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Parenting a Rare Disease Child with Rare Mamas Founder Nikki McIntosh
Manage episode 284022836 series 2869058
Content provided by True Spectrum Media, Artemis Joukwosky, Cray Novick, and Gareth Burghes. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by True Spectrum Media, Artemis Joukwosky, Cray Novick, and Gareth Burghes or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Nikki McIntosh, the founder of Rare Mamas, believes there is a brave fighter inside every rare-disease mother. By sharing her learnings, tips, and resources, Nikki wants to empower other rare disease parents to shift from distress to prowess. In this conversation, we speak with Nikki about the path to diagnosis, family dynamics, parenting, and getting comfortable with not being comfortable. Also on the episode are Genetics of Hope co-directors Artemis Joukowky, Gareth Burghes, and Cray Novick.
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