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Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
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A genetic disease Cover art photo provided by Efe Kurnaz on Unsplash: https://unsplash.com/@efekurnaz
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By Brayden and Tyler
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Podcast by Jerry Cahill
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This podcast dives deep into the risks and benefits of attempting gene therapy on cystic fibrosis patients. Listen to see the final decisions made on the matter.
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An original podcast that gets inside the heads of the Cystic Fibrosis Community to talk about all kinds of topics with respect and honesty.
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Podcast by Jerry Unplugged: A Cystic Fibrosis Podcast
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Breaking Through is a monthly narrative podcast produced by the Cystic Fibrosis Foundation's Tomorrow's Leaders group. Breaking Through is meant to help Tomorrow's Leaders members develop professionally, foster community, and learn from others through rich storytelling, while also recruiting and engaging new members.
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My name is Justin. I created this podcast to tell the life of a person with Cystic Fibrosis. I am in my late 30's and run half marathons as well as live the life as best as I can in San Diego, CA.
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A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cy ...
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When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey. We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living wit ...
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A dynamic Cystic Fibrosis Podcast, educating people on the different experiences and lives that CFers face. Discussing all sides of CF, including the fearful, the ambitious, the emotional and the challenging. A podcast that is purposely made to educate but more importantly comfort fellow CFers and support the CF community💛
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Cystic fibrosis (CF) is one of the most prevalent global congenital disorders, affecting some 70,000 individuals worldwide and 30,000 children and adults in the United States. While clinical efforts are expanding worldwide to improve diagnostic testing and treatment approaches for this progressive lung disease, targeted therapies for CF against any specific mutation remain elusive. The Cystic Fibrosis in Focus series gathers the latest information from leading medical experts devoted to adva ...
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Come tag along on this self-love exploration all while spiritually awakening! This podcast will talk about all things spiritual, conspiracy theories, and self-development through shadow work.
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Jerry Cahill used the short video format to educate and inspire people with cystic fibrosis to utilize exercise to improve health.
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ASN Podcasts serve as a connection to everything nephrology including interviews with experts and discussions about cutting-edge advances in research and care.
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A Pediatric Podcast here to feed pediatric knowledge food to your adult-sized brain hole & provide weight-based dosings of fun.
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The Choose Your Attitude® podcast is a source of inspiration and motivation for many, fueled by real stories from real people who have struggled with real challenges. Each podcast — and show guest — reminds you that no matter the challenge, you hold the power of perspective, allowing it to shift your attitude from being held down by the impossible to being propelled with the possible. No struggle is too big to impact the small choice you make of your attitude on how you approach it, all in t ...
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Bowel Sounds is a podcast on all things related to pediatric gastroenterology, hepatology, and nutrition. This podcast is brought to you by the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN).
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Radio In Vivo
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Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic. Hosted on Acast. See acast.com/privacy for more information.
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A Pediatric Podcast for Healthcare Providers
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Brought to you by the charity Bowel Research UK, here we welcome bowel cancer and bowel disease patients, researchers, healthcare professionals and carers to butt in and share their experiences. Your host is Patient and Public Involvement Manager Sam Alexandra Rose. We’re picking a topic every episode and getting to the bottom of it.
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Doctors, medical professionals and researchers from the Medical University of South Carolina will be featured weekly in a series of radio interviews on South Carolina Public Radio called Health Focus. Award winning public broadcaster Bobbi Conner will host this series of health and medical features, covering a wide array of topics. Health Focus is a production of the Medical University of South Carolina in partnership with South Carolina Public Radio.
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The Urology Care Foundation is the official foundation of the American Urological Association. We support reliable patient education on urology health issues. Learn more at UrologyHealth.org.
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Nutrition Pearls: The Pediatric GI Nutrition Podcast is brought to you by the Council for Pediatric Nutrition Professionals (CPNP), part of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN). This podcast will feature topics related to GI nutrition and information on CPNP. The podcast is supported by an educational grant from Reckitt Mead Johnson Nutrition.
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Chasing after Financial Freedom often bankrupts other parts of life. That’s why the Conscious Investor Podcast goes beyond Financial Freedom and helps investors cultivate Personal Freedom by featuring experts in the core areas of health, mindset, and investing. If you’re looking to grow financially, if you long to unleash your full potential, and build a life of meaning without bankrupting the most important parts of life then this show is for you!
