Come learn about the independent patient advocacy world and how the state of healthcare is changing in our country.
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Have you or your loved one been affected by a preventable medical error? Have you experienced harm or been dismissed by the healthcare system? Do you want your voice to be heard and matter in all healthcare settings? Do you wonder when your voice will matter and bring about change? Then please join me, Krista Hughes, your host and board-certified patient advocate. If you are a patient or caregiver, this podcast is for you. It is where your voice truly matters. Bi-weekly on Tuesday, you will ...
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Every episode of Real Talk with NMAC provides people of color, allies, and advocates in the community — regardless of gender, sexual orientation, or gender identity — who are at greater risk of HIV/AIDS with a greater understanding of the role racial inequities play in the epidemic, and how to address them. NMAC (The National Minority AIDS Council) leads with race to normalize discussion about race within the HIV movement, bend the curve of new HIV diagnoses, and retain people of color livin ...
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Medical Gaslighting....Are you tired of being dismissed?
11:06
11:06
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What to expect in this episode: In this episode, I will discuss Medical Gaslighting. Are you tired of being dismissed by your healthcare team? And as always, I will answer the question, "What could you do to make your voice matter?" Resources Mentioned in this Episode: How to Spot Medical Gaslighting and What to Do About It Medical Gaslighting What…
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Diagnostic Safety - A Public Health Crisis
13:36
13:36
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What to expect in this episode: What to expect in this episode: In this episode, I will discuss diagnostic safety; a public health crisis! And as always, I will answer the question, "What could you do to make your voice matter?" Resources Mentioned in this Episode: What is Diagnostic Error? - Society to Improve Diagnosis in Medicine Defining Diagno…
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How To Keep Your Loved One's Safe In A Skilled Nursing Facility
24:16
24:16
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24:16
What to expect in this episode: What to expect in this episode: In this episode, I will discuss everything you need to know about skilled nursing facilities. This is a huge problem that I deal with all the time, so I want to make sure you are informed on how to find the right facility for your loved one and know your rights when you are there as a …
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From Surviving Cancer (twice) to Building Coalitions featuring Rachel Westlake
40:34
40:34
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Rachel Westlake was a teenage kid with long, curly, red hair when she was diagnosed with large cell lymphoma at the age of 15. During more than a year of experimental treatment protocols, Rachel began to understand her own mortality, something none of her peers had any concerns about whatsoever. She beat the cancer and learned the importance of sel…
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From Marketing Executive to Patient Safety Leader featuring Karen Curtiss
28:13
28:13
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28:13
Listen in as we sit down with Karen Curtiss, a Board-Certified Patient Advocate whose journey into patient advocacy started with her quest for a lung transplant to save her dad's life. Karen was working in advertising and marketing at the time, but she dropped everything to advocate for her dad who was near death from pulmonary fibrosis and beyond …
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Simplifying the Complex Healthcare System featuring Nan Wetherhorn
30:01
30:01
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On this episode, we talk with Nan Wetherhorn, a South Florida Independent Patient Advocate and nurse since 1976, who learned the importance of advocacy during her mom’s battle with cancer. Nan’s mom was a pharmacist and was more than capable of understanding her diagnosis and her treatment options. But patients can rarely effectively advocate for t…
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This week, we’re joined by Rajitha Bommakanti, an Independent Patient Advocate and lifestyle coach. Raji was a practicing nurse for more than 30 years, and she now combines her clinical skills with holistic coaching to help change habits and achieve lifestyle goals. During our conversation, Rajitha delves into her utilization of evidence-based prac…
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Behind the Bills: A Crusade For Clarity and Simplicity
29:05
29:05
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In this episode of Patient Advocacy Now, we speak with Nicole Broadhurst, the founder of Tennessee Health Advocates. Nicole's practice is focused on medical billing, and she provides her clients with the tools needed to decode their healthcare charges, empowering them to take charge of their medical expenses and enhance their quality of life. Join …
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What to expect in this episode: Accountability Resources Mentioned in this Episode: Website - www.hughesadvocacy.com Instagram - @hughes.advocacy LinkedIn - Hughes Advocacy Facebook - Hughes Advocacy Health care absent in 2024. If voters care, why don't Biden and Trump? Topics YOU would be interested in learning more about - Please fill out the for…
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Both Sides of the Stethoscope featuring Alan Feren MD, FACS
45:28
45:28
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Dr. Alan Feren is a former MD who is now practicing as an Independent Patient Advocate. In this episode, Dr. Feren shares his long and impressive journey of perseverance, integrity, and advocacy. As a general surgeon, Dr. Feren was always an advocate for his patients. He took on the tough cases that nobody else wanted to touch. His approach from da…
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When Friends Become Advocates: It’s Working in Omaha
29:46
29:46
