Best Brain Tumour Support Podcasts (2024)

1
Introducing World of Secrets S3 4:37

1d ago4:37

4:37

The Apartheid Killer – a new investigation. All the victims were black and the youngest was just 12 years old. Some relatives are still searching for the graves. They were killed during a three-year bloodbath in the 1980s, in the South African city of East London – by one person. He killed so many, he lost count. It has been 30 years since the whit…

1
Episode 59 - Spotlight on Women in Neuroscience 24:49

2M ago24:49

24:49

In this episode Anna talks to Anna Solth and Victoria Wyes about their experiences of being neurosurgeons and women in the field of neuroscience. They share their passion for neuroscience and the work they are doing now and their plans for the future. Better Safe Than Tumour Money Advice Clinic

1
Episode 58 - Hidden disabilities 44:13

3M ago44:13

44:13

In this episode we meet Gavin Burden and Louise Worthington who have both been diagnosed with brain tumours, Gavin has been living with his brain tumour for 28 years after he was diagnosed at 21. Gavin and Louise have been friends for years so when Louise was diagnosed with a brain tumour in 2018 Gavin reached out to her to offer support. In the ep…

1
Épisode 9 - Entrevue avec Maria (en français) 47:44

4M ago47:44

47:44

Maria a été la proche aidante de son mari, décédé il y a plus de 6 ans d'un glioblastome. Suivez-nous sur Facebook et sur Instagram. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.By Hugh Hill

1
Episode 57 - Spolight on Mental Health Support 9:35

3M ago9:35

9:35

In this episode, Chandos talks to Beth Ryall, about the support available at the charity for people who are experiencing difficulties with their mental health following a brain tumour diagnosis. You can find out more about the support available here Better Safe Than Tumour Money Advice Clinic

1
Episode 56 - Rehabilitation for brain tumours 45:54

4M ago45:54

45:54

In this episode, we talk to Anya Jones and Kaz Melvin about their experiences of rehabilitation. Anya was diagnosed with a brain tumour and needed extensive rehabilitation after her diagnosis and treatment whilst Kaz has both personal and professional experience of brain tumours and rehab. She is a physiotherapist but also supported her sister Ria …

1
Episode 55 - Spotlight on Research into Glioblastomas 16:52

5M ago16:52

16:52

In this episode, Chandos talks to one of our Future Leaders Dr Angel Alvarez-Prado. Angel is a highly accomplished researcher at the University of Lausanne in Switzerland where he is currently working on the innovative perspective of simultaneously targeting both cancer cells and their supporting immune microenvironment in the hope of finding more …

1
Episode 8 - Interview with Peter 1:02:44

5M ago1:02:44

1:02:44

Peter, a resident of the greater Toronto area, is a 49-year-old survivor of a brain tumour. His journey began in January 2019 when he was diagnosed with a grade 2 astrocytoma following a seizure. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hil…

1
Épisode 7 - Entrevue avec Kathy (en français) 59:41

5M ago59:41

59:41

Kathy est une survivante de tumeur cérébrale résidant à Québec et bénévole à la Fondation canadienne des tumeurs cérébrales pour le programme pédiatrique GOcervo. En 2011, elle a reçu un diagnostic de tumeur cérébrale. Suivez-nous sur Facebook et sur Instagram. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questio…

1
Episode 6 - Interview with Alex 53:59

6M ago53:59

53:59

Alex is a brain tumour survivor. He moved to Canada from Australia 15 years ago and worked in the mining industry for many years. He was diagnosed with a grade 3 oligodendroglioma five years ago. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hil…

1
Episode 5 - Interview with Sarah 39:14

9M ago39:14

39:14

Sarah is a brain tumour survivor. She was diagnosed with a brain tumour 13 years ago, when she was 25 years old. She works as a registered nurse at The Hospital for Sick Children. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.…

1
Episode 54 - Living with a rare brain tumour and Everest in the Alps 50:35

9M ago50:35

50:35

In this episode, we talk to Alex, Katie and Martin. At 20 Alex was diagnosed with a rare paediatric brain tumour DLGNT with limited treatment options his mum Katie did her own research into how best to help Alex, finding help and support internationally. In February 2024 Martin, along with 3 of his friends are taking on the Everest in the Alps chal…

