Best Longhauler Podcasts (2024)

1
128 - Nigel McCracken & Sean Knight - Research into T-Cell Exhaustion 51:27

2h ago51:27

51:27

Episode 128 of the Long Covid Podcast is a chat with Nigel McCracken, COO of Virax Biolabs & Sean Knight, Clinical research fellow at the University of Manchester. Nigel and Sean are working together in collaboration on a study to dive deeper into T-Cell exhaustion in people with Long Covid. We take a deep dive into T-Cells, immunology and the ques…

1
127 - Rachael's Long Covid Recovery Story 46:49

7d ago46:49

46:49

Episode 127 of the Long Covid Podcast is a chat with Rachael Heath-Porsz about her recovery from Long Covid! We chat through her experience - the things that helped, the things that didn't and what life looks like now. We also chat a bit about what Rachael is doing now - helping people with Long Covid to return to movement in a safe & supported way…

1
126 - Joshua Roman talks about Long Covid, Music, Vulnerability & Connection 46:09

21d ago46:09

46:09

Episode 126 of the Long Covid Podcast is a chat with Joshua Roman - Cellist, Composer & Curator, as well as Longhauler. We chat through some of the things that he experienced, learned and some of the incredibly inspiring work he is now doing to help others with Long Covid as well as heal himself. Links: Joshua Roman Website "Immunity" Project Your …

1
125 - Peter Burt - Man Stuck on Desert Island! 55:46

28d ago55:46

55:46

Episode 125 of the Long Covid Podcast is a chat with Peter Burt. Peter has found himself "washed up on a desert island" after floating around in the sea of Long Covid for a couple of years. We talk through a lot of fascinasting stuff, the idea of "not feeling like a man" and how difficult but extremely important it is to ask for help - and then rec…

1
124 - Dr Elizabeth So - East Asian Medicine & Acupuncture 57:52

1M ago57:52

57:52

Episode 124 of the Long Covid Podcast is a chat with Dr Elizabeth So about East Asian Medicine. We take a deep dive into what EAM is and some of the background to it, as well as how it can help with conditions such as Long Covid - and why! This was such a fascinating discussion - we could have carried on for hours - and one of the biggest takeaways…

1
123 - Jackie's Reflections on 4 years since "The Beginning" & Long Covid Awareness Day 17:35

1M ago17:35

17:35

Episode 123 of the Long Covid Podcast falls on Long Covid Awareness Day, and also 4 years since I first became unwell. This is my reflections on the last 4 years - Long Covid & beyond. I also did a video for youtube which might be of interest here Episode 94 - my recovery story Support the Show. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~…

1
122 - Professor Louise Cummings - Research into Cognitive & Linguistic Difficulties in Long Covid 52:35

2M ago52:35

52:35

Episode 122 of the Long Covid Podcast welcomes back the wonderful Professor Louise Cummings to talk about her follow-up study into the cognitive & linguistic difficulties in adults with Long Covid and also looking at employment outcomes for those people. This is a hugely enlightening discussion, covering a lot of information - I hope you enjoy it a…

1
121 - Pamela Rose - Difficult Conversations in Chronic Illness 54:16

2M ago54:16

54:16

Episode 121 of the Long Covid Podcast is a chat with Fatigue Coach Pamela Rose about those difficult conversations that can come up time and time again. We chat through some of her experiences and how they have led her to be able to work with & help people. And we also dive into those difficult conversations - which ones tend to come up most often,…

1
120 - Dr Mark Faghy - Research update & first Long Covid anti-viral trial in UK! 55:33

2M ago55:33

55:33

Episode 120 of the Long Covid Podcast welcomes the wonderful Dr Mark Faghy back to the podcast for a long awaited catch-up on all the research he's been involved in at Derby Uni, but also info on the first anti-viral Long Covid clinical trial - in the UK, if not the world! https://www.derby.ac.uk/research/showcase/long-covid-research/ Episode #103 …

