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Life With Dementia is an interview-style podcast sharing relevant research, personal stories, and practical tips for living well with dementia. We talk to people all over the world: scientists, researchers, practitioners, family care partners, industry professionals, and people living with dementia to hear firsthand about solutions they’ve discovered and what we can do to improve resources and support for people affected by dementia.
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World Health Organization is taking on the mountain of dementia in global action. Guest Kavitha Kolappa discusses her work on a knowledge exchange platform with the World Health Organization. This project is encouraging international commitment to increasing attention and resources for dementia around the world. We don’t have to reinvent the wheel.…
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The truth is people can live well with Alzheimer’s. That's the message Arthena Caston and Jay Reinstein want you to hear. Listen to the voice of lived experience as two outspoken Alzheimer advocates share their thoughts, fears, and observations about living with a progressive illness. Life With Dementia is a proud member of the Alberta Podcast Netw…
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What could a supportive work environment look like for workers with dementia? Top-notch researcher Josephine McMurray is helping employers look differently at mild cognitive impairment and early-onset dementia, in the workplace. Life With Dementia is a proud member of the Alberta Podcast Network. "Locally grown. Community Supported."…
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My Father’s Diagnosis of Dementia Opened My Eyes
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Lisa Poole, founder of Dementia Connections magazine, shares her personal journey to awareness of a fragmented health system and the importance of aligning expectations with true understanding.By Johnna Lowther
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Maybe the Beatles had it right after all. Can creating dementia friendly communities and age friendly communities really be as simple as giving love? Hear from Jennifer Mallamo and the wise words she shares around treating others with love, patience, dignity and respect. Regardless if it's your family, your neighbor or a collaborative partner on a …
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How Can Artificial Intelligence, Smart Phones and Google Help Dementia?
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Combining the voice of dementia into technology development can offer huge potential for mobile health giants. Hear from Dr. Joon Lee at the Cumming School of Medicine, a national leader in brain and mental health research, talk about the important benefits technology and mobile devices can have for people living with dementia, their families, and …
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Hear from research duo, Dr. Jennifer Watt and Dr. Zahra Goodarzi as they share their story about comparing hundreds of research cases to create “best level evidence” and help their geriatric patients, families, and informal caregivers make the best decisions to improve quality of life. Spoiler alert: and it’s not always a traditional medical treatm…
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Find out what the Dementia Association for Awareness and Support has been up to - and hear about a new podcast series we are embarking on that will include the voice of a new co-host! This special fall/winter series will highlight the expertise that only lived-experience has. Listeners will get to hear the living, breathing experience of discovery …
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24. Pulling Creative Spirit Into Long-Term Care
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Long-term care environments are often viewed as institutional settings. Find out what we can do to change that and support environments that are full of creative spirit. Guest: Dr. Habib Chaudhury. Life With Dementia is a proud member of the Alberta Podcast Network. "Locally grown. Community supported."…
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23. Has COVID-19 been ALL gloom and doom?
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No one has gone untouched by the global crisis of COVID-19; but what has come out of this that might actually be better? That’s the topic we are hitting today with Cindy Bond of the Alzheimer's Society in Calgary, Alberta. We'll look at how the COVID-19 pandemic has affected families, caregivers and those living with dementia. Life With Dementia is…
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If you’re someone who worries about getting Alzheimer’s or dementia someday, you’ll want to hear how science, and specifically the work of Dr. Rob Sutherland, is proving that we can fight back against genetic predispositions of dementia. Life With Dementia is a proud member of the Alberta Podcast Network. "Locally grown. Community supported."…
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Knowing that you have a genetic predisposition to Alzheimer’s can leave you feeling like you’re constantly in the shadow of impending bad news. Hear a deeply personal story from my mother, as she talks through some of the fear and anxiety she lives with daily surrounding a family history of Alzheimer's and discover the things that guide her though.…
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20. Keeping Brains and Bodies Active During COVID-19
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The current health crisis and subsequent social isolation has placed additional stress upon family and friends who are supporting and/or caring for persons living with dementia at home in their chosen community. Our guest is Teri Kennedy-Flynn, who shares creative ways to engage in an at-home setting; technology solutions that can help caregivers; …
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It is stigma that kills hope in a dementia diagnosis. Roger Marple has been living with Alzheimer’s disease for 5 years. Yet he refuses to shy away from this diagnosis and instead, is claiming its existence as an important part of his life. His goal is to challenge society’s view that Alzheimer’s disease is an ugly diagnosis. Learning more and find…
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This episode marks the official one year anniversary of the Life With Dementia podcast. The podcast community is the perfect avenue for addressing the fear, pain and apprehension so many of us have in experiencing dementia. I believe some of the interventions and insights our guests shared over the last year can be and will be life changing for our…
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Hear about the latest adventure of the Life With Dementia podcast - teaming up with Tusk, the Caregiver Navigation Tool! https://www.dementiaassociation.caBy Johnna Lowther
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A courageous daughter opens up about the family experience upon her father receiving a diagnosis of early-onset dementia, and how the “ripple effect” of speaking out can help make a difference in the lives of others. Brande Terashita tells her story of love, loss, and yes, even victorious JOY in sharing life with her father with dementia. Life with…