1
Episode 53 -Using exercise as a form of therapy 56:24

9M ago56:24

56:24

In this episode, we talk to Liam Young about his recovery from his brain tumour. Liam tried the traditional route of counselling but found this wasn't for him but he found his perfect form of therapy through a personal trainer. Liam talks about how at 25 he had never prioritised his health, but after his diagnosis he realised how important health a…

1
Episode 4 - Interview with Carolyn 1:06:13

9M ago1:06:13

1:06:13

Carolyn grew up in a First Nation community in Southeastern New Brunswick. She shares her mother Phyllis' story, a polio survivor who passed away from a brain tumour. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.…

1
Episode 52 - Ravi's Dream 54:44

10M ago54:44

54:44

In this episode we talk to Bethan and Gbenga Adelekan who's son Ravi was diagnosed with a brain tumour when he was just 6 years old. Despite this Ravi, now 8 has not let this stop him from using his experience to help others and also to continue to follow his own dreams! After his diagnosis and surgery, Ravi decided that he want to do something tha…

1
Episode 51 - Spotlight on the Ways Ahead Research Project 23:34

10M ago23:34

23:34

In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma's. The Ways Ahead research project aims to understand more about the lived experience of people with low grade gliomas and how to improve their quality of life…

1
Dr Peter Geoffrey Lucas | Understanding Brain Tumours. 16:30

10M ago16:30

16:30

Peter Lucas Neurosurgeon says the human brain, with its intricate network of billions of neurons, is one of the most complex and vital organs in the body. Unfortunately, like any other part of the body, the brain is susceptible to diseases, one of the most concerning being brain tumours.By Dr Lucas Peter Lucas Neurosurgeon

1
Peter Lucas Neurosurgeon | New Spinal Surgery Techniques at Brisbane Private Hospital 2:55

11M ago2:55

2:55

Experience cutting-edge spinal surgery in Australia with Brisbane Private Hospital's new technique, led by renowned expert Dr Peter Geoffrey Lucas. Explore the innovative approach to spinal care and discover how Dr. Peter Lucas is transforming healthcare in the region.By Dr Lucas Peter Lucas Neurosurgeon

1
Episode 50 - Life after losing a parent - Growing and Thriving 42:02

11M ago42:02

42:02

In this episode Will Garrett talks about the death of his dad when he was just 11 and how this has shaped his life. Will is now a Neuro Oncology Clinical Nurse Specialist, a career that was shaped by his experieces as a child where he now works with other families who are impacted by brain tumours. Will shares what it was like for him as an 11 year…

1
Peter Lucas Neurosurgeon - Understanding Tattoos and MRIs 2:53

11M ago2:53

2:53

Dr Peter Lucas have been working as a surgeon, Dr Lucas’ve encountered various questions and concerns related to tattoos and MRIs. Today, Peter Lucas Neurosurgeon aim to shed light on this topic addressing common questions and providing considerations for individuals with tattoos who may require a MRI.…

1
Dr Peter Geoffrey Lucas - New Technology Set to Further Advance Neurosurgery 0:35

11M ago0:35

0:35

Explore groundbreaking advancements in the field of neurosurgery with Dr Peter Lucas. This exciting new technology promises to revolutionize neurosurgical procedures, enhancing precision and patient outcomes. Join Dr Peter Geoffrey Lucas on a journey into the future of neurosurgery as he delves into the potential of this innovative technology.…

1
Peter Lucas Neurosurgeon - Discusses the Importance of Family Support 3:03

11M ago3:03

3:03

As a neurosurgeon, Dr Peter Geoffrey Lucas wholeheartedly encourage patients and their families to recognize the profound impact they can have on each other’s lives during the process of major neurosurgery and invite patients to bring family members and loved ones with them to any or all of their consultations with me.…

1
Episode 3 - Interview with Karen-Lisa 43:55

1y ago43:55

43:55

Karen-Lisa is a brain tumour survivor. Her journey began in 2015 with the diagnosis of a pituitary adenoma. In the course of this interview, Karen-Lisa openly shares her story. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.…

