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The EYE OPENING Reality Of Accessing Life-Changing Medications & FDA Bureaucratic Battles With Judy Stecker

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Manage episode 412658650 series 3439064
Content provided by DC EKG and Evergreen Podcasts | Big Whig Media. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by DC EKG and Evergreen Podcasts | Big Whig Media or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

In this episode of DC EKG, former HHS policy staffer now activist Judy Stecker shares her deeply personal journey advocating for her son Wheeler, who suffers from a rare genetic disease. Peeling back the layers of FDA bureaucracy, Judy exposes the rigid, bureaucratic structure that obstructs access to life-changing medications. We discuss the stringent regulations that hinder innovation, ethical considerations surrounding clinical trials, the impact of Operation Warp Speed on expediting procedures, as well as invaluable insights on fostering broader accessibility to groundbreaking treatments.

-Links-

Judy’s WSJ article:

https://www.wsj.com/articles/the-fda-could-help-save-my-son-from-a-rare-disease-bureaucracy-efficacy-7090ac82

Wheeler’s Warriors:

https://wheelerswarriors.org/our-story

Follow us:

https://twitter.com/DCEKGpodcast

  continue reading

81 episodes

Artwork
iconShare
 
Manage episode 412658650 series 3439064
Content provided by DC EKG and Evergreen Podcasts | Big Whig Media. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by DC EKG and Evergreen Podcasts | Big Whig Media or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

In this episode of DC EKG, former HHS policy staffer now activist Judy Stecker shares her deeply personal journey advocating for her son Wheeler, who suffers from a rare genetic disease. Peeling back the layers of FDA bureaucracy, Judy exposes the rigid, bureaucratic structure that obstructs access to life-changing medications. We discuss the stringent regulations that hinder innovation, ethical considerations surrounding clinical trials, the impact of Operation Warp Speed on expediting procedures, as well as invaluable insights on fostering broader accessibility to groundbreaking treatments.

-Links-

Judy’s WSJ article:

https://www.wsj.com/articles/the-fda-could-help-save-my-son-from-a-rare-disease-bureaucracy-efficacy-7090ac82

Wheeler’s Warriors:

https://wheelerswarriors.org/our-story

Follow us:

https://twitter.com/DCEKGpodcast

  continue reading

81 episodes

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