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Hemophilia with Patrick James Lynch From Believe limited

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Manage episode 437337276 series 3485028
Content provided by Joanna. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Joanna or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

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Patrick James Lynch is a Hemophilia patient, and advocate, fim maker and podcaster. His films include Bomardier Blood, Deliver Us and My Beautiful Stutter as well as many others, He has been won several awards including the Rare impact award from the National Association for Rare Disorders (NORD) the Meritorious service award in and he has also been a keynote speaker for the World Federation of Hemophilia WFH. Patrick dedicates his work to his brother who sadly passed away in 2007 at the age of 89. His brother was also a hemophilia patient and a retired news anchor from Pittsburgh, PA. Patrick now lives in California where he continues to film and advocate for rare conditions through story telling.
Please subscribe to my YouTube channel Rare Chef so that you don't miss an episode You can also subscribe on whatever platform you are listening to this on. Feel free to use the link in the show notes to text me. I would love to hear from you. You can also visit my website rareconnection.org to join my email list, and connect with other rare disease patients, signup for my podcast, and stay updated as rare connection becomes a nonprofit. Finally you can join our Facebook group and visit the Facebook Page.
Support the Show.

  continue reading

31 episodes

Artwork
iconShare
 
Manage episode 437337276 series 3485028
Content provided by Joanna. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Joanna or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Send us a text

Patrick James Lynch is a Hemophilia patient, and advocate, fim maker and podcaster. His films include Bomardier Blood, Deliver Us and My Beautiful Stutter as well as many others, He has been won several awards including the Rare impact award from the National Association for Rare Disorders (NORD) the Meritorious service award in and he has also been a keynote speaker for the World Federation of Hemophilia WFH. Patrick dedicates his work to his brother who sadly passed away in 2007 at the age of 89. His brother was also a hemophilia patient and a retired news anchor from Pittsburgh, PA. Patrick now lives in California where he continues to film and advocate for rare conditions through story telling.
Please subscribe to my YouTube channel Rare Chef so that you don't miss an episode You can also subscribe on whatever platform you are listening to this on. Feel free to use the link in the show notes to text me. I would love to hear from you. You can also visit my website rareconnection.org to join my email list, and connect with other rare disease patients, signup for my podcast, and stay updated as rare connection becomes a nonprofit. Finally you can join our Facebook group and visit the Facebook Page.
Support the Show.

  continue reading

31 episodes

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