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131 - Catch Your Breath and Look Around: Meet Ellie

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Manage episode 418297948 series 2412757
Content provided by Go Shout Love. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Go Shout Love or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
This month, we're featuring Ellie, a four-year-old from Litchfield, New Hampshire. She loves school, music, dancing,and, yes, horseback riding! Ellie has been diagnosed with a very rare condition called Rubinstein-Taybi syndrome.
There's too much to cover about her diagnosis in a brief format, so we will let Taylor, Ellie's mother, explain it in more detail.We're incredibly grateful to Taylor for allowing us into their lives and sharing Ellie's story – from the early stages of the diagnosis to her personality and her relationship with her two-year-old brother.
You may not get to meet Ellie in person,but you'll fall in love with her just by hearing about her.
  continue reading

130 episodes

Artwork
iconShare
 
Manage episode 418297948 series 2412757
Content provided by Go Shout Love. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Go Shout Love or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
This month, we're featuring Ellie, a four-year-old from Litchfield, New Hampshire. She loves school, music, dancing,and, yes, horseback riding! Ellie has been diagnosed with a very rare condition called Rubinstein-Taybi syndrome.
There's too much to cover about her diagnosis in a brief format, so we will let Taylor, Ellie's mother, explain it in more detail.We're incredibly grateful to Taylor for allowing us into their lives and sharing Ellie's story – from the early stages of the diagnosis to her personality and her relationship with her two-year-old brother.
You may not get to meet Ellie in person,but you'll fall in love with her just by hearing about her.
  continue reading

130 episodes

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