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PeerView Heart, Lung & Blood CME/CNE/CPE Audio Podcast
PVI, PeerView Institute for Medical Education
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
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Cochrane produces systematic reviews which are recognized as the highest standard in evidence-based health care resources. Listen to Cochrane review authors explain in plain language the evidence and findings of their high-impact reviews. In 5 minutes or less, healthcare professionals to patients and families can understand the latest trusted evidence to help make better informed decisions.
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You're not alone on this journey, be it trying to conceive, pregnant, postpartum or wanting to relate to your own children who are now giving birth we have got a story for you. Your host Jordyn talks to Kiwi families about their experiences and brings us all together as a community, let's laugh, cry and celebrate together. Hosted on Acast. See acast.com/privacy for more information.
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PeerView Heart, Lung & Blood CME/CNE/CPE Video Podcast
PVI, PeerView Institute for Medical Education
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
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Every Monday, Antonio and Joe talk about the things that they find interesting from physics, to philosophy, to technology.
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Leeds Voices is a brand new weekly podcast brought to you by the University of Leeds. Join us as we interview some of the illustrious alumni who studied at the University of Leeds, as well as discussions with the institution's world-class researchers. Follow us on Twitter and Instagram at @leedsalumni or email us at alumni@leeds.ac.uk
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A podcast about life ups and downs and the beauty of it all. If you are looking for some real talk, about real life, with a lot of inspiration, this podcast is for you.
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Two friends who are just thinking out loud. Reddit, anonymous, true crime, mental health... We talk about it all, and we talk a lot.
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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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Podcast by Bone Banter
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Talks about nursing, health & social care, academics & study skills. A Podcast for nurses & health professionals but really, all welcome to listen!
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Providing health tips about weight loss, energy, sports performance, and psychology of motivation and achievement.
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Be inspired by Michael Banks and his guests' fascinating stories of moving from fear and crisis to a new understanding of themselves. Discover how to use pain, loss and suffering to become a wiser, better person. Explore how to reinvent your life and find more freedom, love and authenticity by learning from hard times.
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A monthly podcast from the European Respiratory Journal, summarising the research findings of a number of papers published in each issue.
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This is Imposter, Interrupted, where hard work, balance and community come together to interrupt insecurity and get us to where we aspire to be. What makes the women around me doubt themselves? What have they done to overcome that doubt? How have the women around me sought to take care of themselves, to take care of their families, and to have fun, all without spreading themselves too thin? What can we all learn from each other about how to better achieve work/life balance? What is work/life ...
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Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give ot ...
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Healthcare Triage is a series about healthcare hosted by Dr. Aaron Carroll who explains healthcare policy, medical research, and answers a lot of other questions you may have about medicine, health, and healthcare.
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Ep515 From Cystic Fibrosis and NFL Stardom to Inspiring Resilience: Mike Pawlawski Journey of Overcoming Adversity
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Celebrate an awe-inspiring milestone with us as we welcome Mike, a former NFL star turned motivational powerhouse, on this special episode of the Conscious Investor Podcast. Mike's journey from a childhood defined by cystic fibrosis to an 11-year career in professional football is nothing short of extraordinary. Hear how a seemingly simple moment a…
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CFTR correctors, a therapy for cystic fibrosis targeted at specific variants (most commonly F508del)
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Recent developments in treatment for cystic fibrosis have targeted the underlying genetic defect and these have been life-changing for some patients. Kevin Southern from Alder Hey Children’s Hospital in the UK is an Editor for the Cochrane Cystic Fibrosis Group and an author of the updated review of these corrective therapies, which was published i…