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If you know what it’s like to feel exasperated or ignored in your role as a family caregiver, you’ll want to catch this episode and chime in on the dialogue surrounding what’s being coined as caregiver-centered care. Dr. Jasneet Parmar with Covenant Health Network of Excellence is ready to enlighten us all on what we can do better to support family…
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14. The Human Nature of Care with Teepa Snow
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Being a part of someone's life who is living with dementia is hard. It completely changes the relationship on both sides and introduces challenges to the very basics of everyday living. Yet, sometimes we forget that the act of caring is an integral part of who we are as human beings and the person living with dementia also has a part in this. Join …
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“Dementia is not a physical disease, but a cognitive one.” These are the clear words of Jim Mann, living with dementia and desperately trying to shatter the stereotypes that surround it. If we really want to help someone living with dementia, we have to understand that having a good quality of life is quite possible. A little bit of encouragement g…
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Bernie Travis is a woman on a mission: to spread hope surrounding the dementia diagnosis. Today on our show we talk to Bernie as she shares the personal story that led her to start the Early Onset Dementia Alberta Foundation and host an annual conference. Get the inside scoop on keynote speakers and discover what other educational opportunities can…
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Bernie Travis is a woman on a mission: to spread hope surrounding the dementia diagnosis. Today on our show we talk to Bernie as she shares the personal story that led her to start the Early Onset Dementia Alberta Foundation and host an annual conference. Get the inside scoop on keynote speakers and discover what other educational opportunities can…
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Finding the right resources at the right time is a crucial need for people affected by a chronic illness. But what if there was a tool that helped you do exactly that? Find out about a technology platform aiming to intelligently reduce stress for individuals who are caring for or supporting persons living with dementia. Life With Dementia is the so…
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10. Creative Aging Pt 2: Elevating the Artist with Dementia
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Just like art, dementia has the power to be transformative. Dr. Gene Cohen taught the world that just because we age doesn’t mean we lose our ability to create and even a brain affected by Alzheimer’s still has the capacity to learn, use the imagination, and engage in new tasks. This is part 2 of a discussion with Deb Campbell as she shares specifi…
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09. Creative Aging Pt 1: Got Dementia? Go Dancing!
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It’s not often that we receive a message from doctors upon the diagnosis of Alzheimer’s or dementia to go dancing or paint a picture. But what if it was? Doctors around the world are beginning to recognize the health benefits of engaging in arts activities as a treatment for all sorts of illnesses. Today, we talk about the movement of creative agin…
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Wandering and dementia is stigmatized due to our misunderstanding of the risks. Just because you have dementia doesn't mean you're at risk of getting lost. We chat with Noelannah Neubauer and Dr. Lili Liu from the University of Alberta, about guidelines they've created to help those living with dementia and community partners plan for safe decision…
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There’s something to be said for having help at your fingertips. How many times have we experienced frustration with a problem and we just want to be able to pick up the phone and call someone? Accessing good dementia advice for family caregivers is an ever-present need and on today’s episode, we highlight an excellent resource: The Dementia Advice…
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Being a family caregiver or care partner can be quite physically, emotionally, and financially demanding of your life and there are many people who are all alone in this role with no family around to help and little to none additional health supports on board. Hear about how adult day-support programs are stepping up to offer caregiver’s a much-nee…
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05. Does Your Lifestyle Impact Your Risk of Dementia?
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Do your lifestyle choices put you at risk for Alzheimer’s? We’re talking today with Dr. Jeffrey Burns, a lead researcher, and co-director at the KU Alzheimer’s Disease Center, where they're investigating the use of lifestyle interventions as a preventative measure in the fight against Alzheimer's. Can things like diet, exercise, and quality of slee…
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04. What It’s Really Like to Live With Dementia:
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The stress any health crisis puts on a relationship is no laughing matter - but when it’s memory loss your partner is dealing with, sometimes maintaining a sense of humor is all you can do. Our last episode was with Joe Dolan who is personally battling early-stage dementia. This is Pt. 2 with Joe’s spouse, Maureen Barnes, who shares how she has com…
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03. What It’s Really Like to Live With Dementia
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Living with dementia is challenging. But if you’re as tenacious as Joe Dolan, you won’t let that keep you down. Hear firsthand as he reflects on family history; how dementia has affected his relationship; and why he believes maintaining a sense of purpose is the most important aspect of living with dementia. For more info visit: www.lifewithdementi…
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It’s not easy facing life’s challenges alone, and that leaves us all yearning for support and understanding. Nowadays, we have a world of “virtual support” right at our fingertips. Today, we talk to Christine Prysunka of the Alzheimer’s Society, on their latest adventure in offering education, awareness, and support through an online community. See…
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01. Dementia Prevention: The Role of Community
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Worldwide there are 50 million people living with dementia, which means not a day goes by where we don’t hear or see something about Alzheimer’s and dementia. But where do you turn? And what role does your local community play? Beth Mansell, with the SAGE Senior’s Association in Edmonton, shares thoughts on the role of community in this process. Fi…
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Are you curious about how to help people living with dementia? Do you want to see positive changes in care and services? Maybe you’re a friend, family member, professional caregiver or someone living with dementia and looking for more answers and resources to cope with your own frustrations on this journey? Then this podcast is for YOU! Check out o…
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