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#47: Ilene Ruhoy, MD discusses the her work as the Medical Director of the new EDS Center at Mt Sinai in South Nassau, New York

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Manage episode 295797956 series 2943299
Content provided by Gillian Ehrlich. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Gillian Ehrlich or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Dr Ilene Ruhoy is the Medical Director of the new Ehlers-Danlos Syndrome Center at Mt Sinai in South Nassau, New York. In this podcast, Dr Ruhoy shares the structure, goals and approach to EDS patient care. Dr Ruhoy lays out the challenges that EDS and hypermobile patients encounter in experiencing connective tissue disorders, getting a diagnosis and the work that is happening at the EDS Center to center complex and chronically ill patient care. It starts with a triad structure binding together clinical practice with the illustrious Dr Anne Maitland, surgery led by Dr Paulo Bolognese, as driving and driven by research. Then, Dr Ruhoy dives into the nature of the connective tissue and reviews one research study underway to evaluate these connective tissues for infectious source but also postulates other potential sources starting with genetic vulnerabilities as acted upon by pollution, trauma and other triggers. This might be a one-two punch that can result in complex and chronic disease.

What is Ehlers-Danlos Syndrome? https://www.ehlers-danlos.com/what-is-eds/

EDS Center at Mt Sinai: https://www.southnassau.org/sn/chiari-eds?srcaud=Main

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87 episodes

Artwork
iconShare
 
Manage episode 295797956 series 2943299
Content provided by Gillian Ehrlich. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Gillian Ehrlich or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Dr Ilene Ruhoy is the Medical Director of the new Ehlers-Danlos Syndrome Center at Mt Sinai in South Nassau, New York. In this podcast, Dr Ruhoy shares the structure, goals and approach to EDS patient care. Dr Ruhoy lays out the challenges that EDS and hypermobile patients encounter in experiencing connective tissue disorders, getting a diagnosis and the work that is happening at the EDS Center to center complex and chronically ill patient care. It starts with a triad structure binding together clinical practice with the illustrious Dr Anne Maitland, surgery led by Dr Paulo Bolognese, as driving and driven by research. Then, Dr Ruhoy dives into the nature of the connective tissue and reviews one research study underway to evaluate these connective tissues for infectious source but also postulates other potential sources starting with genetic vulnerabilities as acted upon by pollution, trauma and other triggers. This might be a one-two punch that can result in complex and chronic disease.

What is Ehlers-Danlos Syndrome? https://www.ehlers-danlos.com/what-is-eds/

EDS Center at Mt Sinai: https://www.southnassau.org/sn/chiari-eds?srcaud=Main

  continue reading

87 episodes

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