))
Elaine Godley talks to David Rose | Rare Health Disease | Occipital Horn Syndrome
Manage episode 364494530 series 3110479
Content provided by Elaine Godley. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Elaine Godley or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Elaine Godley talks to David Rose, who shares a true life experience of living with a very rare disease known as occipital horn syndrome (ohs), along with a few more common chronic health conditions.
David has been working in the rare disease industry for the last 5 years and has been doing various volunteer and trustee roles for nearly 11 years in rare disease and disability.
More about David: https://www.instagram.com/occipitalhornadvocate/ https://www.linkedin.com/in/drose2/ ~~~~~~~~~~~~~~~~~~~~ ELAINE GODLEY | Dedicated To Improving Your Health & Wellbeing 🌸 More details here: https://linktr.ee/elainegodley
378 episodes
Share
