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Christian Rubio Talks About Global Genes and Advocacy for Patients with Rare Diseases
Manage episode 297076284 series 2949236
Content provided by TrialSite News. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by TrialSite News or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
400 million worldwide are impacted with rare diseases and approximately 30 million in America. With organizations like Global Genes we have come quite a ways to evangelize what amounts to very vulnerable groups. In this episode Christian Rubio talks about Global Genes and how they started, their goals, and what the future looks like, especially while dealing with COVID-19.
To find out more about Global Genes and Christian Rubio please see the links below:
Continuity of Care RARE Patient Impact Grant programRARE Drug Development Symposium RARE List Global Genes
82 episodes
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Manage episode 297076284 series 2949236
Content provided by TrialSite News. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by TrialSite News or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
400 million worldwide are impacted with rare diseases and approximately 30 million in America. With organizations like Global Genes we have come quite a ways to evangelize what amounts to very vulnerable groups. In this episode Christian Rubio talks about Global Genes and how they started, their goals, and what the future looks like, especially while dealing with COVID-19.
To find out more about Global Genes and Christian Rubio please see the links below:
Continuity of Care RARE Patient Impact Grant programRARE Drug Development Symposium RARE List Global Genes
82 episodes
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Similar to trialsitenews's podcast
Host Marco Werman and his team of producers bring you the world's most interesting stories that remind us just how small our planet really is.
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continue reading
The Jacaranda FM News team is based in Gauteng – but covers local and international news of the day, providing the latest developments online and on-air. News bulletins run from 5am to 7pm weekdays, and from 7am to 6pm on weekends and public holidays. Tune into Jacaranda FM, or log on to www.jacarandafm.com, for the news you need to know.. now.
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continue reading
Each week The Intercept’s Washington, D.C. bureau brings you one important or overlooked story from the political world. Bureau Chief Ryan Grim and a rotating cast of journalists, politicians, academics and historians tell you what the rest of the media are missing. Hosted on Acast. See acast.com/privacy for more information.
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