Download the App!
show episodes
 
Loading …
show series
 
In Jerry’s latest podcast, we meet Beth Gerritsen – mother to Charlie, who has cystic fibrosis, and Willie, who does not. From raising her boys in the Virgin Islands to moving back to the states, she shares some insight into CF care in the VI, how it impacted Charlie’s health, and more. This video podcast was made possible through an unrestricted e…
  continue reading
 
In his latest podcast, Jerry chatted with Charlie, 11 with CF, and his older brother Willie about the CF-sibling relationship. They talk about spending almost all of their time together, playing sports, their goals, and more. To his fellow CF patients, Charlie says, “Stay strong. Never give up. And always do your treatments.”This video podcast was …
  continue reading
 
In the latest CF Podcast, we meet Griffin Taylor, a 15-year-old who loves lacrosse and squash, is on his school’s robotics team, and is his class’s treasurer. During quarantine, Griffin started The Salty Scholar, a tutoring service to assist with virtual learning. When he saw his mom – a teacher – go through the virtual learning process, he realize…
  continue reading
 
In the latest CF Podcast, Jerry speaks with Dwight Cheu, CEO of ZephyRx, a home-based respiratory diagnostic testing and therapy that allows patients to actively manage and improve their own lung health through telehealth, video games, and virtual reality.Cheu describes the positives of the product: at-home testing capabilities, prevention of exten…
  continue reading
 
The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community. In the second episode, Swapna Kakani discusses dealing with post-transplant lymphoproliferative disorder after her small intestine organ transplant. In June 2014, af…
  continue reading
 
The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community.In the first episode, Swapna Kakani shares her story about being born with a rare disease, short bowel syndrome and later developing rare PTLD (Post-transplant lympho…
  continue reading
 
“I believe in enjoying life and living it to the fullest, having fun, and just enjoying time.”Brayden Walsh, a 16-year-old living with CF, joins Jerry Cahill’s CF Podcast to share his experience as one of the 10% of patients without modulators available for treatment. Even though he deals with a number of other illnesses on top of CF, Brayden does …
  continue reading
 
In the latest CF Podcast, Anthony Esposito, aka Espo 2, shares why he loves fitness and nutrition. While he doesn’t have CF himself, he wants to inspire all people to improve their health with his Youtube channel – and to convince people that burpees are the best! This video podcast was made possible through an unrestricted educational grant from G…
  continue reading
 
“I love ice hockey because it really opens up my life and makes me stop thinking about cystic fibrosis and worrying about my health.” Meet Reilly Hoagland! Reilly was diagnosed at 4-years-old with cystic fibrosis, but has never let it stop him from living life the way he wants. Reilly is an honor roll student who loves sports and travels up and dow…
  continue reading
 
“I’ve always felt gratitude for the hospital staff, but this was over and above. We all know how contagious this is, and they knew that pretty early on. And yet, their job is to care for people and they did it regardless of their own risk. They did it with such kindness and caring.” Jerry caught up with Kay W. to talk about her experience of living…
  continue reading
 
In Jerry Cahill’s latest podcast, he spoke with 30-year-old Enid Katz, who was diagnosed with CF when she was 3. Enid’s passion in life is horses – which motivates her to stay healthy, active, and fit, even when she isn’t feeling her best. She shares what it’s like for her when she has a pulmonary exacerbation, how it can feel defeating to have to …
  continue reading
 
Jerry Cahill spoke with Dr. Kelsey Finn about her book, “Having Cystic Fibrosis is a lot like being a Super Hero,” which relays information about CF so that kids and parents have a launching pad for more serious conversations. Dr. Finn’s goal is to support parents and give them the resources that they need to empower and educate their kids. She bel…
  continue reading
 
“I would tell a caregiver or a spouse of someone with CF that – all of those things you are feeling, the fatigue, the anger, the resentment, all of that is okay because we’ve all gone through that. It’s also really important for you, the caregiver, to take care of yourself.” Jerry sat down with Tom Kaminski, his wife of 27 years, Lynn, and their so…
  continue reading
 
“I would recommend that anyone with CF who can physically get up and move, to get up and move. I have found that exercise has changed my life completely, and without it, I don’t know where I would be at this point.”Meet Scott Marraffa, a 25-year-old who is living with cystic fibrosis AND competed on American Ninja Warrior! Scott’s parents kept him …
  continue reading
 
“Everyone deserves that same realistic hope for a deep breath and for a future. And the work of Emily’s Entourage is focused on achieving that for every single person so no one with CF is left behind.” Jerry sat down – virtually – with Emily Kramer Golinkoff in his latest podcast to discuss the incredible work that she does with her 501(c)3, Emily’…
  continue reading
 
In part 2 of Managing Your Life as a Teenager, Jerry sits down with Sean Randles… 6 years after their first podcast. Today, Sean is 15-years-old, runs track, and played freshman basketball. He is also a positive social media influencer, spending most of his time recording Tik Tok dances and sharing his life on Instagram – always in a positive way! …
  continue reading
 
