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Episode 15 Part 2 - Special Focus on Trisomy 13 (Patau's syndrome) and Trisomy 18 (Edward's syndrome) with Professor Nick Embleton, Professor of Neonatal Medicine (Newcastle University) Consultant Neonatal Paediatrician (Newcastle Hospitals NHS Trust)

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Manage episode 349699954 series 3426279
Content provided by Philippa Davies. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Philippa Davies or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

For this month's episode of the Our Sam Talking out Loud podcast series, we have partnered with SOFT UK, to focus on Trisomy conditions in babies, specifically Trisomy 13, known as Patau's syndrome, and Trisomy 18, known as Edwards' syndrome.
In the second part of this special focus episode, Philippa talks to Professor Nick Embleton, Professor of Neonatal Medicine (Newcastle University) Consultant Neonatal Paediatrician (Newcastle Hospitals NHS Trust) who has returned to talk about the difficult balance when offering support and care choices to parents and families, the difference that the right communication at the right time can make, care pathways within primary and secondary healthcare for babies, parents and families with life limiting conditions, focusing on Trisomy 13 and 18, and also thoughts about further development of more collaborative care pathways.
This episode is supported by a blog post produced by SOFT UK.
Feedback request
If you have listened to this podcast, we would really welcome your feedback to help us grow and continue to improve the support we are providing. If you have a couple of minutes just click on the link below. Thank you for your time, your feedback is really important to us.
https://www.surveymonkey.co.uk/r/82XB7Q2

This podcast is recorded, edited and produced by Our Sam (Charity Registration Number 1191411)
(Please note a correction to the podcast, Dr Nora Shannon is a Professional advisor, not as mentioned in the podcast a Trustee for SOFT UK)

  continue reading

42 episodes

Artwork
iconShare
 
Manage episode 349699954 series 3426279
Content provided by Philippa Davies. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Philippa Davies or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

For this month's episode of the Our Sam Talking out Loud podcast series, we have partnered with SOFT UK, to focus on Trisomy conditions in babies, specifically Trisomy 13, known as Patau's syndrome, and Trisomy 18, known as Edwards' syndrome.
In the second part of this special focus episode, Philippa talks to Professor Nick Embleton, Professor of Neonatal Medicine (Newcastle University) Consultant Neonatal Paediatrician (Newcastle Hospitals NHS Trust) who has returned to talk about the difficult balance when offering support and care choices to parents and families, the difference that the right communication at the right time can make, care pathways within primary and secondary healthcare for babies, parents and families with life limiting conditions, focusing on Trisomy 13 and 18, and also thoughts about further development of more collaborative care pathways.
This episode is supported by a blog post produced by SOFT UK.
Feedback request
If you have listened to this podcast, we would really welcome your feedback to help us grow and continue to improve the support we are providing. If you have a couple of minutes just click on the link below. Thank you for your time, your feedback is really important to us.
https://www.surveymonkey.co.uk/r/82XB7Q2

This podcast is recorded, edited and produced by Our Sam (Charity Registration Number 1191411)
(Please note a correction to the podcast, Dr Nora Shannon is a Professional advisor, not as mentioned in the podcast a Trustee for SOFT UK)

  continue reading

42 episodes

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