Best Ataxia Podcasts (2024)

1
133: An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA 8:58

1h ago8:58

8:58

By Rare Care Podcast

1
256 - Journey to the World’s Highest Road, Part 1 51:43

2h ago51:43

51:43

This episode kicks off Season 12: An abbreviated season. After eight years of consistent publishing, the Dudes are scaling back for the rest of 2024 in order to fine tune the show, focus energy elsewhere, and just catch up on life. This season will consist of five episodes, one for each month through December. Regular, weekly episodes will resume i…

1
#93 Chest pain 1:03:02

8h ago1:03:02

1:03:02

Dr Retesh Bajaj and Dr Bunny Saberwal, both interventional cardiologists, join Sam in discussing patients presenting with chest pain. This episode is jam-packed with learning points, not just for PACES but your clinical practice too! ^_^ SUPPORT THE SHOW ^_^ > > Sign up for Pastest HERE! < < * * *Sign up for PACES Ahead HERE! * * * SCRBS.co.uk - Us…

1
133: An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, on Cannabis Therapy for MS 12:20

8h ago12:20

12:20

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jacquelyn Bainbridge, DPharm, a neurology professor at the University of Colorado in Aurora, on the benefits of medical cannabis in treating multiple sclerosis.By Rare Care Podcast

1
Paralympics coming! 26:09

5d ago26:09

26:09

Send us a Text Message. Kevin & Palmi talk a bit about the upcoming Paralympic games. Paralympics website. Examples of the medals Support the Show.By Kevin & Palmi Henry

1
Dr Jessica Nolan - Lateropulsion 1:10:46

2h ago1:10:46

1:10:46

Dr Jess Nolan recently completed her PhD on Lateropulsion. Jess is a physio from Perth, Australia. Her credentials include BSc (Physio) - Curtin Uni, Grad Dip (Neuro Rehab) – UWA, member of ANZSO Emerging Stroke Clinician Scientist Committee, and Physio Working Party for the Stroke Foundation Living Guidelines. Jess worked as a senior physio, a phy…

1
132: An Interview With Michelle C. Werner, CEO of Alltrna 14:44

13d ago14:44

14:44

By Rare Care Podcast

1
DD SIG Episode 49: Muscular Dystrophy with Claudia SenesacDD SIG Episode 49: Muscular Dystrophy with Claudia Senesac 57:10

2h ago57:10

57:10

In this installment of our series on rare neurologic diseases, host Ken Vinacco talks with Claudia Senesac about physical therapy for people with Duchenne Muscular Dystrophy (DMD) and Becker Muscular Dystrophy (BMD). DMD and BMD are both disorders that cause progressive muscle weakness, with BMD often presenting with less severe weakness and later …

1
VA,VA,VA...Crickets. 38:26

14d ago38:26

38:26

Send us a Text Message. Kevin And Palmi explain some problems that often take years to resolve with the Vetrans Administration (VA). VA Website VA Disability Rates Lewis Black rants about what should be a simple claim. ***Warning*** This rant contains profanity! Support the Show.By Kevin & Palmi Henry

1
#92 Eye movement palsies 52:00

9d ago52:00

52:00

Sam welcomes back Neurology SpR Dr Kim Monks as a follow up to her INO episode to discuss other eye movement palsies as they might be presented in PACES! We go into detail of cranial nerve 3, 4 and 6 palsies! Towards the end of the show, Kim tackles a Harry Potter related Reg Against The Machine! ^_^ SUPPORT THE SHOW ^_^ > > Sign up for Pastest HER…

1
Social Security Disability Attorneys 21:01

4h ago21:01

21:01

In this episode, Jimmy discusses lawyers who handle Social Security Disability cases. Are they neccessary to win a favorable judgement? Can you file and win on your own? Who pays your attorney? What if you lose your case? How much does the attorney get paid? These questions and many more are answered in this episode. Websites in this episode: Resea…

1
131: An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Options for NMOSD 13:02

1h ago13:02

13:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Flavia Nelson, MD, director of the Multiple Sclerosis Center of Excellence at the University of Miami in Florida, on the difficulties of diagnosing neuromyelitis optica spectrum disorder.By Rare Care Podcast

1
130: An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children's Hospital in Columbus, Ohio 10:06

