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Episode 111: Babies With Kidney Disease: A Mother’s Experience of Navigating Uncertainty

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Content provided by Dee Moore. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Dee Moore or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Content warning: This episode contains discussions of a sensitive nature, including the medical management of abortion.

In this moving episode, Rajinder shares her journey as a parent of a child with CKD, starting from a complicated pregnancy to facing the challenges of a son with failing kidneys. The lack of support and empathy during difficult pregnancies is discussed, highlighting the need for better emotional guidance during such times. Rajinder and her husband navigated tough decisions to give their baby the best chance at life despite medical team dismissal. The traumatic birth experience and the subsequent NICU journey filled with uncertainty and fear are detailed, showcasing the family's strength in facing their baby's health struggles. Despite the challenges, Milo showed resilience in coping with dialysis from a young age. This episode sheds light on the importance of support and understanding in navigating complex pregnancies and health challenges.

For updates and more, follow Diary of a Kidney Warrior on:

Instagram: www.instagram.com/diaryofakidneywarrior

Facebook: www.facebook.com/diaryofakidneywarrior

Twitter: www.twitter.com/diaryofakidneyw

Tik Tok: @diaryofakidneywarrior

Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/

Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!

diaryofakidneywarrior.getform.com/rjv47

Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!

https://diaryofakidneywarrior.getform.com/ojp1p

infoKID provides information for parents and carers about kidney conditions in babies, children and young people.

https://infokid.org.uk/

If you were affected by any of the issues raised in this episode contact:

Kidney Care UK

• Website: www.kidneycarekuk.org

• Email: info@kidneycareuk.org

• Tel: 01420 541 424

• Facebook: www.facebook.com/kidneycareuk.org

• Instagram: @kidneycareuk

• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org

Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

  continue reading

127 episodes

Artwork
iconShare
 
Manage episode 421703290 series 3323554
Content provided by Dee Moore. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Dee Moore or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Content warning: This episode contains discussions of a sensitive nature, including the medical management of abortion.

In this moving episode, Rajinder shares her journey as a parent of a child with CKD, starting from a complicated pregnancy to facing the challenges of a son with failing kidneys. The lack of support and empathy during difficult pregnancies is discussed, highlighting the need for better emotional guidance during such times. Rajinder and her husband navigated tough decisions to give their baby the best chance at life despite medical team dismissal. The traumatic birth experience and the subsequent NICU journey filled with uncertainty and fear are detailed, showcasing the family's strength in facing their baby's health struggles. Despite the challenges, Milo showed resilience in coping with dialysis from a young age. This episode sheds light on the importance of support and understanding in navigating complex pregnancies and health challenges.

For updates and more, follow Diary of a Kidney Warrior on:

Instagram: www.instagram.com/diaryofakidneywarrior

Facebook: www.facebook.com/diaryofakidneywarrior

Twitter: www.twitter.com/diaryofakidneyw

Tik Tok: @diaryofakidneywarrior

Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/

Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!

diaryofakidneywarrior.getform.com/rjv47

Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!

https://diaryofakidneywarrior.getform.com/ojp1p

infoKID provides information for parents and carers about kidney conditions in babies, children and young people.

https://infokid.org.uk/

If you were affected by any of the issues raised in this episode contact:

Kidney Care UK

• Website: www.kidneycarekuk.org

• Email: info@kidneycareuk.org

• Tel: 01420 541 424

• Facebook: www.facebook.com/kidneycareuk.org

• Instagram: @kidneycareuk

• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org

Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

  continue reading

127 episodes

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