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CAH PULSE

CARES Foundation

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CAH Pulse takes us on a journey to educate and bring attention to the challenges and triumphs of individuals living with Congenital Adrenal Hyperplasia (CAH). Each month patients, family members, medical professionals, researchers and caregivers share their stories, experiences and advice living with this challenging condition. Our hope is to further connect and champion this incredible community. *This podcast was recorded under a SAG-AFTRA Collective Bargaining Agreement*
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In this limited podcast series, we’ve brought together a series of conversations with experts from medical science to finance to help demystify investing in biotech, medtech and digital health (also known as the life sciences). This podcast has been brought to you by Life Sciences WA (Western Australia’s Life Sciences Industry Association) in collaboration with Talking HealthTech. It has been possible with funding support from the West Australian government through the New Industries Fund an ...
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In this episode of CAH Pulse, Stephanie and Dina speak with Lydia who was diagnosed with classic CAH at birth and although she received relatively good medical care from the start, she had little understanding about her condition. As a young adult, Lydia reveals that she foolishly decided to test the importance of taking her medication by eliminati…
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Marc wasn't formally diagnosed with salt wasting CAH until he was the age of 3. Up to that point, Marc's mother had spent his infant and pre-school years simply trying to prevent him from vomiting all the time. The only remedy that seemed to work was constant high doses of salt. Lots and lots of salt. Although she was percieved as a neurotic helico…
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Welcome to another astonishing CAH story. In this 6th episode of CAH Pulse, Stephanie and Dina learn the startling details of David and Brianne's CAH journey with their little girl who was born into an uncertain world. Not only was her birthday during the height of the COVID-19 pandemic, but their newborn was diagnosed with salt-wasting CAH in a ho…
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This one took a while. Not to edit or anything. Just took a while to get out. Lazy Cecil having sickness and life things. Anyway, Join Zyber Cecil and a newcomer Otawk as they talk about life, liberty, spreading liberty and democracy. Spreading it all of the face… of the galaxy. Yep. They are playing helldivers 2. Try not to use the meta. GNAPODCAS…
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"We can assume kids are gonna have questions; so create a relationship outside of CAH and the rest will follow". One of the poignant thoughts belonging to Lindsey, a warm hearted, outspoken young woman who shares her compelling story of growing up in the midwest as a typical girl with friends, playing sports, going to college and now at 30, working…
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I would like to introduce our Guest tonight. You may know him as Sam from Power Rangers Shattered Past, Reverse Flash from reverse flash origins, or maybe as Casey jones in the upcoming TMNT back in the shell, Colin K. Bass. This was an exciting episode as we talk to Colin about his trip through life to where he is now. It’s a great and uplifting s…
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These two again? That’s right. Cecil and Zyber hang out and get a bit deep on predatory practices by gaming companies. Colbus was supposed to join, but he got himself sick and bowed out. We will get him back on. It’s going to happen. Listen in two these two knuckleheads talk about Tarkov style games. Do you play? Join the discord or send us an emai…
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There are varying degrees of fear that parents experience while raising a child with CAH. These fears are often from the challenges of medicating their child properly to ensure their safety from a looming adrenal crisis. Understandably, anxiety and worry can be off the charts. But Cares Foundation wants you to feel rest assured, with the proper att…
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In this episode of the LSWA podcast, host Tracey Wilkinson interviews Fleta Solomon and Michael Winlo, two experts in the field of psychedelic-assisted therapy and medical cannabis. They discuss the potential of these treatments to revolutionise mental health care and provide a more holistic approach to patient care. The conversation begins with a …
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In this episode of the LSWA podcast, host Tracey Wilkinson sits down with Natalie Barber, the director of Clinical Operations at Chrysalis Advisory, and Professor Peter Richmond from the University of Western Australia. Natalie and Peter discuss their respective roles in the clinical trial space. Peter, a paediatrician, focuses on improving childre…
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In this episode of the Investor Meets Innovator Podcast, host Peter Birch sits down with Paul Anderson, the Managing Director of Orthocell. With over 25 years of experience in the medical space and a background in device development and regenerative medicine, Paul shares his insights on the life sciences industry and the journey of bringing innovat…
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Despite her difficult journey, Lesley, who grew up in a children's home in England, continues her explanation of how she moved to the states and got the help she needed after living most of her life not knowing she had CAH. This is the second of a 2 part series where Lesley wraps up her inspiring story of survival, connections and giving back.…