2d ago10:06

10:06

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kevin M. Flanigan, MD, director of the Center for Gene Therapy at the Abigail Wexner Research Instute of Nationwide Children’s Hospital in Columbus, Ohio. The subject of our talk is exon skipping therapies for Duchenne muscular dystrophy.…

1
#91 Friedreich's ataxia 23:28

1M ago23:28

23:28

Sam sits down for a solo episode this week where he discusses absent ankle jerks and upgoing plantar reflexes before going into more detail on one of the differential diagnosis for this presentation: Friedreich's ataxia. ^_^ SUPPORT THE SHOW ^_^ > > Sign up for Pastest HERE! < < * * *Sign up for PACES Ahead HERE! * * * SCRBS.co.uk - Use the offer c…

1
Celine Dion and Stiff Person Syndrome (SPS), and did you know about the nursing shortage? 29:26

1M ago29:26

29:26

Send us a Text Message. Palmi and Kevin did some basic checking into SPS, then address some concerns about the Nursing Shortage and how it is being remedied. Celine Dion's $28m waterpark home she gave up for new life The U.S. Nursing Shortage: A State-by-State Breakdown. Support the Show.By Kevin & Palmi Henry

1
129: An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscular Dystrophy 8:31

12d ago8:31

8:31

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Durresamin Khan, the Pakistani mother of a boy with Duchenne muscular dystrophy, about the difficulties of obtaining treatment for DMD patients who are ineligible for gene therapy.By Rare Care Podcast

1
Fritter #90 ATAXIA - an overview 8:01

1M ago8:01

8:01

In this episode, Jim,my and his crew delve into ataxia, a neurological disorder affecting coordination and balance. They explorcauses,symptoms,andtreatment options. The episode aims to raise awareness, provide support, and highlight ongoing research efforts in the field of ataxia. Websites from this episode: Fmous Apple: wwa.famousapple.com Living …

1
128: An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou 15:00

16d ago15:00

15:00

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jenny Huang, whose son, Benjamin Lou, is an award-winning math major at MIT who also has spinal muscular atrophy.By Rare Care Podcast

1
DD SIG Episode 48: Limb Girdle Muscular Dystrophy with Megan Iammarino 39:56

1M ago39:56

39:56

In this installment of our series on rare neurologic diseases, Ken Vinnaco talks with Megan Iammarino about physical therapy for people with Limb Girdle Muscular Dystrophy (LGMD), an umbrella term that encompasses a varied group of disorders affecting the proximal muscles around the shoulders and hips that impacts approximately 2 in every 100,000 p…

1
Dr Emily Ramage - Codesign, World Stroke Emerging Leader, ENAbLE trial 58:08

27d ago58:08

58:08

This episode is all about codesign. Dr Emily Ramage is a neuro physio & expert in an approach to codesign called Integrated Knowledge Translation. She’s used the methodology through her PhD (codesign of a PA intervention aimed at reducing secondary stroke risk) & in other projects which she speaks about in the episode. Emily's PhD work was piloted …

1
#90 Supporting your team (part 2) 39:26

2M ago39:26

39:26

Welcome to the second part of Sam's conversation with Dr Luke Austen and Dr Josh Davies on supporting juniors. Herein Sam, Luke and Josh discuss giving and receiving feedback, hot debriefs and underperforming trainees. ^_^ SUPPORT THE SHOW ^_^ > > Sign up for Pastest HERE! < < * * *Sign up for PACES Ahead HERE! * * * SCRBS.co.uk - Use the offer cod…

1
Badges, We Don't Need No Stinkin' Badges... 29:47

2M ago29:47

29:47

Send us a Text Message. Kevin & Palmi discuss an article published by globaldisibilityinclusion.com by Meg O'Connell. We also make use of data about America's debt. I also wanted to post links to a couple items we mentioned; Grab bars Ramp Support the Show.By Kevin & Palmi Henry

1
127: An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, Florida 14:02

26d ago14:02

14:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Omer Abdul Hamid, MD, a neurologist at Nemours Children's Hospital in Orlando, Florida, on gene therapy's potential to treat Duchenne muscular dystrophy.By Rare Care Podcast

1
Cell Phone Blindness 5:06

1M ago5:06

5:06

Cell phone blindness is a phenomenon that involves temporary vision loss in one or both eyes after looking at your phone in a dark room....such as a bedroom, bathroom, movie theater, etc.... Websites from this episode: Research & Information: www.healthline.com Our Homesite: www.famousapple.com Living With A Disability: www.famousapple.com/group Co…