1
119 - Daniel Gomez & Ewa Beldzik - MRI imaging study 49:22

2M ago49:22

49:22

Episode 119 of the Long Covid Podcast is a fascinating discussion with Ewa Beldzik and Daniel Gomez about the Long Covid study they are doing involving MRI and mapping the brain during tasks. We dive a load into the study and it's absolutely amazing! A link to enroll in the study And their email for any questions: MGHLCOVID@MGB.ORG For more informa…

1
118 - Dr Sarah Myhill shares her experience of treating ME/CFS & Long Covid 50:45

2M ago50:45

50:45

Episode 118 of the Long Covid Podcast is a chat with Dr Sarah Myhill about her experiences of working with people with ME/CFS and now Long Covid. We chat through her treatment protocol and some ideas to help that are practical & cheap - an important factor! Dr Myhill's website Books: - chronic fatigue book - paleoketogenic diet - ecological medicen…

1
117 - Leela O'Brien - Navigating Long Covid & finding meaning in life 47:46

3M ago47:46

47:46

Episode 117 of the Long Covid Podcast is a chat with the wonderful Leela O'Brien about her experiences with Long Covid and what she has learned about herself in the process. A big takeaway from this is the "what can we do" and that we don't need to wait to be healed before trying to find ways to enjoy life, even if they are not what we wanted or ex…

1
116 - Dr Claire Taylor - GP & expert advisor in Long Covid 51:39

3M ago51:39

51:39

Episode 116 of the Long Covid Podcast is a chat with the fabulous Dr Claire Taylor. We take a dive into her previous experience which led her to Long Covid, and also to some of the common trends & useful strategies she is seeing with her patients. Claire Taylor Twitter Claire Taylor Website Claire Taylor Instagram For more information about Long Co…

1
115 - Lauren Stiles - a deep dive into Dysautonomia Research 51:27

4M ago51:27

51:27

Episode 115 of the Long Covid Podcast welcomes back CEO of Dysautonomia International Lauren Stiles to chat about research into Dysautonomia, and how this is relevant to Long Covid. This is a fascinating discussion, which dives back into research pre-Covid that is (or should be) informing research happening now. We also take a look at trials and st…

1
114 - Sarah's story of Long Covid Recovery 54:48

4M ago54:48

54:48

Episode 114 of the Long Covid Podcast is a chat with Sarah about her recovery from Long Covid. Sarah is a yoga teacher who is now teaching yoga classes to help people with Long Covid, as well as running her own podcast focused on recovery stories. We chat through Sarah's experiences, what helped her to recover and what life looks like now. http://w…

1
113 - Long Covid Creativity 2023 51:14

4M ago51:14

51:14

Episode 113 of the Long Covid Podcast is an incredible showcase of creativity inspired by Long Covid. These wonderful talented people have shared so many different varieties of creativity and it was such a joy to witness. Links to all the participants are below - please do check them out - and all the visual elements - paintings, collages, crochet …

1
112 - 2023 Reflections 21:05

4M ago21:05

21:05

Episode 112 of the Long Covid Podcast is my 2023 reflections. A lot of look back on, be grateful for and certainly a lot that I've noticed - about myself and the world! Of course this isn't medical advice - just my own observations. Links mentioned: Episode 94 - my recovery story Last year's episode - 2022 Reflections More info about Breathing for …

1
111 - Sophie Reynolds - Recovery from ME/CFS 49:37

5M ago49:37

49:37

Episode 111 of the Long Covid Podcast is a chat with Sophie Reynolds who has recovered from ME/CFS and is now using her experiences to help people through Pilates, which was one of the things that helped her so much. We chat through her experiences as well as what helped, and what she has learned from the experience to take forward into her life no…