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For so many independent patient advocates, it can be a scary proposition to go it alone. In this episode, we hear from two good friends from Omaha, Nebraska who joined forces and combined their unique individual skills to create a rewarding, impactful, and fun patient advocacy practice. Nicky Wik has a long history working on the administrative sid…
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What to expect in this episode: Episode 6: What to expect in this episode: In this episode, I will discuss being misdiagnosed with cancer and how it was all preventable. As always, I will answer the question, "What would you do to make your voice matter?" Resources Mentioned in this Episode: Topics YOU would be interested in learning more about - P…
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Where Pharmacy Meets Health featuring Claudia Cometa
26:17
26:17
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Claudia is a clinical pharmacist by training and patient advocate by passion. After over a decade of working inside the healthcare system, she faced her father's cancer diagnosis and later passing. This experience provided her with a deeper understanding of how difficult it is to navigate our modern healthcare system. She decided to do for others w…
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What to expect in this episode: Episode 5 - What to expect in this episode: In this episode, I will discuss what sepsis is, symptoms to look for, who is at risk, diagnosis, and treatment. As always, I will answer the question, "What would you do to make your voice matter?" Resources Mentioned in this Episode: Sepsis and... | Sepsis Alliance - Sepsi…
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Born Into Pharmacy: A Prescription For Advocacy featuring Nancy A. Taylor
36:25
36:25
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In this episode, Dr. Nancy Taylor discusses her journey into patient advocacy, stemming from her background as a pharmacist with a passion for personalized healthcare. Dr. Taylor emphasizes the importance of pharmacists as patient advocates and highlights her transition from behind the pharmacy counter to independent patient advocacy, driven by a d…
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Healthcare or Optimal Healthcare? There's a Difference featuring Sandra L. Washington
33:18
33:18
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In this episode of the Patient Advocacy Now podcast, we sit down with Sandra L. Washington, founder of the C.H.L.M.S. Medi-Helpz Foundation, an organization committed to patient advocacy and empowerment. Sandra L., with a background in public policy and healthcare administration, shares her journey and the impetus behind her advocacy work. Motivate…
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The Basics Of Healthcare - Part 2, What Is A Diagnostic Error?
10:41
10:41
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What to expect in this episode: This is part 2 of a 2-part series that I am doing to educate, empower, and inform you as the patient. As I stated in Part 1, this may be boring. But knowing this foundational information is instrumental in saving your life. In this episode, I will focus on diagnostic errors. They are on the rise at an alarming rate. …
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The Basics Of Healthcare - Part 1, What is Patient Safety?
10:38
10:38
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What to expect in this episode: This episode is part 1 of a 2-part series discussing the "basics" of health care. It might seem boring, but it is foundational. Why? Knowledge is power. You don't know what you don't know. In this episode, I will explain what a preventable medical error is. What is a "never" event? And what is patient safety? I will …
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What Is A Patient Advocate? Do I Need One?
12:30
12:30
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What to expect in this episode: I will discuss what a patient advocate is. And do you need one? Most people have never heard of a patient advocate. Or if they have, do not know what they do or what that means for you, the patient. In this episode, I will discuss the different kinds of advocates, what we do, and ask you questions to know if you need…
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What to expect in this episode: I will share how I was personally affected by a preventable medical error, which led to me starting my company, Hughes Advocacy, and becoming a Board-Certified Patient Advocate. Resources Mentioned in this Episode: Website - www.hughesadvocacy.com Instagram - @hughes.advocacy LinkedIn - Hughes Advocacy Facebook - Hug…
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Welcome to The Patient's Voice, Does It Matter? I am thrilled you are here! This is a place where your voice will always matter to me! I am excited to welcome you along. My hope is that you will learn to be a proactive patient in preventing a medical error from happening to you or your loved one in any healthcare setting. Resources For This Episode…
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In this short preview we share some snippets of the exciting interviews we have in store for Season 2 of the Patient Advocacy Now PodcastBy Greater National Advocates
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In this episode we take a look back at some of our most memorable moments from our inaugural season of the podcast and even get a bit of a sneak peak of what's to come in season 2.By Greater National Advocates
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Ilene Corina: A “Take-Charge” Leader and the Pulse of Patient Safety
40:24
40:24
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In this Season 1 finale, we speak with Ilene Corina, a patient advocate with over 25 years of experience. Ilene shares her personal journey, which began with the tragic loss of her three-year-old son after a tonsillectomy due to medical errors. This heartbreaking experience motivated her to become an advocate for patient safety. She also highlights…
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From Lyme Disease To Root Cause Advocacy featuring Sylvia Reisman
31:31
31:31