1
DDSIG: Bonus Episode- CSM Platform Award: Parkinson’s Disease Rehabilitation Access and Utilization in Black and African American Chicagoland Communities – with Michelle Walaszek 21:14

30d ago21:14

21:14

In this episode, Chris interviews Michelle Walaszek, a winner of the DDSIG platform award at CSM Boston in 2024. Michelle, a PhD candidate and research associate in the Knowledge Translation of Exercise and Activity for Symptom Management (KTEAM) lab at Shirley Ryan AbilityLab, explains important qualitative research that her team completed in thei…

1
What's An Apple A Day about? 3:42

2M ago3:42

3:42

This episode features two of Jimmy's assistants, Dave Picker and Emily Baker, who share the revitalized direction and mission statement for An Apple A Day. Websites from this episode: An Apple A Day Home Site: www.famousapple.com Living With A Disability: www.famousapple.com/group Contact An Apple A Day: admin@famousapple.com…

1
126: An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD) 14:23

2M ago14:23

14:23

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pamela Gavin, the newly appointed CEO of the National Organization for Rare Disorders (NORD).By Rare Care Podcast

1
#89 Supporting your team (part 1) 37:13

2M ago37:13

37:13

Sam sits down with anaesthetics CT3 and author Luke Austen, and IMT3 Joshua Davies to discuss how we can support our postgraduate or resident doctor colleagues when working as the medical registrar on call! ^_^ SUPPORT THE SHOW ^_^ > > Sign up for Pastest HERE! < < * * *Sign up for PACES Ahead HERE! * * * SCRBS.co.uk - Use the offer code PACES10 fo…

1
Mental Superpowers, or Illness? 31:23

2M ago31:23

31:23

Send us a Text Message. https://www.nami.org/Advocacy/Policy-Priorities/Responding-to-Crises/National-Hotline-for-Mental-Health-Crises-and-Suicide-Prevention/We talk a bit about mental disability, and how this is really a difficult subject for laymen to discuss. As always the best is to consult medical professionals. (PTSD) - Symptoms and causes An…

1
125: An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis 17:59

1M ago17:59

17:59

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with ultra-rare diseases.By Rare Care Podcast

1
125: An Interview With Sarah Glass, PhD, of the n-Lorem Foundation 16:36

2M ago16:36

16:36

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease.By Rare Care Podcast

1
124: An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis 14:47

2M ago14:47

14:47

By Rare Care Podcast

1
Dr Julie Vaughan-Graham 1:17:20

2M ago1:17:20

1:17:20

Dr Julie Vaughan-Graham is an IBITA Basic and Advanced Tutor, holds a Masters degree in neuro rehabilitation and a PhD investigating the clinical reasoning process of expert Bobath physiotherapists. She owns her own clinical practice in Toronto, and developed the online iNeuroRehab training courses. Julie also holds a post-doctoral fellowship and a…

1
255 - Season Finale - We’re Riding the World’s Highest Road 44:57

2M ago44:57

44:57

In the final episode of season 11, The Dudes discuss their major upcoming event: a challenging 200-mile bike ride in the Himalayas - to the top of the world’s highest paved road - over 19,000’. They talk about the logistics, the elevation challenges, and their preparation, including the use of altitude training masks. They also address concerns abo…

1
#88 Acute monoarthropathy 45:01

2M ago45:01

45:01

Rheumatology SpR (soon to be consultant!) Dr Ben Mulhearn joins Sam on the podcast to discuss the acutely hot swollen joint and how to approach this in PACES but also in your everday clinical practice! ^_^ SUPPORT THE SHOW ^_^ > > Sign up for Pastest HERE! < < * * *Sign up for PACES Ahead HERE! * * * SCRBS.co.uk - Use the offer code PACES10 for 10%…

1
Temporary Disability 33:42

3M ago33:42

33:42

Send us a Text Message. Everybody has Injury at sometime in their lives. Be aware of Temporary disability laws, so you can react accordingly. Disability Statistics Social Security Administration USA Today Support the Show.By Kevin & Palmi Henry

