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Finding Out You Have a Rare Disease
Manage episode 344649920 series 3406993
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Welcome to the first episode of Insightful Moments: My VIBE, presented by PTC-Bio! Join host Paula Orandash as she speaks to patients and their families about their unique experiences in the rare disease community - from diagnosis to overcoming challenges and building a supportive community. It’s day 1 of the 28th annual PPMD conference for physicians, caregivers, and families affected by Duchenne Muscular Dystrophy. For today’s episode, we speak with the parents here at the conference of those diagnosed with DMD about their experiences of discussing the diagnosis with their child and learning to ask for help, as well as the importance of building a strong support system with other families. This is sure to be an insightful episode so press play and join us for Insightful Moments: My VIBE, brought to you by PTC-Bio.
For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.
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Presented by PTC Therapeutics
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