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Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.
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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. Follow Champions/External links: linktr.ee/championsforhd Website Follow Shelby: https://www.shelbylentz.com/ linktr.ee/shelby_lentz In their discussi…
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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how s…
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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or e…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the impo…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 ho…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Samantha Peterson joins me to share living her life gene positive with Huntington's Disease: the highs and the lows. She shares how she fights everyday not only for her…
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Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Brave Breanna Dutch: https://www.huntington.nl/webwinkel/voor-kinderen.html Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.face…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Jessica who shares her tramautic childhood living with her mother, who suffered from HD, and how it effects her currently. She also shares her life…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Domonique who shares her HD testimony. Her mother battled HD and su*cidal ideations. Domonique has tested positive for the disease and shares her l…
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Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_len…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Kya Rowlins. She shares her journey with HD in her childhood through her mother's battle with the disease, and her life being at-risk. Listen to Ky…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 ho…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke for the second time. She was our first podcast guest, a Champ…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today we are deep diving into potential benefits of getting tested for Huntington's Disease. This question was left as a comment on our social media post today and it g…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Evonne. She is 32 years old and living with Huntington’s. She works as the Director of Youth and Childhood Ministries at a Catholic school in India…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Welcome back to the show. I first want to apologize for the delay in episodes. I ended up coming down with COVID a few weeks ago and I had it pretty badly. Thankfully I…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Megan returns to share her PREGNANCY from IVF! This means her baby will be HD FREE! What a blessing!! Follow Champions: https://www.championsforhd.org/ https://www.inst…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Loren joins me to share her father's journey of life before HD, after his initial diagnosis, and current life with him being in a nursing home. Despite the hardship, sh…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Heather is one of our Champions for HD donation recipients. She joins us to share her story with her diagnosis of Huntington's Disease, and how she continues to keep fi…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. My sister would've been 15 years old this month. Last Wednesday, February 17th was her birthday and the first one our family has spent without her. It's been nearly a y…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. I am joined by my sister, Delaney, to talk about Huntington's Disease in our family from her perspective. She is a sophomore in college and living at-risk for the disea…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Megan joins me to share her experience with IVF. She was one of the first to receive a grant from the nonprofit, Help Cure HD. Help Cure HD specifically focuses on HD f…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Our first episode of 2021! Brittany Johnson joins us to talk about her family overcoming her mother's diagnosis of Huntington's Disease in 2018 and how they are living …
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Ashley joins me to be completely raw in her experience with Huntington's Disease. After a toxic relationship with her mother, who has the disease, receiving a negative …
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I talk with Heather and Nathan Thurgood and discuss their advocacy In the Huntington's Disease community. Nathan Is living with HD and Heather Is his biggest supp…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Matt joins me for an in-depth conversation about life with Huntington's Disease and overcoming the lingering fear that comes with It. After being diagnosed recently him…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today, Jessica Robbins and I discuss both of our journeys of testing for Huntington's Disease. We each received a positive diagnosis that changed our lives forever. Jes…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke. We discuss mental health with HD as a caregiver, setting bou…
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Welcome to our official Champions for HD Podcast. We are a nonprofit organization fighting to aid families and cure Huntington's Disease one family and one voice at a time. My name Is Shelby Lentz and I began Champions for HD In 2018 to help other families, like mine, who have battled this disease head on. When I was diagnosed In 2017, I made It my…
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Things get saucy as the podsquad sit down with Laura McDonald and Connor Hines—and that's before they read their Twilgiht / 50 Shades of Grey fanfic. THANKS TO OUR CAST AND CREW Erin Stegeman, Ace Marrero, Amiee Conn, Malerie McDonald, Laura McDonald, Connor Hines, and Gabriella Tutino! Once Upon a Wine available for download Thursday's by 12:00 pm…
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It’s 2018 and the podsquad has returned! While there will always be love for ABC‘s Once Upon a Time, sometimes things need to change. To ease listeners into the new format, Erin, Ace, Amiee, and Malerie are put on a spectacular show, with several guests, and perform a fan scripted story from Once Upon a Time by Sarah Eagen. To ... Read More…