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New breakthrough treatments for cystic fibrosis
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This week Bobbi Conner talks with MUSC's Dr. Patrick Flume about new breakthrough treatments for cystic fibrosis.By Bobbi Conner
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S6 Ep115: Pneumonia, Cystic Fibrosis & Obstructive Sleep Apnea: Rapid Review (FFTC)
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Recap and review the top pearls from episodes #1 (AND #100) Cystic Fibrosis, #11 Pneumonia, and #104 Obstructive Sleep Apnea with a few members of our production team! It’s Fables from the Cribside! (FFTC), our series providing a rapid review of recent Cribsiders episodes for your spaced learning.By The Cribsiders
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Ep517 From Corporate to Real Estate: Strategies for Success with Jay
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Unlock the secrets to transitioning from a corporate career to successful real estate investing with our guest, Jay, on this episode of the Conscious Investor. Jay's journey from Microsoft to real estate is nothing short of inspirational, and he’s here to reveal how treating real estate as a business can set you up for success. Drawing on his engin…
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S6 Ep118: Even MORE Bananas, B-A-N-A-N-A-S: Hyperkalemia in CKD
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PART 2. In our last episode, we discussed hyperkalemia management in an otherwise renally healthy patient. But what if your patient has chronic kidney disease? Are they okay if their potassium has been 5.9 for a long time? How does our management change? Nephrologist Dr. Jordan Symons returns to offer his advice on outpatient and inpatient manageme…
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Episode 21 - Alyson Lawrence - TPN 101
1:11:33
1:11:33
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In this episode of Nutrition Pearls: the Podcast, co-hosts Bailey Koch and Melissa Talley speak with Alyson Lawrence, about common TPN questions, controversies, and topics that the GI dietitian would commonly see. Alyson Lawrence, RD, CNSC is a neonatal dietitian at CHOC Children’s Hospital in Orange, CA. She completed her dietetic internship throu…
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P. Barton Duell, MD - Lipid Management Beyond Statins: Early Screening, Prompt Intervention, and Timely Intensification With PCSK9-Targeted Therapies
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME information, and to apply for credit, please visit us at PeerView.com/QMF865. CME credit will…
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P. Barton Duell, MD - Lipid Management Beyond Statins: Early Screening, Prompt Intervention, and Timely Intensification With PCSK9-Targeted Therapies
48:07
48:07
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME information, and to apply for credit, please visit us at PeerView.com/QMF865. CME credit will…
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Ever wondered why you keep putting off that big decision or goal? Imagine my friend "Super Rad Steve," who delayed launching his podcast and felt stuck while opportunities slipped by. Join me, Julie Holly, as I uncover the hidden costs of procrastination and share how taking immediate action can dramatically transform your life. Through personal an…
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This week Bobbi Conner talks with Dr. Minoo Kavarana about pediatric heart transplantation. Dr. Kavarana is Chief of Pediatric Cardiothoracic Surgery & Surgical Director of Pediatric Heart Transplantation at MUSC Shawn Jenkins Children’s Hospital.By Bobbi Conner
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Send us a Text Message. Come Down the rabbit hole of the "What if game" with me. My daughter was in a but "what if" mood asking me a ton of questions and it got me thinking about the "what if" possibilities. Thanks for Listening! Follow for more awesome content @intotheshadowswithjordanBy Jordan
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024: Big Bowel Event 2023: PaRT Life
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Sam rewinds to last year’s Big Bowel Event, resharing a session called PaRT Life. In this session, three members of the PaRT network discussed their patient experiences and their experiences of getting involved in research. The members are Steve Clark, Alicia Cropley, and Nigel Horwood. Sam also provides details on the upcoming Big Bowel Event 2024…
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S6 Ep117: This Lab is Bananas, B-A-N-A-N-A-S: Hyperkalemia in the Acute Setting
1:06:25
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We’ve all been there - you’re woken up by a critical page and a bright red potassium number blares at you from the computer screen. How do you make sense of the number? What does it mean for a potassium to be hemolyzed? And what are the steps to treating it? Dr. Jordan Symons (Seattle), walks us through all this and more as we learn all about hyper…
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Are stem cells taken from a person's bone marrow and delivered to their heart a safe and effective treatment following a heart attack?