1
Episode 49 - Spotlight on the Children & Families Service 14:28

1y ago14:28

14:28

In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole about the support that is available to families who have children under 18. Some of the things mentioned in this episode include: Family Days Brainy Bags Online support group for parents Talking to children about brain tumours Tali…

1
Episode 48 - (TW) Coming to terms with change 30:21

1y ago30:21

30:21

(Trigger Warning) In this episode - Benj talks about the impact of his daughter Ivy's diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family. He talks about the impact on mental health and the impact of trauma that parents and loved ones experiene as a result of a brain tumour diagnosis. This episode…

1
Episode 47 - Spotlight on Young Adults Masquerade Ball 16:25

1y ago16:25

16:25

In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball. Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis. We also hear from other young adults about the impact these events have on people like th…

1
Episode 46 - (TW) 'Your child has a brain tumour' 56:11

1y ago56:11

56:11

(Trigger Warning) In this episode - Benj talks us through every parent's worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 months later. This episode contains conversations that some people may find distressing such as the effects of the tumour…

1
Episode 2 - Interview with Ken 54:46

1y ago54:46

54:46

Ken's son, Denis, was diagnosed with glioblastoma back in 2013. Ken was Denis' caregiver throughout his brain tumour journey. Denis was a young brain cancer advocate, and he worked as a support services specialist at Brain Tumour Foundation of Canada before he passed away on July 30th, 2022. Follow us on Facebook, Instagram, Twitter, Youtube and Li…

1
Episode 45 - Mummy has a lump 34:35

1y ago34:35

34:35

If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do. In this episidode we talk to Simone Baldwin, the author of the book 'Mummy has a lump' which she wrote after recieving her own brain tumour diagnosis and struggled to find any resources for parents to help her explain to her …

1
Episode 44 - Spotlight on Ahead of the Game Foundation 19:10

1y ago19:10

19:10

In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients. Dave talks about what led him to creating Ahead of the Game and what services they provide. You can find out more about Ahead of the Game here You can read more about Dave Bolton here You c…

1
Episode 7: Jean 43:45

1y ago43:45

43:45

Megan’s mother disappears, Jamie tries to track her down. Evidence published reveals a shocking conclusion. Finally, Jamie can give everyone involved some answers.By BBC Sounds

1
Episode 6: One Direction 29:11

1+ y ago29:11

29:11

Why did Megan and her mother set up Believe in Magic? Jamie investigates their link to pop megastars One Direction. He discovers crucial evidence is about to be published.By BBC Sounds

1
Episode 5: Sisters 27:10

1+ y ago27:10

27:10

Revelations about Megan’s childhood provide vital clues. An expert tells Jamie about a little - understood yet disturbing medical phenomenon.By BBC Sounds

1
Episode 1 - Interview with Paul 25:16

1+ y ago25:16

25:16

Paul, a brain tumour survivor and volunteer with the Brain Tumour Foundation of Canada, shares his story. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.By Hugh Hill

1
Episode 4: Doctors 27:24

1+ y ago27:24

27:24

The news creates shock waves. Could the sleuths have got it wrong? Jamie gains rare access to doctors’ reports, which could reveal what happened to Megan.By BBC Sounds

1
Episode 3: Proof 27:33

1+ y ago27:33

27:33

The sleuths reveal their findings. Believe in Magic’s supporters defend Megan. Some terrible news breaks, that forces the sleuths to reconsider everything they’ve discovered.By BBC Sounds

1
Episode 2: Sleuths 23:48

1+ y ago23:48

23:48

Megan fundraises for treatment abroad. Her condition deteriorates while in hospital in America. When anonymous sleuths discover she’s not where she claims, who will believe them?By BBC Sounds

1
Episode 43 - Headaches and Brain Tumours 47:27

1+ y ago47:27

47:27

In this episode, we talk to Imelda and Rebecca who both experienced headaches caused by their brain tumours. They share how these were often dismissed by GPs and not taken seriously despite also having a range of other symptoms which were all indications that something wasn't right and needed looking into. They explain what the headaches were like …

