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Meet Nicole and Luke!

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Manage episode 374398721 series 3373390
Content provided by Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

This week we spoke to Nicole and Luke Pavlin! Nicole is living with Crohn's disease and Luke is her husband and care partner. We talked about the process for her to get diagnosed and the unusual birth defect she has that complicated her case. We talked about her ongoing struggles with food anxiety and medical trauma and how the GRITT- IBD program and staff have helped her cope. We talked to her about how her Dietitian and her mental health team have worked together to help her. We talked about her participation in a couple of research studies being put on by Mount Sinai including one with wearable devices. Nicole talked about why participating in these types of studies was especially important to her as a science educator and to help her feel like she was helping others. We also talked about her volunteer role with the nonprofit Nutrition Therapy for IBD.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)
Links:

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

  continue reading

Chapters

1. Meet Nicole and Luke! (00:00:00)

2. [Ad] Tune in to the Patient Advocacy Voices Podcast today (00:11:17)

3. (Cont.) Meet Nicole and Luke! (00:12:07)

117 episodes

Artwork
iconShare
 
Manage episode 374398721 series 3373390
Content provided by Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

This week we spoke to Nicole and Luke Pavlin! Nicole is living with Crohn's disease and Luke is her husband and care partner. We talked about the process for her to get diagnosed and the unusual birth defect she has that complicated her case. We talked about her ongoing struggles with food anxiety and medical trauma and how the GRITT- IBD program and staff have helped her cope. We talked to her about how her Dietitian and her mental health team have worked together to help her. We talked about her participation in a couple of research studies being put on by Mount Sinai including one with wearable devices. Nicole talked about why participating in these types of studies was especially important to her as a science educator and to help her feel like she was helping others. We also talked about her volunteer role with the nonprofit Nutrition Therapy for IBD.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)
Links:

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

  continue reading

Chapters

1. Meet Nicole and Luke! (00:00:00)

2. [Ad] Tune in to the Patient Advocacy Voices Podcast today (00:11:17)

3. (Cont.) Meet Nicole and Luke! (00:12:07)

117 episodes

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