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#28 Our Son's Rare Genetic Disease: Hunter Syndrome

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Manage episode 221339709 series 1472749
Content provided by Joe DiMaggio Children's Hospital. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Joe DiMaggio Children's Hospital or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
In this episode, we meet Sebastian's family. Sebastian's illness known as Hunter Syndrome, affects only 1 in 100,000 to 1 in 170,000 primarily males. The family shares their story and want other parents with children with rare diseases to know they are not alone.
  continue reading

42 episodes

Artwork
iconShare
 
Manage episode 221339709 series 1472749
Content provided by Joe DiMaggio Children's Hospital. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Joe DiMaggio Children's Hospital or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
In this episode, we meet Sebastian's family. Sebastian's illness known as Hunter Syndrome, affects only 1 in 100,000 to 1 in 170,000 primarily males. The family shares their story and want other parents with children with rare diseases to know they are not alone.
  continue reading

42 episodes

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