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It's a New Year, New Podsquad! Erin, Ace, and Amiee are still here, but they are now joined by Malerie McDonald! They discuss Snow White turning 80, changes to the podcast, and recap Season 7 of Once Upon a Wine thus far! Drink when you hear: 'cunty' Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon a Wine …
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Guess who's back, back again!?!?!? That's right! Once Upon a Wine returns to talk about ABC's Once Upon a Time! Erin and Ace are joined by Amiee (via phone) and special guest, from Game of Thrones: The Rock Musical, Jeff Bratz. What did the team think of Season 7, Episode 1 of Once Upon a Time? LISTEN TO FIND OUT. Drink when you hear: 'Story' Once …
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The girls are back in town as they discuss that fine line between "Generation X" and "Millennial", Once Upon a Time, Game of Thrones (The Musical), and many more revealing things. Drink when you hear: 'Tea' Once Upon a Time returns with season 7 in the fall! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon…
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ANDREA UPDATE INJURY. Erin gets emotional. Amiee gets educational. Andrea gets weird. Ace gets vindicated. Statements. Theories. Harry Potter. Drink when you hear: 'Curse'—but honestly, if you want to get tipsy, you should probably drink when you hear 'Epilogue'. Once Upon a Time returns with season 7 in the fall! Once Upon a Wine available for dow…
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Erin, Ace, Amiee, and Andrea are back to discuss The Song in Your Heart—the musical episode of Once Upon a Time. The A-Team discuss the similiarties between the Rock Opera and the Musical before giving their thoughts, breaking down their favorite songs, discover that Erin is NOT Emma, and give their theories for the finale. Drink when you hear: 'Mu…
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[powerpress] Erin, Ace, and Andrea are joined by Lyndsay Palmer (check her out on PHAMALY.org) to discuss the newest episode of Once—The Black Fairy. While discussing the show, and it's many saviors, Erin has a minor breakdown before getting to theories on the remainder of the season (series?). Also, the future of the podcast is teased some more. D…
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[powerpress] After a few medical emergencies, Erin and Andrea return to cover TWO weeks of Once Upon a Time! But first, we get stories of what happened with Andrea and what it's like to be in Hollywood! Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon a Wine on …
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Mama Ace is in town to help discuss ABC's Once Upon a Time, Episode 6.16 Mother's Little Helper. Before talking about the episode (and the future of the podcast), Erin, Ace, and Mama Ace talk about Ace as a child and his report card! Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish…
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The Full Pod Squad is in town to discuss ABC's Once Upon a Time, Episode 6.15 A Wondrous Place. Awesome things are discussed, like Jafar while the rest of the epsiode is... LISTEN TO FIND OUT! Oh... AND SPOILERS AT THE END OF THE PODCAST-- listener beware! Drink when you hear the word 'Jafar'! Once Upon a Time airs Sundays at 8:00pm PST! Once Upon …
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Erin and Ace are joined by Erin's Mom and Colin Kramer (check out his podcast, The Populist Papers) to discuss all the had in Vancouver, a possible season 7 scoop, fires, games, and a recap of the episode! Drink when you hear the word 'Screening'! Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:…
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Join the 'A-Squad' as they discuss this weeks Once Upon a Time and mostly other things! Drink when you hear the word 'Charming'! Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon a Wine on Patreon and get early access to the Podcast on Tipsy Tuesday!…
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Is this the best episode of Once we've had in a long time? Listen to find out. Drink when you hear the word 'Charming'! Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon a Wine on Patreon and get early access to the Podcast on Tipsy Tuesday!…
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Erin, Ace, and Andrea discuss the midseason return of Once Upon a Time! #FatHook and Who the hell is David?? Drink when you hear the word show! Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon a Wine on Patreon and get early access to the Podcast on Tipsy Tuesda…
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Erin, Ace, and Andrea are joined by special guests: Peter Berube, Delilah Kujala, Brad Simanski, Max Reed III, Randy Wade Kelley, Allison Lobel, & Jay Stevenson Drink when you hear the word show! Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon a Wine on Patreon…
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That time we were LIVE in NYC with Everything is Awesome! Drink when you hear "Once". Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon a Wine on Patreon and get early access to the Podcast on Tipsy Tuesday!
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Pre-holiday Wine with special guest Malerie! Erin and Malerie talk about Season 6A, their favorite moments, theories and Vancouver! Drink when you hear "Once". Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon a Wine on Patreon and get early access to the Podcast…
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Celebrating 100 episodes! Let's simply sell this on buzz words: Regina's Apple Pie Ball Sacks Gag Reflex Boob Touching Erin Fakes It Drink when you hear "Emma". Once Upon a Time airs Sundays at 8:00pm PST! Once Upon a Wine available for download Thursday's by 12:00 pm PST (ish)! Support Once Upon a Wine on Patreon and get early access to the Podcas…
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