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Among the 20 or so Cochrane reviews of treatments for myocardial infarction is one that reached its third update in August 2024. It looks at the effects of stem cells, and we asked new lead author, Peter-Paul Zwetsloot from University Medical Centre Utrecht in the Netherlands to tell us about the importance of the review and the latest findings.…
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Alternative ways to organise delivery of health care to older adults living in aged care facilities
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The Cochrane Library contains several reviews on the effects of different ways of organising and delivering medical care. One of these reviews, published in March 2024, summarises the evidence on models for delivering medical care to older adults living in residential aged care facilities. In this podcast, Liesl Grobler talks with lead author, Poli…
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This week Bobbi Conner talks with Dr. Christine Cooper about lifestyle routines that help reduce the risk of dementia. Dr. Cooper is an Assistant Professor in the College of Medicine and a neurologist specializing in movement disorders at MUSC.By Bobbi Conner
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What if you could take control of your burnout and transform it into a source of strength and clarity? Join me, Julie Holly, on the Conscious Investor Podcast as we explore the multifaceted effects of burnout on our careers, relationships, and personal routines. Discover actionable strategies to prevent and cure burnout, and hear about the upcoming…
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Jose Garza - Managing Bloating and Excessive Belching
1:17:12
1:17:12
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Dr. Jose Garza speaks to Drs. Temara Hajjat and Jason Silverman on how to manage bloating and belching in pediatric patients. Dr. Garza is a pediatric gastroenterologist who specializes in neurogastroenterology and motility at GI Care for Kids. Dr. Garza is an adjunct assistant professor in the Department of Pediatrics at Emory University School of…
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This week Bobbi Conner talks with Dr. Rebeca Castellanos about coping with grief. Dr. Castellanos is a clinical psychologist and an Assistant Professor of Psychiatry and Behavioral Sciences at MUSC.By Bobbi Conner
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Ep513 Mandy's Journey From 9-to-5 to Thriving Investor
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Unlock the secrets to accelerating your financial growth with multifamily apartment investor Mandy, who shares her transformative journey from a 9-to-5 job to thriving in real estate and business acquisition. Influenced by "The Surrender Experiment," Mandy explains how pivoting from real estate alone to including business investments can significan…
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All Eyes on FY2025 Congressional Funding (Policy Update July 2024)
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Hosts Tod Ibrahim and David White are joined by colleague Zach Kribs to provide an update on the status of Congressional funding legislation and ASN's advocacy priorities. This episode mainly focuses on the House Appropriations Committee.By American Society of Nephrology
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Anna, Ziggy + Ardie - SGA babies, Positive Induction Births, Postpartum Mental Health
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This episode of Kiwi Birth Tales is proudly brought to you by the InfaGroup who make my favourite Carseats for children. In this episode of Kiwi Birth Tales, I speak to Anna. Some of the topics we cover: SGA babies Induction Births Your Birth Project Hypnobirthing Course PICU Breastfeeding challenges Postpartum Depression Please seek support for an…
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Do bone-modifying medicines help reduce bone loss in women with early or locally advanced breast cancer?
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Cochrane has produced several systematic reviews that assess the potential benefits and harms of medicine that might help to prevent bone loss in people with breast cancer. In this podcast, Claire Iannizzi talks with lead author Anne Adams, both from the University Hospital Cologne in Germany, about a review of different bone-modifying agents for r…
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Recognizing symptoms and seeking treatment for heat-related illness
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This week Bobbi Conner talks with MUSC's Dr. Elisha Brownfield about recognizing symptoms and seeking treatment for heat stroke and heat exhaustion.By Bobbi Conner
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Are you ready to break free from the sneaky grip of the victim mindset? Join me, Julie Holly, on the Conscious Investor Podcast as we uncover the crucial importance of personal responsibility and mental resilience. Drawing inspiration from the ancient wisdom of Marcus Aurelius, we'll explore how owning our actions—whether they lead to success or di…
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Transoral robotic surgery for head and neck cancer
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This week Bobbi Conner talks with MUSC's Dr. Alexandra Kejner about the increasing use of transoral robotic surgery for head and neck cancer.By Bobbi Conner
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Special Episode: Jeannie Huang and Maria Oliva-Hemker - Meet the Candidates
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In a special bonus episode of Bowel Sounds, hosts Dr. Peter Lu and Dr. Jason Silverman talk to the two candidates for the current election for NASPGHAN President-Elect, Dr. Jeannie Huang and Dr. Maria Oliva-Hemker. Instead of our usual format of reviewing a medical topic, we ask them to talk a little about themselves, the role NASPGHAN has played i…
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Send us a Text Message. Thanks for Listening! Follow for more awesome content @intotheshadowswithjordanBy Jordan
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Ep511 The Impact of Robust Legal Systems in Developing Countries With Julia Cartwright
