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Episode 47 - Coffin Lowry Syndrome Foundation

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Manage episode 422164383 series 2389264
Content provided by Sanford CoRDS. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Sanford CoRDS or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

On today's episode, Alyssa and Polly sit down with Theresa who is a part of the Coffin Lowry Syndrome Foundation.

Theresa's son was diagnosed with Coffin Lowry Syndrome at the age of four. Theresa discusses the long journey ahead to finding a diagnosis for her son. Theresa has been a major part in growing their community with over 800 members and devoted her life to finding a cure. If you would like to learn more about the Coffin Lowry Syndrome Association, please visit: www.clsf.info

Enjoy!

  continue reading

49 episodes

Artwork
iconShare
 
Manage episode 422164383 series 2389264
Content provided by Sanford CoRDS. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Sanford CoRDS or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

On today's episode, Alyssa and Polly sit down with Theresa who is a part of the Coffin Lowry Syndrome Foundation.

Theresa's son was diagnosed with Coffin Lowry Syndrome at the age of four. Theresa discusses the long journey ahead to finding a diagnosis for her son. Theresa has been a major part in growing their community with over 800 members and devoted her life to finding a cure. If you would like to learn more about the Coffin Lowry Syndrome Association, please visit: www.clsf.info

Enjoy!

  continue reading

49 episodes

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