1
110 - Lisa, Gina & Hannah from Patient-Led Research Collaborative 51:11

5M ago51:11

51:11

Episode 110 of the Long Covid Podcast is a chat with Lisa McCorkell, Gina Assaf & Hannah Davis, co-leads & co-founders of the Patient-Led Research Collaborative. We chat about how Long Covid & the Body Politic Slack community brought them all together, and how the organisation has progressed and flourished from there. Website: patientledresearch.co…

1
109 - Julie Black - Long Covid recovery 58:32

5M ago58:32

58:32

Episode 109 of the Long Covid podcast is a chat with Julie Black about her recovery from Long Covid. We speak through her illness, what she found that helped as well as other observations she has. As with all recovery stories - this is just one person's experience. No two recovery stories are likely to be carbon copies of each other. **transcript n…

1
108 - Dr Vass & Dr Vicky - Cardiologists & Long Covid Researchers 53:34

6M ago53:34

53:34

Episode 108 of the Long Covid Podcast is a chat with Cardiologists and researchers, Vassilios Vassilou & Vicky Tsampasian. We discuss cardiac-related things they have seen in Long Covid patients as well as their research into risk factors of Long Covid and why this is important. https://journals.plos.org/globalpublichealth/article?id=10.1371/journa…

1
107 - Raelan Agle - the Importance of Sharing Recovery Stories 46:33

6M ago46:33

46:33

Episode 107 of the Long Covid Podcast is a chat with the fabulous Raelan Agle who has recovered from Chronic Fatigue Syndrome and is passionate about sharing both her own recovery story and those of others. We chat through her own recovery and some of the themes and highlights of people she has spoken to on her channel. This is so full of hope and …

1
106 - Dr Taylor Krick - the Autoimmune Doc 49:43

6M ago49:43

49:43

Episode 106 of the Long Covid Podcast is a chat with Dr Taylor Krick from the Washington Wellness Centre and also the host of the "Autoimmune Doc Podcast" We chat through his experiences with patients with autoimmunity both before Covid and since Long Covid came along, as well as some of the patterns he is seeing. www.autoimmunedocpodcast.com @auto…

1
105 - Dr Calum Carson - Inclusive Remote & Hybrid Working Study 44:40

7M ago44:40

44:40

Episode 105 of the Long Covid Podcast is a chat with Dr Calum Carson, Senior Research Associate at Lancaster University about the Inclusive Remote and Hybrid Working Study which he is involved in. Participate in the study Project website Previous study The changing workplace: Enabling disability-inclusive hybrid working - Lancaster University For m…

1
104 - Alison Larkman - "I would be here if I could" 37:55

7M ago37:55

37:55

Episode 104 of the Long Covid Podcast is a chat with artist, Alison Larkman, about her project "I would be here if I could" which is currently in progress. We chat about the inspiration behind the project, and Alison's experiences with ME which really resonate throughout the project. More information, or participate! www.IWouldbeHereIfICould.com Fo…

1
103 - Dr Amy Proal - Viral Persistence in Long Covid 59:13

7M ago59:13

59:13

Episode 103 of the Long Covid Podcast is a chat with the fabulous Dr Amy Proal, a microbiologist researching viral persistence in Long Covid. We chat through what brought her to this research as well as taking a bit of a deep dive into the topic. Review Paper: https://www.nature.com/articles/s41590-023-01601-2#MOESM1 PolyBio Research Foundation rec…

1
102 - Dan Neuffer - how can ANS Rewire help in Long Covid Recovery? 1:01:53

7M ago1:01:53

1:01:53

Episode 102 of the Long Covid Podcast is a chat with Dan Neuffer about his experiences with ME/CFS and how that led him to create the ANS Rewire program. We discuss Dan's hypothesis for post viral fatigue syndrome, and how this relates to Long Covid recovery. Get Dan's free e-book Request the free intro lessons for ANS Rewire CFS Unravelled - YouTu…

