Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
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A genetic disease Cover art photo provided by Efe Kurnaz on Unsplash: https://unsplash.com/@efekurnaz
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By Brayden and Tyler
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Podcast by Jerry Cahill
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This podcast dives deep into the risks and benefits of attempting gene therapy on cystic fibrosis patients. Listen to see the final decisions made on the matter.
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An original podcast that gets inside the heads of the Cystic Fibrosis Community to talk about all kinds of topics with respect and honesty.
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Podcast by Jerry Unplugged: A Cystic Fibrosis Podcast
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Breaking Through is a monthly narrative podcast produced by the Cystic Fibrosis Foundation's Tomorrow's Leaders group. Breaking Through is meant to help Tomorrow's Leaders members develop professionally, foster community, and learn from others through rich storytelling, while also recruiting and engaging new members.
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My name is Justin. I created this podcast to tell the life of a person with Cystic Fibrosis. I am in my late 30's and run half marathons as well as live the life as best as I can in San Diego, CA.
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Sickboy is determined to break down the stigma associated with illness and disease. Join Jeremie, Brian and Taylor as they tackle health taboos with people who have experienced them firsthand. Taking the lead from Jeremie's life long battle with Cystic Fibrosis, the three best friends help us understand that sometimes the best way to deal with illness, disease and life is simply to laugh. Follow Sickboy on Instagram & TikTok!
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A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cy ...
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When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey. We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living wit ...
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A dynamic Cystic Fibrosis Podcast, educating people on the different experiences and lives that CFers face. Discussing all sides of CF, including the fearful, the ambitious, the emotional and the challenging. A podcast that is purposely made to educate but more importantly comfort fellow CFers and support the CF community💛
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Cystic fibrosis (CF) is one of the most prevalent global congenital disorders, affecting some 70,000 individuals worldwide and 30,000 children and adults in the United States. While clinical efforts are expanding worldwide to improve diagnostic testing and treatment approaches for this progressive lung disease, targeted therapies for CF against any specific mutation remain elusive. The Cystic Fibrosis in Focus series gathers the latest information from leading medical experts devoted to adva ...
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Jerry Cahill used the short video format to educate and inspire people with cystic fibrosis to utilize exercise to improve health.
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Come tag along on this self-love exploration all while spiritually awakening! This podcast will talk about all things spiritual, conspiracy theories, and self-development through shadow work.
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ASN Podcasts serve as a connection to everything nephrology including interviews with experts and discussions about cutting-edge advances in research and care.
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The Choose Your Attitude® podcast is a source of inspiration and motivation for many, fueled by real stories from real people who have struggled with real challenges. Each podcast — and show guest — reminds you that no matter the challenge, you hold the power of perspective, allowing it to shift your attitude from being held down by the impossible to being propelled with the possible. No struggle is too big to impact the small choice you make of your attitude on how you approach it, all in t ...
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Radio In Vivo
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Leeds Voices is a brand new weekly podcast brought to you by the University of Leeds. Join us as we interview some of the illustrious alumni who studied at the University of Leeds, as well as discussions with the institution's world-class researchers. Follow us on Twitter and Instagram at @leedsalumni or email us at alumni@leeds.ac.uk
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Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic. Hosted on Acast. See acast.com/privacy for more information.
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Brought to you by the charity Bowel Research UK, here we welcome bowel cancer and bowel disease patients, researchers, healthcare professionals and carers to butt in and share their experiences. Your host is Patient and Public Involvement Manager Sam Alexandra Rose. We’re picking a topic every episode and getting to the bottom of it.
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A Pediatric Podcast for Healthcare Providers
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The Urology Care Foundation is the official foundation of the American Urological Association. We support reliable patient education on urology health issues. Learn more at UrologyHealth.org.
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Bowel Sounds is a podcast on all things related to pediatric gastroenterology, hepatology, and nutrition. This podcast is brought to you by the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN).
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Nutrition Pearls: The Pediatric GI Nutrition Podcast is brought to you by the Council for Pediatric Nutrition Professionals (CPNP), part of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN). This podcast will feature topics related to GI nutrition and information on CPNP. The podcast is supported by an educational grant from Reckitt Mead Johnson Nutrition.
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Cochrane produces systematic reviews which are recognized as the highest standard in evidence-based health care resources. Listen to Cochrane review authors explain in plain language the evidence and findings of their high-impact reviews. In 5 minutes or less, healthcare professionals to patients and families can understand the latest trusted evidence to help make better informed decisions.