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Discover how robust legal systems can transform developing economies with our insightful conversation featuring Julia Cartwright, an economics professor at Kalamazoo College. As a key player in the Sudra Global Justice Program, Julia shares her firsthand experiences working in Uganda and Rwanda to strengthen their legal foundations. Learn why a str…
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Uncertainty in Medical Providers - PediaCast CME 100
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Drs Alex Rakowsky, Claire Stewart, Anna Kerr, and Charee Thompson visit the studio as we consider uncertainty in medical providers. Uncertainty may appear troubling at first glance, but recognizing and managing uncertainty leads to professional growth and improved outcomes. Tune in to learn more!By Dr Mike Patrick
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023: Spread of Bowel Cancer to the Peritoneum Part 2
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In the second of this two-part series on the spread of bowel cancer to the peritoneum, Sam is joined by Becky Maskill and Rebecca (Bex) Halstead. Becky has experience of peritoneal metastases, and Bex is Lead Colorectal/Peritoneal Tumour Clinical Nurse Specialist at The Christie NHS Foundation Trust. Becky tells her patient story, Bex explains what…
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In this episode, pediatric nephrologist Dr. Myda Khalid (Indiana) teaches us about hemolytic uremic syndrome. Join us as we learn about the clinical manifestations of HUS, different methods for stool testing, and the role of interventions including fluids, transfusions, and renal replacement therapy.…
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Praveen Akuthota, MD - Recognizing the Burden of Patients Living With EGPA: An Exploration of Best Practices in Diagnosis and Treatment in the Context of a Multidisciplinary Approach
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC information, and to apply for credit, please visit us at PeerView.com/TTA865. CME/MOC cre…
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1
Praveen Akuthota, MD - Recognizing the Burden of Patients Living With EGPA: An Exploration of Best Practices in Diagnosis and Treatment in the Context of a Multidisciplinary Approach
1:01:22
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC information, and to apply for credit, please visit us at PeerView.com/TTA865. CME/MOC cre…
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Imagine feeling forever young, both in mind and body. This episode of the Conscious Investor Podcast is all about uncovering the secrets to maintaining a youthful spirit. Join me, Julie Holly, as I share personal stories, like the simple joy of building Legos with my son, to illustrate how nurturing our inner selves is crucial to a fulfilling life.…
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Biomarker testing for targeted lung cancer treatment
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This week Bobbi Conner talks with MUSC's Dr. Adam Fox about biomarker testing for targeted lung cancer treatmentBy Bobbi Conner
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Brian McFerron - EI in GI: Emotional Intelligence in Training and Your Career
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Are you emotionally intelligent? In this new episode Drs. Temara Hajjat and Jason Silverman sit down with Dr. Brian McFerron to review what emotional intelligence is, and how it applies to medical training, healthcare practitioners and everyone as individuals. We also discuss ways to improve and resources to consider. Dr. McFerron is the Director o…
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Ticiana Leal, MD - Achieving Optimal SCLC Care With Established and Innovative Therapies: Latest Evidence, Key Ongoing Trials, and Practical Considerations for Real-World Practice
1:27:09
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/AAPA/IPCE information, and to apply for credit, please visit us at PeerView.com/HXN8…
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Ticiana Leal, MD - Achieving Optimal SCLC Care With Established and Innovative Therapies: Latest Evidence, Key Ongoing Trials, and Practical Considerations for Real-World Practice
1:27:09
1:27:09
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This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups. For the full presentation, downloadable Practice Aids, slides, and complete CME/MOC/NCPD/AAPA/IPCE information, and to apply for credit, please visit us at PeerView.com/HXN8…
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The Grateful Game with Bladder Cancer Survivor, Margo
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Our guest is an incredible woman and bladder cancer survivor, Margo. In this episode, Margo details her battle with cancer, the loneliness she felt during treatment and how gratitude pulled her out of the dark. Keep listening to hear Margo share her inspiring story.For more information, please visit www.UrologyHealth.org and don’t forget to subscri…
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Ep509 Embracing Discomfort for Radical Transformation with Dane Sanders
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Imagine waking up from a life of autopilot, fully embracing the present, and transforming every aspect of your existence. In our latest episode, we promise to guide you through the journey of conscious and intentional living. Join us and our guest, Dane, as we navigate the metaphor of freeze tag, illustrating how being 'frozen' can be the catalyst …
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This week Bobbi Conner talks with Dr. Rebecca Kilpatrick about navigating caregiver burnout.By Bobbi Conner
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Can fear actually be your greatest ally? Join me, Julie Holly, on this week's Conscious Investor, where I share my personal journey of facing fear head-on and redefining what it means to live a fulfilling life. We unpack the misconception that financial freedom equates to true happiness and explore how stepping out of our comfort zones can lead to …
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