts, video, and other media to help center the patient voice in the drug development process. This panel featured three top advocates who regularly use media to amplify the patient voice: Daniel DeFabio, Co-Founde…

1
223 - Attitudes Can Change - Let's Talk Debra 43:10

9M ago43:10

43:10

A few years ago, Kyle and Sean both had experiences with someone else judging them for their disability. Whether it was fair or not, both dudes took offense to the way they were approached. Today they review those situations and reevaluate their reactions. Would they react differently today? Listen to find out. Links and resources: 2DD Episode 114 …

1
222 - Is Technology Good or Bad? Yes. 32:28

10M ago32:28

32:28

Ever have those moments where you reflect on the past and think to yourself, “Well, 20 years ago…” and immediately realize that the memory you’re recalling was actually 30 years ago? In other words, time flies and we’re all getting old. In this episode, The Dudes discuss pros and cons of how the world has changed over their lifetime, especially hig…

1
221 -Disability & Fun Can Coexist 30:02

10M ago30:02

30:02

Season 10 kicks off with ep221. Life is constantly changing, especially when living with progressive rare disease. Both Kyle & Sean are living with Friedreich’s ataxia and their abilities are changing often. Recently, Sean hit a mini-golf course and although it wasn’t what he remembers as a teenager, he still found ways to have fun. Ep221 reminds u…

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