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You're not alone on this journey, be it trying to conceive, pregnant, postpartum or wanting to relate to your own children who are now giving birth we have got a story for you. Your host Jordyn talks to Kiwi families about their experiences and brings us all together as a community, let's laugh, cry and celebrate together. Hosted on Acast. See acast.com/privacy for more information.
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Every Monday, Antonio and Joe talk about the things that they find interesting from physics, to philosophy, to technology.
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1
PeerView Heart, Lung & Blood CME/CNE/CPE Audio Podcast
PVI, PeerView Institute for Medical Education
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
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51
PeerView Heart, Lung & Blood CME/CNE/CPE Video Podcast
PVI, PeerView Institute for Medical Education
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
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1
PeerView Family Medicine & General Practice CME/CNE/CPE Video Podcast
PVI, PeerView Institute for Medical Education
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
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1
PeerView Family Medicine & General Practice CME/CNE/CPE Audio Podcast
PVI, PeerView Institute for Medical Education
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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Two friends who are just thinking out loud. Reddit, anonymous, true crime, mental health... We talk about it all, and we talk a lot.
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A podcast about life ups and downs and the beauty of it all. If you are looking for some real talk, about real life, with a lot of inspiration, this podcast is for you.
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Podcast by Bone Banter
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Talks about nursing, health & social care, academics & study skills. A Podcast for nurses & health professionals but really, all welcome to listen!
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Providing health tips about weight loss, energy, sports performance, and psychology of motivation and achievement.
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Be inspired by Michael Banks and his guests' fascinating stories of moving from fear and crisis to a new understanding of themselves. Discover how to use pain, loss and suffering to become a wiser, better person. Explore how to reinvent your life and find more freedom, love and authenticity by learning from hard times.
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A monthly podcast from the European Respiratory Journal, summarising the research findings of a number of papers published in each issue.
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Thanks for Listening! Follow for more awesome content @intotheshadowswithjordanBy Jordan
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1
Special Insurance for CF families (and others) in MI
33:29
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Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access to the program has nothing to do with your household income. The program has a lot of benefits. CSHCS covers transportation that can include airfare a…
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New Series: nephSAP Guest Editor Interview: Cystic Fibrosis and Hypoelectrolytemia With Metabolic Alkalosis
26:19
26:19
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In this new series, Drs. Alice Sheridan and Martina McGrath speak with guest editor Dr. Michael Emmett to discuss his editorial "Cystic Fibrosis and Hypoelectrolytemia With Metabolic Alkalosis" from nephSAP Volume 23, Number 2.By American Society of Nephrology
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1
Fighting for Men's Health with Cystic Fibrosis Survivor, Reuben Samuels
37:24
37:24
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Our guest is Reuben Samuels, the President of Breathe Easy International and a cystic fibrosis survivor. He talks about living with cystic fibrosis and his journey fighting for his own health along the way. Reuben shares some great insight into men's health and advocates for men getting the help they need to stay healthy.For more information, pleas…
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1
Treatment with macrolide antibiotics (including azithromycin) for people with cystic fibrosis
5:33
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People with cystic fibrosis are particularly prone to chest infections caused by bacteria that are hard to treat, but one possible treatment is a class of antibiotic known as the macrolides. There’s been a Cochrane Review of this since 2003 and the fourth update was published in February 2024. Here's Kevin Southern from Alder Hey Children’s Hospita…
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1
2024 Summer Rulemaking (Policy Podcast July 2024)
22:40
22:40
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Hosts Tod Ibrahim and David White discuss the recently released CY2025 End-Stage Renal Disease Prospective Payment System and Quality Incentive Program (ESRD PPS QIP) proposed rule and the CY2025 Medicare Physician Fee Schedule proposed rule.By American Society of Nephrology
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1
Maissaa Janbain, MD, MSCR - Clotting the Gaps in VWD Care: Elevating Diagnostic Awareness and Treatment Planning With Modern Therapeutic Approaches
36:41
36:41