1
Episode 1: Megan 22:01

1+ y ago22:01

22:01

A teenage girl with a brain tumour starts a charity for sick children. It captures the support of pop megastars, One Direction. But questions arise - is Megan really ill?By BBC Sounds

1
Introducing Believe In Magic 2:47

1+ y ago2:47

2:47

Charity, celebrity, illness and control. The extraordinary story of a teenage girl and her charity Believe in Magic, which ends up challenging the very nature of sickness itself.By BBC Sounds

1
Episode 42 - Spotlight on Family Led Partnerships 15:57

1+ y ago15:57

15:57

In this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity. She explains what family led partnerships are, the different types and why they are so important to the charity. Family led partnerships are so much more than just rasing money for the charity as Phoebe explains in this episode. If you have any questions you ca…

1
Episode 41 - PCV Chemotherapy 47:49

1+ y ago47:49

47:49

In this episode, we talk to Sarah and Patrick about their experience taking the chemotherapy drug PCV. They explain what taking this chemotherapy regime is like, what side effects they experienced, dietary restrictions, hair loss, and more. You can find out more about chemotherapy here and if you would like to speak to our support team you can emai…

1
Episode 40 - Spotlight on TIME, using art to tell stories of brain tumours 16:31

1+ y ago16:31

16:31

In this episode, we talk to Hannah Waldron about the TIME Art Exhibition . The exhibition will feature photographs, illustrations, paintings, scans and sculptures submitted by the community to help tell the stories of those affected by a brain tumour, as well as artwork from upcoming and renowned artists from around the globe. The aim of the exhibi…

1
Episode 39 - Caring beyond a brain tumour 46:26

1+ y ago46:26

46:26

In this episode we talk to Elizabeth and Julia the hosts of the podcast 'On a good day' about their experiences of caring for their partners who both live with the impacts of brain injury. Elizabeth's husband Paull had a stroke when he was just 38 and Julia's husband Hector had a subarachnoid brain haemorrhage when he was also 38. Whilst not caused…

1
Episode 38 - Spotlight on getting benefits and money advice (UK) 10:36

1+ y ago10:36

10:36

In this episode, Chandos talks to Denise one of our benefits advisers. Through talking to our community we know the financial impact of a brain tumour diagnosis can be huge and cause a great deal of stress and anxiety so we partnered with Citizens Advice to provide support and information around not just benefits but a wide range financial issues. …

1
Episode 37 - Brain Tumours and Seizures 37:17

1+ y ago37:17

37:17

In this episode we talk to e people, Jess, Reece and Kate about the impact seizures have on their lives, from being the first sign there was something wrong to the day to day challenges of managing their seizures. We talk about the different types of seizures and how medication can help to get these under control. You can find out more about brain …

1
Episode 36 - Spotlight on Involvement Champions 25:32

1+ y ago25:32

25:32

In this episode, Neil Munn and Donald Innes talk about their time as Involvement Champions for the charity. They share what being an Involvement Champion means, not just in terms of their role and what they have done as Involvement Champions but also what it has meant to them personally and the feeling that they have had a real say in the direction…

1
Episode 35 - Christmas - Caring for or coping with the loss of a loved one 23:14

1+ y ago23:14

23:14

We know that Christmas can be a difficult time for people who are caring for a loved one with a diagnosis, whether this is your first Christmas since the diagnosis or you are worried this may be your last. We also know that for some of you this may be a time of remembering a loved one you have lost. In this episode, we talk about some of the challe…

1
Episode 34 - Living with a Brain Tumour At Christmas 27:27

1+ y ago27:27

27:27

In this episode, we talk about some of the challenges of having a brain tumour over the festive season. For some of you, this might be your first Christmas since receiving your diagnosis and have mixed feelings about the impending festivities. The team share some personal experiences of how having a diagnosis has changed the way they celebrate the …

1
Episode 33 - Spotlight On Our Young Ambassadors - Making Positive Changes 27:04

2y ago27:04

27:04

In this episode, Anna talks to fellow young ambassadors Rhudi and Victoria about the Young Ambassador Program which is a 2-year program tum by the charity for young people aged 18 - 25. They talk about what made them want to become ambassadors for the charity and some of the great things they have done during their first year in the program. The Yo…

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