From Caregiver to Research Participant: How One Woman’s Experience as a Dementia Caregiver Drew Her to Alzheimer’s Research

Dementia Matters

Caring for a loved one with cognitive decline can be challenging. While it is a labor of love, burnout is all but inevitable. In this episode kicking off our Voices of Research Participants series with co-host Sarah Walter, Cynthia Sierra touches on her personal experience with caregiver burnout as both a caregiver and research study partner for her mother, who has early-onset Alzheimer’s disease. She also shares her unique perspective on Alzheimer’s disease research as someone who started as a family caregiver.

Guest: Cynthia Sierra, MS, LPC, senior project manager, UT Health San Antonio

Co-host: Sarah Walter, MSc, program administrator, Alzheimer’s Clinical Trials Consortium (ACTC) and Alzheimer’s Therapeutic Research Institute (ATRI)

Show Notes

Learn more about Cynthia Sierra’s research at her ResearchGate profile.

Learn more about Sarah Walter at her bio on the Alzheimer’s Clinical Trials Consortium website.

Find resources for people with dementia and their care partners on our website.

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