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In our first episode of the CA$H Beauty Podcast, we explore the ins-and-outs of researching beauty schools and joining the beauty industry. Beauty School Costs in the United States https://www.milady.com/career-of-possibilities/how-much-is-cosmetology-school Scholarships https://www.fastweb.com https://www.google.com/search?q=cosmetology+school+sch…
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In this episode of LSWA Investor Meets Innovator, Host Tracey Wilkinson talks with Simon Handford and Angela Fonceca about the challenges and complexities of tech transfer offices and taking research to commercialisation. They discuss the challenges of taking an innovation from academia and industry, the slow pace of negotiations, issues with fundi…
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When Lesley's mom was unable to care for her, she was given up to the courts of England. Join Stephanie and Dina as Lesley shares her lowest of lows, love and loss, misinformation and surgeries she was never told why she had. Living most of her life unknowingly with CAH, Lesley’s is a story of survival, victory, resilience, giving back and feeling …
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In this episode of the Investor Meets Innovator Podcast, host Peter Birch is joined by Ian Brown, Executive Chairman, and Intan Oldakowska, Chief Scientific Officer, of Rex Ortho. They discuss the journey of Rex Ortho, a platform technology company focused on orthopaedic fixations, particularly in proximal femoral fractures. Intan shares the backgr…
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In this episode of the Investor Meets Innovator Podcast, host Peter Birch speaks with Arjun Balaji, an analyst with a clinical background at Tenmile, a venture capital firm in Perth, Western Australia. Arjun shares his background in medicine and his journey into the world of biotech startups before transitioning to investing. In this episode Arjun …
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In this episode of the Investor Meets Innovator Podcast, host Peter Birch sits down with Dr Melissa McBurnie, Partner and Head of Impact at Brandon Capital. You will hear about how Brandon Capital approaches investing with impact in the life sciences and get some insights into the processes that they use when making an investment in this space. You…
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Connecting with someone who knows your fears and challenges is a crusade Dina Matos, Executive Director of Cares Foundation and Stephanie Erb, long time career actress, advocate and mom of a grown child with Congenital Adrenal Hyperplasia have been on together. They bring us this compelling first episode of CAH Pulse, a podcast born and bred to edu…
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In this episode of the Life Sciences WA Podcast, Dr Tara Speranza discusses her work as a healthcare and biotech analyst at Bell Potter Securities. Dr Speranza is part of a group of three analysts who cover the healthcare and biotech sector in Australia, focusing on companies listed on the ASX. She has a background in molecular biology and endocrin…
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Investment in life sciences in Western Australia is an area of great interest, as shown by the recent Life Sciences WA podcast episode featuring guests Greg Riebe and Steve Elias. Riebe is a company director and angel investor with decades of experience in commercialising emerging technologies and is currently a Commercialisation Facilitator for th…
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This episode features conversations with Paul Watt, Co-Founder and Executive Chair of Avicena Systems and Liddy McCall, Director of Yuuwa Ventures Investment in life sciences in Western Australia has grown significantly in recent years. This growth has been driven by several factors, including the state's strong research and development infrastruct…
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In this episode of the Life Sciences WA Podcast, Dr Bi Mian discusses his work with the Australian Medical Angels, a medical syndicate that focuses on investing in HealthTech start-ups in Australia. Dr Mian, who is a medical doctor and runs a multi-specialist medical centre in regional New South Wales, founded the group with his co-founder Dr Amand…
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In this podcast episode of the Life Sciences WA Podcast, the guest was Bronwyn LeGrice, CEO of ANDHealth. The focus of the discussion was on investing and commercialising digital health. LeGrice introduced herself and discussed her background, which included seven years in venture capital and over 20 years in the commercialisation of medical techno…
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Dr Alma Fulurija Dr Alma Fulurija is the Head of the Strep A Vaccines team at Telephone Kids Institute. In this interview, she discussed the process of vaccine development, which is a long, expensive, and high-risk process, but has the potential for high rewards if successful. The Covid-19 pandemic has shown that vaccine development can be done fas…
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Glenn Butcher is the CEO of FundWA, a venture capital firm focused on investing in technology-enabled innovation businesses in Western Australia. In this interview, he discussed the potential for growth and success in this area, highlighting the state's strong track record in life sciences research and the potential for commercialising this researc…
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They are at it again. Cecil had one job. Watch the room and talk about it with Erin and Shinzu. That was it. Did he? Yes. Did he also infect the whole podcast with more BatPussy talk? Why don’t you take a guess. Derailed is a term used for train wrecks. What’s worse than derailed? Inner-dimensional shift into a mountain? Yeah, this one was an inner…
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