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The Most Common Disease You've Never Heard Of
Manage episode 341824439 series 3397370
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This week, Kevin and Jesse are joined by Dr. Chip Norris and Dr. Cortney Gensemer, both with the Norris Lab at MUSC. Dr. Norris and Dr. Gensemer discuss their study of Ehlers Danlos syndrome (EDS) a disease that affects almost 1 in 300 individuals, often labeled the most common disease you’ve never heard of. Dr. Gensemer discusses both living with and promoting EDS on social media while Dr. Norris examines why learning about EDS could help parents manage constant pain their children may be dealing with and further pediatric care internationally.
00:00 The Start
01:55 Dr. Norris and Dr. Gensemer Join the Show
02:50 How Widespread is EDS
08:15 Symptoms of and Living with EDS
15:07 Why Physicians are Dismissive of EDS
22:07 Benefits of Being Diagnosed Early
25:13 The EDS Registry and Norris Lab
32:15 How to Change the Perception of a Disease and EDS
Learn more about innovation at the Medical University of South Carolina (MUSC) by visiting: https://web.musc.edu/innovation
If you’d like to learn more about the Norris Lab and EDS Registry, visit: https://medicine.musc.edu/departments/regenerative-medicine/research/norris-lab
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