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Fabry International Network: Addressing the Needs of Patients and Industry
Manage episode 381572078 series 3510439
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In this episode of OVIDcast, Rachel Gonzaga, Head of Patient Partnerships at OVID Health, continues the conversation with Mary Pavlou, President of the Fabry International Network and a trained nurse who lives with Fabry disease. Listen as Mary highlights the importance of transparency in successful partnerships and the challenge of measuring the success of collaborations with industry.
(0:48) Measuring success
(3:05) Initiating partnerships with patient organisations
(4:18) The questions pharma should be asking
(5:04) The need for educational material
About the guest:
Mary Pavlou is the President and Head of Patient Partnerships at Fabry International Network. She is a trained nurse and Fabry disease patient herself.
Fabry International Network is an independent and vibrant network of Fabry patient associations whose purpose is to collaborate, communicate and promote best practice to support those affected by Fabry disease, connecting health professionals and allying with industry partners, with the mission to empower Fabry patients all over the world.
Find out more about the Fabry International Network
OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.
Find out more about OVID Health
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