In this episode, Becky chats with HTC nurse practitioner and camp supervisor, Tracey Gaslin, about getting the most from an HTC visit, Tracey’s experience as a health care provider in clinics and camps, and the impact that camp has on the hemophilia community.

Becky sits down with Dr Patrick Fogarty, a medical affairs colleague from Pfizer, to discuss advances in modern hemophilia treatment. Together, they talk about how far hemophilia treatment has come, the challenges in making advances in treatment, and what may be coming down the line as hemophilia management continues to evolve. The 2 also chat abou…

In this episode, hematologist Dr Robert Sidonio visits with Becky to talk about a topic of mutual interest: women with bleeding disorders. The pair discuss defining different kinds of testing, comprehensive care for women in particular, and much more.

Pat Torrey from GutMonkey chats with Becky about adventure education, the types of programs available, the lessons he has helped impart on attendees, and what the hemophilia community has taught him in this episode. Becky also contributes the changes that she has seen in the community from the adventure programs. Disclosure: Pfizer sponsors GutMonk…

Pediatric hematologist Dr Stacy Croteau chats with Becky about hemophilia care in early childhood, helping caregivers and their children with hemophilia transition to independence, and how pediatric care for hemophilia has evolved and continues to do so.

Becky chats with former HTC social worker Ed Kuebler about the importance of mental and emotional health. The pair talk about how hemophilia has changed over the years that Ed has been in the community, how care changes as people with hemophilia move through life stages, and what it means to “share your burden.”…

Physical therapist, Bruno Steiner, is Becky’s guest, and he shares his experience and expertise in this episode. Bruno chats about using musculoskeletal ultrasound (MSKUS) and other techniques as part of a physical therapy program for people with hemophilia, and Becky contributes with insights from her daughter’s experience with MSKUS.…

Social Worker Kathaleen Schnur visits with Becky to talk about the role she plays at her Hemophilia Treatment Center (HTC). Kathaleen describes the ways social workers can help families with hemophilia navigate many different aspects of life with a bleeding condition.

Pfizer employee Dr. Terry Anderson stops by to talk about her research in hemophilia around pain and depression, and shares some of the findings in the recent studies to which she contributed. Becky and Dr. Anderson discuss the perception and management of pain and the role of caregivers in supporting people with hemophilia.…

Guest host Matt sits down with Jill, a caregiver, and Paul and Shelby, who have hemophilia B, to talk about events in the hemophilia community. Recorded on site at The Coalition for Hemophilia B Symposium, the group discusses how their involvement in the community has evolved over the years and what they would recommend for new families who are loo…

Our usual host, Becky, passes the mic to her daughter Elizabeth, a person with severe hemophilia, to guest host this episode. Elizabeth, who is studying to be a music therapist, chats with Spencer, a musician and teacher who also has severe hemophilia, about how music can make a difference in the lives of people with hemophilia. The pair talk about…

Matt, who has appeared on the show in the past to discuss his son’s experiences with hemophilia B, steps in as guest host in this episode to chat with Elizabeth and Josh. Elizabeth is a college senior and Josh is a young adult who has completed his degree. The trio talk about scholarships, infusing at the dorm, and what it was like to live without …

Guest hosts Wayne and Chad, 2 older community members, sit down with Rocky, age 36, to discuss intergenerational connection in the hemophilia B community. The men talk about how things have evolved over the years, whom in the community they admire, and their hopes for future generations.

Rocky and Brittany have been together just over 5 years and are recently married. In this episode, Becky chats with them about navigating a relationship as it relates to Rocky’s hemophilia B. They chat about discussing hemophilia with a potential partner, the impact of being a hemophilia spouse, how hemophilia may influence family planning, and mor…

Elizabeth and Kirsten are both women diagnosed with hemophilia B. In this episode, they chat with host Becky about their experiences growing up in a community where females with hemophilia were the minority. They also discuss their triumphs and challenges as women with bleeding disorders and share their hopes for future generations of females with …

The second installment of “hemophilia hacks,” in which host Becky and Matt, her guest, talk through a list of tips and tricks submitted by members of the hemophilia community that, for some, might possibly make managing hemophilia just a little bit simpler. In this episode, they discuss general living with hemophilia, first aid, and emergency hacks…

Season 2’s premiere episode is the first of a 2-part series in which host Becky and her guest, Matt, discuss “hemophilia hacks” that were submitted by members of the hemophilia community. Like “life hacks,” these tips and tricks, for some, might possibly make managing hemophilia just a little bit simpler. In this episode, the pair talk about tips r…

Host Becky recounts the history of the Pfizer Hemophilia B2B Advisory Board with its chair, Wayne, and Bridget, who helps to develop the programs. They discuss the resources that the B2B Advisory Board has developed, how the board evolves to address changes, and how the B2B Advisory Board is working to create connections in the hemophilia B communi…

Host Becky talks with Wayne, who has hemophilia, about some of the emotions he experiences as a result of his condition. Wayne chats about his journey and successes he has experienced in managing his emotions. He also discusses how feeling validated by others in the community can be meaningful.

Host Becky chats with Wayne, a 56-year-old man with hemophilia, about his experiences with dating and marriage as they relate to his condition. Wayne discusses his first marriage and how he and his wife learned about his hemophilia together. Wayne discusses his experiences in his second marriage and how he had to educate his wife about hemophilia. …

Host Becky talks with Melissa, the mother of a son with hemophilia B, about how to optimize time spent during an HTC visit. Melissa details the different specialists who are often available for consultation, how her son’s visits are structured, and how she participates with his care team. Melissa also talks about mentally preparing for a long day o…

Host Becky talks with Matt, the father of a son with hemophilia B, about his family’s experiences with the emergency room. Matt talks about the importance of being prepared to deal with unexpected emergencies and gives insight on what has helped his family to have more successful ER visits. Becky and Matt also discuss traveling as it relates to hem…

Host Becky talks with Melissa; both women have a child with hemophilia, and in this episode they share their experiences. They talk about some of their most important lessons from having raised children with hemophilia and how they learned to help advocate for, and teach advocacy to, their kids.

Host Becky talks with Matt and Melissa, both of whom have a son with hemophilia B who has learned to self-infuse. The trio talk about their experiences teaching self-infusion, how camp can play a part in that, and what it means to transition control to their children when their children begin to care for hemophilia on their own.…

Host Becky talks with Paul, a person with hemophilia B, and Matt, who has a son with hemophilia B, about sharing a hemophilia diagnosis with new people at school, in social situations, in professional settings, and more. They talk about ways they have found success in discussing hemophilia with others.…

Host Becky talks with Paul, a person with hemophilia B, about what it was like growing up with his brother, who does not have hemophilia, and his two sisters, who are symptomatic carriers. Paul chats about how his parents helped manage hemophilia as part of their family and worked to keep balance in their lives. He also reflects on how hemophilia B…

Host Becky chats with Wayne and Paul, members of the hemophilia B community, about the different advocacy groups in existence and how they can help people and families with hemophilia B. They discuss the benefits of keeping current with patient organizations and how to tap into valuable resources. The trio also recounts how each got involved in pat…