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Care Coordination in Spinal Muscular Atrophy
Manage episode 361005198 series 3264057
In this episode, Dr. Battista and Dr. Parsons discuss the importance of care guidelines and the multidisciplinary team in the treatment of spinal muscular atrophy (SMA). This overview will include:
- The role each member of the interdisciplinary team plays in the care of SMA including physical therapists, occupational therapists, and speech therapists
- The importance of continued, ongoing therapy in addition to medication therapy to provide the greatest improvement in SMA care
- How to manage transitions in care, including the transition from pediatrics to adulthood and how to include the necessary support teams
- The role shared decision-making plays in the treatment of patients with SMA
Presenters:
Julie Parsons, MD
Co-Director, Neuromuscular Clinic
Haberfeld Family Endowed Chair in Pediatric Neuromuscular Disorders
Professor of Clinical Pediatrics and Neurology
Children’s Hospital Colorado
Denver, Colorado
Vanessa Battista, DNP, MBA, RN, MS, CPNP-PC, CHPPN, FPCN
Senior Director of Nursing, Palliative Care
Psychosocial Oncology and Palliative Care
Dana-Farber Cancer Institute
Boston, Massachusetts
Supported by an educational grant from Biogen.
Link to full program:
https://bit.ly/43Dmo7q
Link to CME: Claim credit
https://bit.ly/40gulfX
86 episodes
Manage episode 361005198 series 3264057
In this episode, Dr. Battista and Dr. Parsons discuss the importance of care guidelines and the multidisciplinary team in the treatment of spinal muscular atrophy (SMA). This overview will include:
- The role each member of the interdisciplinary team plays in the care of SMA including physical therapists, occupational therapists, and speech therapists
- The importance of continued, ongoing therapy in addition to medication therapy to provide the greatest improvement in SMA care
- How to manage transitions in care, including the transition from pediatrics to adulthood and how to include the necessary support teams
- The role shared decision-making plays in the treatment of patients with SMA
Presenters:
Julie Parsons, MD
Co-Director, Neuromuscular Clinic
Haberfeld Family Endowed Chair in Pediatric Neuromuscular Disorders
Professor of Clinical Pediatrics and Neurology
Children’s Hospital Colorado
Denver, Colorado
Vanessa Battista, DNP, MBA, RN, MS, CPNP-PC, CHPPN, FPCN
Senior Director of Nursing, Palliative Care
Psychosocial Oncology and Palliative Care
Dana-Farber Cancer Institute
Boston, Massachusetts
Supported by an educational grant from Biogen.
Link to full program:
https://bit.ly/43Dmo7q
Link to CME: Claim credit
https://bit.ly/40gulfX
86 episodes
All episodes
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