1
254 - From Dad to Advocate to CEO: John Crowley's Continued Commitment 50:02

3M ago50:02

50:02

This episode (254) features an interview with John Crowley, who shares his journey into the rare disease space. John's involvement started in 1998 when his daughter Megan was diagnosed with Pompe disease, a rare form of muscular dystrophy. Determined to find a cure, John and his family embarked on a journey of research and entrepreneurship, ultimat…

1
123: An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation 11:15

2M ago11:15

11:15

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation.By Rare Care Podcast

1
DDSIG: Bonus Episode- CSM Platform Award: Gait Initiation Dynamics in Parkinson Disease – with CJ Duppen 24:52

3M ago24:52

24:52

In this episode, Parm interviews Chelsea “CJ” Duppen, a winner of the DDSIG platform award at CSM Boston in 2024. CJ, a fourth year PhD student at the University of North Carolina, works with Dr. Mike Lewek in the Recovery of Gait and Neurorehabilitation (ReGaiN) lab, studying gait and gait initiation impairments in people living with Parkinson Dis…

1
253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases 34:06

3M ago34:06

34:06

Rob Long shares his journey with Uplifting Athletes, an organization dedicated to leveraging the influence of athletes to support those impacted by rare diseases. Rob and Brett Brackett took over leadership in 2018, revitalizing the organization's mission. They have several powerful initiatives including The Young Investigator Draft, Lift for Life,…

1
#87 Pleural effusion 39:36

3M ago39:36

39:36

Sam is joined by Respiratory physician, Dr James Walters on the show this week to discuss your approach to this critical PACES station. ^_^ SUPPORT THE SHOW ^_^ > > Sign up for Pastest HERE! < < * * *Sign up for PACES Ahead HERE! * * * SCRBS.co.uk - Use the offer code PACES10 for 10% off! Hosted on Acast. See acast.com/privacy for more information.…

1
Service Dogs, Real ones 47:14

3M ago47:14

47:14

Send us a Text Message. Kevin & Palmi talk about service dogs and how they may be used under the law. Everyone should be aware, each state may have additional laws, often hidden in areas one normally would not think to look. ADA website Busch recommended sites: (no website) K-9 Training Center, Nita Eichman, (573) 979-3318 SIT Service Dogs Pet Pals…

1
122: An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome 13:46

3M ago13:46

13:46

By Rare Care Podcast

1
252 - NFL Plans Crushed, His Response Changes Lives 47:02

3M ago47:02

47:02

In episode 252, Rob Long, executive director of Uplifting Athletes, revisits his rare disease journey. He recounts his college football days at Syracuse University and the abrupt onset of symptoms during his senior year. Rob shares the initial confusion and fear surrounding his diagnosis of a brain tumor, leading to surgery and a challenging recove…

1
121: An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD 4:13

3M ago4:13

4:13

By Rare Care Podcast

1
Dr Sarah Milne - Friedreich's Ataxia & the cerebellum 46:06

3M ago46:06

46:06

This month we are chatting with Dr. Sarah Milne from Murdoch Children’s Research Institute who is also the Coordinator of the Friedreich's Ataxia Clinic at Monash Health in Melbourne, Australia. Sarah is an expert in hereditary cerebellar ataxias and after completing her PhD in 2018 she is trying to bolster the evidence base about the right rehab f…

1
251 - From Canes to Canines: Linda's Path to Mobility 54:08

3M ago54:08

54:08

In episode 251 we welcome our dear friend Linda Snyder! Linda shares her personal journey living with a rare genetic type of ataxia and discusses how she discovered the benefits of having a mobility service dog named Cedric. She talks about the rigorous process of applying for a service dog, the extensive training Cedric underwent, and the various …

1
#86 Internuclear ophthalmoplegia 47:16

3M ago47:16

47:16

A fantastic new guest, Dr Kim Monks, joins Sam on the podcast to discuss INO in PACES including a full run down of the anatomy, physiology and examination findings. Kim also tackles Reg Against the Machine on a quiz topic that will get your eyes popping! ^_^ SUPPORT THE SHOW ^_^ > > Sign up for Pastest HERE! < < * * *Sign up for PACES Ahead HERE! *…

1
120: An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema 17:11

3M ago17:11

17:11

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza.By Rare Care Podcast

1
119: An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy 15:58

3M ago15:58

15:58

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Edward Smith, MD, about the recent approval of vamorolone, a synthetic corticosteroid, in boys with Duchenne muscular dystrophy.By Rare Care Podcast

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Ataxia Podcasts

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