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/IPCE information, and to apply for credit, please visit us at PeerView.com/GXU865. C…
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1
Maissaa Janbain, MD, MSCR - Clotting the Gaps in VWD Care: Elevating Diagnostic Awareness and Treatment Planning With Modern Therapeutic Approaches
30:43
30:43
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/IPCE information, and to apply for credit, please visit us at PeerView.com/GXU865. C…
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1
Episode 20 - Kate Samela - Dietitian Care Coordinator - RD in a Unique Role
43:27
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Episode 20 - Kate Samela - Dietitian Care Coordinator - RD in a Unique Role In this episode of Nutrition Pearls: the Podcast, co-hosts Jen Smith and Bailey Koch speak with Kate Samela MS, RD, CD-N, CSP about her role as the Care Coordinator for the Intestinal Rehab program at Connecticut Children’s Medical Center in the Division of Gastroenterology…
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1
Nasal Lightsaber: The Force Behind Photodisinfection
1:12:42
1:12:42
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Shedding light on the invisible enemy, Dr. Nicholas Lobel reveals the illuminating potential of photodisinfection to transform healthcare. Dr. Loebel serves as President and Chief Technology Officer (CTO) of Ondine Biomedical. Beyond the growing ineffectiveness of antibiotics, Dr. Loebel delves into the brilliance of using light to zap harmful micr…
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1
022: Spread of Bowel Cancer to the Peritoneum Part 1
24:33
24:33
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Sam is joined by Dr Meera Patel to talk about her research into the spread of bowel cancer to the peritoneum. Meera is an Academic Clinical Lecturer at The University of Manchester and a trainee bowel surgeon, splitting her time equally between her academic medical research work and her clinical practice treating patients in the Northwest of Englan…
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1
Benjamin M. Greenberg, MD, MHS - Mastering Diagnosis and Navigating the Sea of Targeted Treatments in NMOSD: Practical Guidance on Optimizing Patient Care
46:09
46:09
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME information, and to apply for credit, please visit us at PeerView.com/HXG865. CME credit will…
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1
Kathleen M. Buchheit, MD / Stella Lee, MD - Precision Learning for Precision Medicine: What You Need to Know About Hitting the Type 2 Target With Biologic Treatment for CRSwNP
39:52
39:52
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/CC/AAPA information, and to apply for credit, please visit us at PeerView.com/ZEC865. CME…
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1
Benjamin M. Greenberg, MD, MHS - Mastering Diagnosis and Navigating the Sea of Targeted Treatments in NMOSD: Practical Guidance on Optimizing Patient Care
46:11
46:11
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME information, and to apply for credit, please visit us at PeerView.com/HXG865. CME credit will…
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1
Stephen V. Liu, MD - Decoding Biomarker Testing and Targeted Therapy in NSCLC: The Complete Guide for 2024
1:25:12
1:25:12
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/AAPA/IPCE information, and to apply for credit, please visit us at PeerView.com/TFK8…
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1
Kathleen M. Buchheit, MD / Stella Lee, MD - Precision Learning for Precision Medicine: What You Need to Know About Hitting the Type 2 Target With Biologic Treatment for CRSwNP
39:51
39:51
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/CC/AAPA information, and to apply for credit, please visit us at PeerView.com/ZEC865. CME…
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1
Stephen V. Liu, MD - Decoding Biomarker Testing and Targeted Therapy in NSCLC: The Complete Guide for 2024
1:25:15
1:25:15
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/AAPA/IPCE information, and to apply for credit, please visit us at PeerView.com/TFK8…
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1
Makenzie + Isla: Surprise pregnancy, 41+6 birth, Misoprostol Induction, Csection, Positive Breastfeeding journey
56:58
56:58
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This episode of Kiwi Birth Tales is proudly brought to you by Hotmilk save 20% off full priced items with code kiwibirthtales In this episode of Kiwi Birth Tales, I speak to Makenzie. Some of the topics we cover: Surprise Pregnancy NIPT Gender reveal Inter-cranial Hypertension Your Birth Project (online and in person) Stretch and sweeps 41+6 birth …
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1
Ruba Abdelhadi - Enteral Nutrition and Feeding Tubes 101
54:09
54:09
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In this episode, hosts Drs. Peter Lu and Jennifer Lee talk to Dr. Ruba Abdelhadi about enteral nutrition and feeding tubes. Dr. Abdelhadi is a pediatric gastroenterologist at Children's Mercy in Kansas City, MO where she is the Director of Nutrition Support Program. She is a Professor of Pediatrics at the University of Missouri-Kansas City School o…
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1
Treatments to reduce alcohol use during pregnancy
4:05
4:05
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The topics for some Cochrane Reviews cut across multiple Review Groups. This is the case with an April 2024 review of interventions to stop or reduce alcohol consumption during pregnancy, which is relevant to both Cochrane Pregnancy and Childbirth and Drugs and Alcohol. Here’s one of the authors, Julia Sinclair from the University of Southampton in…