Jerry caught up with 17-year-old Colin Randles in his latest podcast. Colin, a Junior honors student, golfs, plays JV basketball, and rows crew. His brother Sean, who also has cystic fibrosis, is his biggest support system, and they do as much as they can together. Tune in to hear more about Colin and to see a flashback to his original appearance o…
  continue reading
 
“I can fight alone, but we can win together.”Last week, we met Eric Schandel… and this week Jerry sat down with his wife, Ashley! In the latest CF Podcast, Ashley shares a little about herself and what it was like when her daughter Remi Monroe was diagnosed with cystic fibrosis. She also talks about charity runs, the silver lining of having a child…
  continue reading
 
All parents worry about their children – but parents of kids with cystic fibrosis have additional stressors and concerns. In the latest CF podcast, Eric Schandel sat down with Jerry Cahill to share his experience of being a CF dad – to Remi, who is now almost two.At the time of Remi’s diagnosis, Eric was alone at work when he got the news, and he d…
  continue reading
 
In Jerry’s latest CF Unmasked podcast, he sits down with Greg Love for an uncensored look at what it’s like growing up with two brothers with cystic fibrosis. From witnessing countless pulmonary exacerbations to feeling guilty about being healthy, Greg shares his experiences openly and honestly. Within his own family, Greg saw two sides of CF – his…
  continue reading
 
“I am not defined by my disease. I have CF, but I am not CF. I can do what everyone else can do; I just might have to do it a little bit different. I might have to add in some treatments during the day. But I am strong. I can do it all.”Christie Fogelstrom joined Jerry on his latest CF Podcast to discuss traveling frequently for work while living w…
  continue reading
 
In the latest CF Podcast, Jerry Cahill interviewed James Colligan, Director of Sales and Business Development, and Danielle Maffei, Lead CF Pharmacist, at Total Care RX, a specialty pharmacy that focuses on lifting the financial burden of patients living with cystic fibrosis. Danielle and James discuss their focus of educating CF patients about the…
  continue reading
 
Sheila reached out to Jerry asking what type of mask he wears while traveling or visiting the doctor. He uses the 3M Particulate Respirator N95 Mask - style number 9210/37021 for protection from germs. These masks can be purchased online and come individually wrapped - making them ideal for travel because they stay sanitary. This video Wind Sprint …
  continue reading
 
Skylar from California asked Jerry the best way to move from stationary biking to cycling outdoors. The most important thing, to Jerry, is remembering the mantra ‘safety first.’ He gives a number of suggestions to make the transition as smooth and safe as possibly, including using the correct equipment, carrying plenty of H2O, and remembering sun p…
  continue reading
 
After receiving a Facebook message asking about how he keeps his nasal passageways clear and germ-free, Jerry took to his Wind Sprint page to share his response. As a part of his daily hygiene, Jerry uses Nozin, a nasal sanitizer, to kill the germs in his nasal passageways – and it lasts up to eight hours. He demonstrates two different ways of usin…
  continue reading
 
Where can you find a more exciting, challenging replacement for a stationary bike? Jerry Cahill suggests finding a spin class in your area. For him, spin classes at Bad Ass Academy push him harder, incorporates a more challenging group setting, and leaves him feeling exhausted but exhilarated. This Wind Sprint was made possible through an unrestric…
  continue reading
 
In this video, Jerry addresses the question: what exercises can you do outdoors if you are worried about the cost of a gym or cross-infection? He demonstrates a number of exercises he uses while at local parks and tracks. This Wind Sprint was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.…
  continue reading
 
In this video, Jerry – along with some of the high school pole-vaulters he coaches – demonstrates several abdominal workouts that you can do anywhere! They focus on flutter kicks, bicycles, rope climbs, and leg raises. This video was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.…
  continue reading
 
In this video, Jerry answers Erin’s tweet about how to build her triceps. He offers several exercise options and reminds everyone to start with a weight you can handle and to only increase the weight once you feel comfortable. This Wind Sprint was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundatio…
  continue reading
 
The gym can be intimidating – which is why Jerry suggests focusing on specific exercises and body areas when you go. In this video, he concentrates on chest exercises because they benefit people with CF by opening their chest cavities and improving breathing. This CF Wind Sprint was made possible through an unrestricted educational grant from Gilea…
  continue reading
 
Congratulations to our very own CF Ambassador, Jerry Cahill, for reaching such an amazing milestone! The Boomer Esiason Foundation CF Podcast series has been a huge success for the past ten years – providing educational and informative podcasts and videos – and Jerry plans to keep going for the next ten years!…
  continue reading
 
If you have a really busy work schedule, finding ways to fit fitness into your day can be extremely challenging. One way to do so is to replace your regular office chair – both at home and at work – with an exercise ball. Just by sitting, you work on your posture, core strength, and can stretch throughout the day. Another great tip is to keep a str…
  continue reading
 