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In this episode, we talk with Sylvia Reisman, whose passion for patient advocacy began in 1998 when she was researching treatment options for her father who was a five year survivor of stage III pancreatic cancer. In 2006, she became mysteriously ill and ran from doctor to doctor, consulting with a long list of specialists in multiple states befor…
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Caring For The Displaced: Advocacy For Refugee Communities featuring Emily Bernstein
23:48
23:48
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In this podcast episode, we sit down with Emily Bernstein, who shares her journey into patient advocacy. Emily's advocacy work began when her mother was diagnosed with brain cancer in 2019. Her mother's challenging path to diagnosis and treatment inspired Emily to get involved in helping others navigate the complex healthcare system. Emily's experi…
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There’s a Tiger Behind That Smile: How Cathy Bond Became an Accidental Advocate featuring Cathy Bond
23:26
23:26
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By Greater National Advocates
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The Road to Advocacy: From RV Parks to Healthcare Reform featuring Terry McLellan
45:26
45:26
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45:26
In this episode of the Patient Advocacy Now Podcast, Terry McLellan, a seasoned patient advocate, shares her journey from nursing to becoming an independent patient advocate. Her transition was fueled by her experiences as a travel home health nurse, where she identified a significant need for patient advocacy, particularly among older individuals …
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From Health Policy to Bedside Nursing and Beyond featuring Adriane Carrier
35:16
35:16
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Adriane Carrier is an advocate for social justice and health equality with a diverse background in healthcare. In this episode, we discuss her journey from activism during the HIV AIDS crisis in the 1980s to working as a registered nurse and eventually pivoting to becoming a private, independent patient advocate. Adriane highlights her experiences …
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From Physician Associate to Amputee Advocate an Inspiring Odyssey featuring Tina Hurley
30:54
30:54
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In this podcast episode, we sit down with Tina Hurley, a board-certified physician associate with extensive experience in vascular surgery, acute care medicine, and wound care. Tina’s medical career involved treating diabetic patients and performing amputations, until she herself became an amputee. This exciting interview reveals Tina’s journey fro…
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TikTok Health Literacy: A Multi-Faceted Approach to Health Education and Advocacy featuring Morgan Kelly
29:56
29:56
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Meet Morgan Kelley, a patient advocate based in Chicago who uses social media to educate people about healthcare and health insurance issues. Morgan discusses how she leverages platforms like TikTok to reach a wide audience and provide education on health insurance terminology and how health insurance works in practice. She shares personal stories …
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From Silicon Valley to Patient Advocacy: Navigating Transgender Health Equity featuring Molly Crowther
30:16
30:16
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In this conversation with Molly Crowther, a board-certified independent patient advocate based in Berkeley, California, we trace Molly’s unconventional background in the software industry, where she worked on large systems, into the field of independent patient advocacy. Molly goes over her unique journey from the software industry, explaining her …
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Debby Deutsch and her Journey From Hospital Chaplain to Patient Advocate!
32:06
32:06
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Debby Deutsch is a Board Certified Patient Advocate who entered healthcare as a hospital chaplain before she became a devoted and passionate hospice worker. As is often the case for Independent Patient Advocates, personal and professional experiences collided, and Debby started to explore her future. She stumbled upon the Center for Patient Partner…
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How Spiritual Enlightenment Led to Independent Patient Advocacy, Featuring Deidre Kindred
33:35
33:35
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This highly personal conversation reveals how Deidre was inspired by GOD to help others understand their personal medical journeys and how to collaborate with their healthcare team. That spiritual inspiration led Deidra to begin a patient advocacy business, Your Healthcare Nurse Advocates. Her team of specialty nurses are all certified patient advo…
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A Candid Discussion With Jeff Byars, Lifelong First Responder and Award-Winning Independent Patient Advocate
35:52
35:52
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This is the story of a rural EMT (Emergency Medical Technician) who made the career decision to become an Independent Patient Advocate after his young daughter’s misdiagnosis. Jeff Byars is a Board Certified Patient Advocate (BCPA) in Cullman, Alabama. Like so many professional advocates, Jeff knew the healthcare system from both sides. Not only wa…
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From Family Caregiver to Advocacy Champion: Avrom Fox is a Hero to Patients and Loved Ones
37:53
37:53
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A social worker and nonprofit agency Director for many years, Avrom Fox was inspired to enter into patient advocacy because of his daughter, who was born with special needs. He advocated for her fiercely for 44 years, since the day she was born, and he fought insurance companies to secure hundreds of thousands of dollars in denied claims. Today, sh…
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Meet an Engaging and Inspiring Advocacy Role Model
30:43
30:43