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1
Electrical shocks (electrical cardioversion) and drugs (pharmacological cardioversion) for restoring normal rhythm in patients with atrial fibrillation or atrial flutter
7:51
7:51
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Some Cochrane Reviews include network meta-analyses to bring together a range of comparisons to help identify the relative effects of different interventions and to rank them based on effectiveness. In June 2024, we published one of these, examining cardioversion for atrial arrhythmias. In this podcast, one of the authors Rui Providencia (left) int…
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1
Plane Crash Survivor: Tulsi's Insights on Grief and Growth
1:16:34
1:16:34
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They say what doesn’t kill you makes you stronger, but what if it leaves scars that run deeper than the skin? This episode dives into Tulsi's incredible story of surviving a plane crash at age 10, which claimed her entire family and left her with severe burns. Tulsi recounts the harrowing impact of the tragedy, exploring themes of trauma, grief, an…
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1
Sir Keir Starmer: Leeds's first Prime Minister
24:20
24:20
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On 5 July 2024 Sir Keir Starmer (Law 1985, Hon LLD 2012) - one of the University's most prominent alumnus - became the Prime Minister of Great Britain and Northern Ireland. Sir Keir is the first Leeds graduate to become UK Prime Minister, and one of only a few University-educated PMs to not study his bachelors at Oxford or Cambridge. His journey to…
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Thanks for Listening! Follow for more awesome content @intotheshadowswithjordanBy Jordan
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1
Geoffrey L. Chupp, MD / Autumn Burnette, MD, FACAAI - Leveraging the Power of Targeted Biologic Therapy in Severe Asthma: Do You Know How and For Whom?
35:56
35:56
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/AAPA information, and to apply for credit, please visit us at PeerView.com/PRN865. CME/MO…
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1
Geoffrey L. Chupp, MD / Autumn Burnette, MD, FACAAI - Leveraging the Power of Targeted Biologic Therapy in Severe Asthma: Do You Know How and For Whom?
36:19
36:19
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/AAPA information, and to apply for credit, please visit us at PeerView.com/PRN865. CME/MO…
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1
Peter Voorhees, MD - Three Rs for Modern Myeloma Care: Delivering the Right Treatment for the Right Patient at the Right Time With Antibody and BCMA Platforms
1:53:26
1:53:26
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1
Sandip Patel, MD - Illuminating the Path With Immunotherapy for Metastatic, Locally Advanced, and Early-Stage NSCLC: A Guide to Patient Assessment, Treatment Selection, and Multidisciplinary Collaboration ...
1:22:08
1:22:08
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1
Sandip Patel, MD - Illuminating the Path With Immunotherapy for Metastatic, Locally Advanced, and Early-Stage NSCLC: A Guide to Patient Assessment, Treatment Selection, and Multidisciplinary Collaboration ...
1:22:09
1:22:09
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/AAPA/IPCE information, and to apply for credit, please visit us at PeerView.com/ZUT8…
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1
Jaime Almandoz, MD, MBA, FTOS / Safia Khan, MD - Cases in Practice: Prioritizing Weight Loss for People With Sleep Disorders and Overweight/Obesity
54:17
54:17
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC information, and to apply for credit, please visit us at PeerView.com/SRY865. CME/MOC cre…
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1
Peter Voorhees, MD - Three Rs for Modern Myeloma Care: Delivering the Right Treatment for the Right Patient at the Right Time With Antibody and BCMA Platforms
1:53:24
1:53:24
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1
Jaime Almandoz, MD, MBA, FTOS / Safia Khan, MD - Cases in Practice: Prioritizing Weight Loss for People With Sleep Disorders and Overweight/Obesity
54:56
54:56
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC information, and to apply for credit, please visit us at PeerView.com/SRY865. CME/MOC cre…
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1
021: Oncology Professional Care Conference: PPI Myths Debunked and Sam's Patient Story
32:35
32:35
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Sam presented at Oncology Professional Care conference on 22nd May 2024 and provides a rerun of those presentations in this episode. The first presentation is on patient and public involvement (PPI), including what it is, how it is done at Bowel Research UK, and debunking nine common PPI misconceptions. The second talk is based on Sam’s patient exp…
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1
Haunted by Voices: Adel’s Battle with Schizophrenia in the Middle East
1:04:40
1:04:40
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What happens when your family thinks you're haunted but it's all in your head? In this powerful episode, Adel BinHdaya AlFalasi shares his deeply personal journey through mental health challenges, from hearing voices and believing he had superpowers to suffering a stroke at just 30 years old. Initially turning to video games for escape and misled b…
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