After six sinus surgeries, Jerry considers himself an expert on sinus irrigation and care. He suggests a number of techniques, including saline spray, a water pick, and Nasatouch. No matter what technique you prefer, irrigation in an important step in staying healthy and preventing infections from spreading to your lungs. This CF Wind Sprint is mad…
  continue reading
 
In order to hold himself accountable and to motivate himself, Jerry tracks his exercise and nutrition using the Jawbone Up24 wristband and app. It enables him to track his movement, eating habits, weight, and sleep, and provides great educational articles about healthy living. This CF Wind Sprint was made possible through an unrestricted educationa…
  continue reading
 
In this Wind Sprint, Jerry reviews how he builds endurance and strength without going to the gym. By walking, jogging, and doing lunges uphill, he is able to clear his lungs, work his core, and practice form and technique. Jerry recommends starting small by walking short distances and then building your regime from there. This Wind Sprint was made …
  continue reading
 
While exercising outdoors in the summer, or on warmer days, remember to wear lightweight, breathable materials that are UV protected. And wear a hat and stay hydrated by drinking water before, during, and after your work out. This Wind Sprint was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation…
  continue reading
 
With summer in our review mirror, many people who continue to exercise outdoors forget to apply sunscreen as the temperatures cool. Even if the sun does not seem strong, always apply waterproof sunscreen every hour to all exposed areas – and don’t forget your lips! This CF Wind Sprint is made possible through an unrestricted educational grant from …
  continue reading
 
What do I do post-transplant to stay compliant? To stay compliant, Jerry keeps a daily log of things like his temperature, blood pressure, heart rate, and a number of other things. He also takes his medications daily – on average about 40 pills a day. By monitoring his vitals and keeping up with his medicines, Jerry is able to keep track of how his…
  continue reading
 
With summer coming, it is really important to stay hydrated. Jerry drinks at least two quarts of water a day and he drinks sports drinks as well. Always read the nutrition facts and look at sugar levels, vitamins, and proteins before choosing one. Try several different options to find out what works best for you! This Wind Sprint was made possible …
  continue reading
 
In this video, Jerry discusses a great way to build up arm, shoulder, and chest strength – the push-up. He reviews various forms and tools that make the standard push-up even more beneficial. This CF Wind Sprint is made possible through an unrestricted educational grant from GILEAD to the Boomer Esiason Foundation.…
  continue reading
 
Outdoor Exercises for Core Exercising outdoors can be a great change of scenery. In this video, Jerry suggests using an ab roller, which is extremely light and portable, to get a great core workout in any setting. This Wind Sprint was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.…
  continue reading
 
CF Wind Sprint – Boot Camp AbbVie Many people with cystic fibrosis have questions about how to take their training and exercise regime up a notch. In this video, Jerry shares his love for taking a high-intensity 45-minute boot camp class – where he gets a great core and cardio workout. Always remember to stay hydrated no matter what work out you ch…
  continue reading
 
Traveling with Medications: Using the Spirologics Back Pack In this CF Wind Sprint, Jerry addresses a topic brought to him by Facebook friend, Jason, about traveling with medication. Recently, Jerry began using a special backpack that provides ample space for meds, separate compartments in various sizes, space for an ice pack, and even room for a l…
  continue reading
 
Combining the power of video and social media. Jerry will answer CF-related questions in a short format video.In this episode, Jerry talks about wide variety of nuts available as a nutritious pre- or post- workout snack. Among Jerry's favorites are almonds, pumpkin seeds, walnuts and peanuts.Big thanks to Novartis for their support of Jerry Cahill'…
  continue reading
 
Combining the power of video and social media. Jerry will answer CF-related questions in a short format video.In this episode, Jerry talks about a few fruit snacks he uses to power up before and after a workout. Apples, bananas, rasins, cranberries and dried cherries are among the many healthy options out there!Big thanks to Novartis for their supp…
  continue reading
 
Combining the power of video and social media. Jerry will answer CF-related questions in a short format video.In this episode, Jerry talks about a few energy and protein bars he uses to get a quick boost of energy. It's important to store up energy before a workout, and then replenish the energy and protein you lose during a workout after you're do…
  continue reading
 
Combining the power of video and social media. Jerry will answer CF-related questions in a short format video.In this episode, Jerry talks about the importance of keeping yourself hydrated before, during and after workouts. Water is essential, of course, but Jerry suggests a few other sources that might help you stay hydrated, including coconut wat…
  continue reading
 
Combining the power of video and social media. Jerry will answer CF-related questions in a short format video.In this episode, Jerry talks about the importance of protein drinks, which are a great way to help you recover after a workout - especially after intense ones. Jerry shares a few of his favorite drinks, including chocolate milk, Muscle Milk…
  continue reading
 
Loading …

Quick Reference Guide