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The VEDS Movement & VEDS Action Month

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Manage episode 314849022 series 2861129
Content provided by Tammy Flynn, Tammy Flynn: podcaster, and Special needs advocate a. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Tammy Flynn, Tammy Flynn: podcaster, and Special needs advocate a or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

As we continue our VEDS Action Month Series, I am so excited to welcome to the show, Katie Wright, Director of The VEDS Movement.

Katie Wright was diagnosed with VEDS, or Vascular Ehlers-Danlos Syndrome, in 2017. Her diagnosis provided the answer for the unexplained neck pain she had been dealing with for over a year, which turned out to be a dissected carotid artery.

Katie's diagnosis inspired her to get involved in advocacy for VEDS. She first started a YouTube channel, and then started a podcast, Staying Connected, featuring stories from other people with VEDS. In 2018, she got involved in research through work with the VEDS Collaborative, and in 2019 she joined The Marfan Foundation to launch a dedicated division for VEDS- now known as The VEDS Movement.

Listen in as Katie shares all about The VEDS Movement and VEDS Action Month.

Make sure you never miss out on our informative newsletters and new videos/podcasts go to www.onairadvocate.com today & sign up :)

#thevedsmovement

#vedsactionmonth

  continue reading

100 episodes

Artwork
iconShare
 
Manage episode 314849022 series 2861129
Content provided by Tammy Flynn, Tammy Flynn: podcaster, and Special needs advocate a. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Tammy Flynn, Tammy Flynn: podcaster, and Special needs advocate a or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

As we continue our VEDS Action Month Series, I am so excited to welcome to the show, Katie Wright, Director of The VEDS Movement.

Katie Wright was diagnosed with VEDS, or Vascular Ehlers-Danlos Syndrome, in 2017. Her diagnosis provided the answer for the unexplained neck pain she had been dealing with for over a year, which turned out to be a dissected carotid artery.

Katie's diagnosis inspired her to get involved in advocacy for VEDS. She first started a YouTube channel, and then started a podcast, Staying Connected, featuring stories from other people with VEDS. In 2018, she got involved in research through work with the VEDS Collaborative, and in 2019 she joined The Marfan Foundation to launch a dedicated division for VEDS- now known as The VEDS Movement.

Listen in as Katie shares all about The VEDS Movement and VEDS Action Month.

Make sure you never miss out on our informative newsletters and new videos/podcasts go to www.onairadvocate.com today & sign up :)

#thevedsmovement

#vedsactionmonth

  continue reading

100 episodes

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