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Rebeka Acosta is the mother of two teenagers born with congenital illnesses. Having worked in hospital systems and for a large insurance company, while caring for the complex medical needs of her family, she took took the leap into Independent Patient Advocacy. Today, she’s on a mission to prepare generations of patients and families to be informed…
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Advocacy Visionary & Trailblazer Karen Mercereau
36:10
36:10
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After decades as an ICU nurse where she bore witness to the failings of the healthcare system, Karen Mercereau, RN, iRNPA made a defining decision that laid the groundwork for the field of Independent Patient Advocacy. She left clinical nursing to focus her attention on developing a new practice model designed to safely guide patients through the c…
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Talking about sexuality often comes with a stigma, and people often feel they can’t talk about it freely for fear of being shamed. But in this episode, we discuss sexuality in an open, safe space to start reducing the stigma around it. Lauren Miller, Health Equity Program Coordinator at NMAC, comes live from the Biomedical Summit in Las Vegas and t…
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Misinformation and fear drive HIV stigma; ending stigma is the only way to end the HIV epidemic. Dernell Green talks with Terrell Parker about the importance of understanding and combating HIV stigma and how disclosure can work toward empathy, support, and education for those living with HIV. Terrell shares his own experience of being diagnosed wit…
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Poniéndole fin al Brote de Viruela del Mono
1:27:45
1:27:45
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La Viruela del Mono(MPV) se ha convertido en una epidemia y una crisis sin precedente. Aunque nuestra comunidad pasó a la acción y produjo innovaciones revolucionarias para enfrentar el brote, el trabajo no ha acabado. Todavía tenemos disparidades en el acceso a las vacunas y tratamiento, y ahora es más importante que siempre, a seguir trabajando j…
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Monkeypox (MPV) has become an unprecedented epidemic and a crisis. While our community has jumped into action and produced groundbreaking innovations to confront the outbreak, the work is not done. We still have disparities in accessing vaccines and treatment, and it’s more important than ever that we continue to work together to end this outbreak.…
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Standing with Native Hawaiians & Pacific Islanders Living with HIV
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46:45
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In Native Hawaiian and Pacific Islander communities, there are amazing people who have dedicated their lives to the people of these communities living with HIV. In this episode, Peter Tuiolosega Silva of Kumukahi Health + Wellness on the island of Hawaii talks with advocates David Utuone and Carolyn Kualii, or Aunty Carolyn. Together, they discuss …
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We can only stop HIV by working together. In today’s episode, we come live from the Biomedical HIV Prevention Summit to hear from leaders all over the nation about how they’re working in their communities to stop the spread of HIV and end HIV stigma. Together, we discuss how each of these leaders chose to work for the HIV/AIDS community, how we can…
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How We Can Educate and Empower Youth with HIV/AIDS
23:05
23:05
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Among the people who are diagnosed with HIV, many are young people. In this episode, host Gabriella Spencer talks with Marshun Redmond of NMAC to discuss how we can take steps towards understanding the problems with HIV/AIDS among youth, and celebrate the effort young people are making to fight the battle against HIV/AIDS. Marshun Redmond went thro…
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Women and girls often face the highest level of stigma of people living with HIV. In this episode, host Gabriella Spencer gathers with a panel to discuss how we can better support and advocate for women and girls living with HIV. Gabriella and guests honor National Women’s and Girls HIV/AIDS Awareness Day, and discuss how an awareness day helps to …
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HIV related stigma negatively impacts the fight to end the HIV epidemic in the US. In this episode, host Terrell Parker brings together a panel of guests to discuss ending HIV stigma, specifically in the Black community, so we can end the HIV epidemic in the US. Terrell and guests honor National Black HIV/AIDS Awareness Day, a day that provides an …
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It’s a new year and we have big plans to end the HIV Epidemic. In this episode, all RTWNMAC hosts sit down together and each share what they will be doing in 2022 to end the epidemic. Damián shares how NMAC’s Treatment Division is working to increase health equity and make HIV treatment accessible. Lauren shares how important leadership is to endin…
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Remembering Victims of Transgender Violence
20:43
20:43
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Today, we commemorate Transgender Day of Remembrance by honoring the victims of transgender violence in 2021. To honor their lives, we address the increasing epidemic of violence against the transgender and gender non-conforming community. NMAC’s Lauren Miller sits down with Tori Cooper, Director of Community Engagement for the Transgender Justice …
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Día Nacional Latinx Para la Concientización del SIDA/National Latinx AIDS Awareness Day
23:19
23:19
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En este episodio centrado en el Día Nacional Latinx para la Concientización sobre el SIDA (#NLAAD), el presentador Damián Cabrera tendrá una conversación con el activista Alexi Díaz sobre la experiencia del VIH alrededor de la latinidad. Ellos estarán hablando sobre los efectos dispares de la epidemia del VIH en poblaciones de hombres latinos/hispa…
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