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Agnes Nsofwa and her advocacy for sickle cell patients

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Manage episode 381848437 series 3525766
Content provided by The Patient Voice Initiative. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Patient Voice Initiative or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
After Agnes' daughter was diagnosed with sickle cell disease at 14 months old, she learned everything she could and soon discovered the limited treatment options that patients had access to.

Since then, she's become an advocate for sickle cell patients. With each person that's diagnosed having such a different experience with the disease, Agnes knew that greater knowledge and information was needed as much for patients as for their families.
  continue reading

12 episodes

Artwork
iconShare
 
Manage episode 381848437 series 3525766
Content provided by The Patient Voice Initiative. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Patient Voice Initiative or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
After Agnes' daughter was diagnosed with sickle cell disease at 14 months old, she learned everything she could and soon discovered the limited treatment options that patients had access to.

Since then, she's become an advocate for sickle cell patients. With each person that's diagnosed having such a different experience with the disease, Agnes knew that greater knowledge and information was needed as much for patients as for their families.
  continue reading

12 episodes

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