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What is Butterfly Talk?
Manage episode 153871251 series 1105122
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A quick podcast to test the waters, explaining why I decided to start this and what Epidermolysis Bullosa is in general and what my son goes through on a daily basis. My son Nicky has the Recessive Dystrophic form of EB. This blog talk radio podcast will feature guests and will be a permanent part of the ebinfoworld.com website. I start this podcast in conjuction with the upcoming release of my book "Butterfly Child", my journey from the stillbirth of my first son Alex, followed by a miscarriage and the birth of my son Nicky and what life has been like for him and us for the past 20 years.
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