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294. Why Down Syndrome Isn't Something to "Cure"
Manage episode 475787143 series 2095509
When we saw this headline, “CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment,” we knew we had to discuss this article together. So that’s what we’re doing today. Here’s what we’re covering in this episode:
The ethics of gene editing - What about other conditions with serious life-threatening effects?
Why do some people assume that we need to “cure” Down syndrome?
What would we do to alleviate some of the medical challenges in the DS community?
The problem with not including disabled people in this conversation
We are really digging deep today! And we invite you to read the article (linked here) and join us for this important conversation.
--
SHOW NOTES
Read CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment
Keep this convo going with these past episodes: 161. Let’s Talk About Abortion & Disability; 117. Dignity Beyond Accomplishment; 99. The Last Children of Down Syndrome
SHOUT OUT: Follow @amyjuliabecker for thoughtful discussions on hard topics in the DS community.
SPONSORS
Learn more about Jack’s Basket.
Learn more about Enable Special Needs Planning.
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
330 episodes
Manage episode 475787143 series 2095509
When we saw this headline, “CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment,” we knew we had to discuss this article together. So that’s what we’re doing today. Here’s what we’re covering in this episode:
The ethics of gene editing - What about other conditions with serious life-threatening effects?
Why do some people assume that we need to “cure” Down syndrome?
What would we do to alleviate some of the medical challenges in the DS community?
The problem with not including disabled people in this conversation
We are really digging deep today! And we invite you to read the article (linked here) and join us for this important conversation.
--
SHOW NOTES
Read CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment
Keep this convo going with these past episodes: 161. Let’s Talk About Abortion & Disability; 117. Dignity Beyond Accomplishment; 99. The Last Children of Down Syndrome
SHOUT OUT: Follow @amyjuliabecker for thoughtful discussions on hard topics in the DS community.
SPONSORS
Learn more about Jack’s Basket.
Learn more about Enable Special Needs Planning.
JOIN THE LUCKY CREW
Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
330 episodes
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