1
101 - Dr Sally Riggs - Long Covid & the Nervous System 48:03

7M ago48:03

48:03

Episode 101 of the Long Covid Podcast welcomes back Dr Sally Riggs for a chat about Polyvagal theory and how this relates to Long Covid. We talk through some Polyvagal strategies that can be tried as well as Sally's personal experience. Episode #23 - Sally's previous episode More info on doing SSP with Sally Unyte ILS SSP practitioners "how to find…

1
100 - Michelle Irving - Emotional Empowerment in chronic illness 54:42

8M ago54:42

54:42

Episode 100 (yes - 100!!) of the Long Covid Podcast is a chat with the fabulous Michelle Irving, a coach working with people with chronic illness to help them to feel empowered. We talk about her own experiences with chronic conditions and how she is using them to help guide others. This is a wonderful, inspiring discussion, always focusing on what…

1
99 - Viola Sampson - Long Covid & the Microbiome 47:56

8M ago47:56

47:56

Episode 99 of the Long Covid Podcast is a chat with the fabulous Viola Sampson, microbiome analyst and certified health coach. Viola has recovered from ME after a long illness and is passionate about helping people with fatigue conditions through her knowledge of the microbiome. This is a fantastic dive into what the microbiome is, and how we might…

1
98 - Charlotte Hammond - Long Covid Recovery 41:45

8M ago41:45

41:45

Episode 98 of the Long Covid Podcast is a chat with Charlotte Hammond who is sharing her recovery story! We chat through her initial illness, symptoms, what she found that helped as well as more useful stuff for those still suffering. Charity providing counselling (UK) Dr Sinclair For more information about Long Covid Breathing, their courses, work…

1
97 - Harlan Krumholz - Listen Study & Paxlovid Trial 43:15

8M ago43:15

43:15

Episode 97 of the Long Covid Podcast is a chat with Dr Harlan Krumholz, Cardiologist, leading research scientist at Yale and also the co-lead of the Paxlovid Trial. We chat around the research into Long Covid at Yale - the Listen Study as well as the Paxlovid Trial which are collaborations with Akiko Iwasaki, as well as the way that these studies a…

1
96 - Dr Masha Makeeva - Hyperbaric Oxygen & other recovery strategies 50:05

9M ago50:05

50:05

Episode 96 of the Long Covid Podcast is a chat with Dr Masha Makeeva, Canadian Board-Certified Naturopathic Doctor, educator, and motivational speaker, but also has experience of Long Covid and other chronic conditions. We chat through her own experiences and how her knowledge as a doctor (as well as previous illness) has helped her to move towards…

1
95 - Dr Élaina Gauthier-Mamaril - "Long Covid, Zombies & Crip Prophecies" 39:17

9M ago39:17

39:17

Episode 95 of the Long Covid Podcast is a chat with the fabulous Élaina Gauthier-Mamaril, Interdisciplinary Research Fellow at the Centre for Biomedicine, Self and Society at the University of Edingurgh. She has experience of disability through ME/CFS and is also presenting part of her research at the Edinburgh Fringe this summer as a show - "Long …

1
94 - Jackie's Long Covid Recovery Story 50:22

9M ago50:22

50:22

Episode 94 of the Long Covid Podcast is a bit special - here I am handing over my hosting duties to my partner, Malky, so he can interview me about my recovery. Yes - my recovery - from Long Covid. Although it's impossible to cover everything (I've already thought of loads of things I wanted to say but forgot), hopefully we got most of the importan…

1
93 - Dr Viki Male - Research into Long Covid & Menstruation 44:46

9M ago44:46

44:46

Episode 93 of the Long Covid Podcast is a chat with Dr Viki Male who is doing research into Long Covid and menstruation, in collaboration with the app Visible, as well as the Wilco study. We chat about the 2 different studies she is involved in, and how they will hopefully bring together a load of data to give some answers. This study is a really c…

1
92 - Q&A with Dr Groysman Part 2 37:28

10M ago37:28

37:28

Epsiode 92 of the Long Covid Podcast is the second half of my question & answer session with Dr Groysman - the link to the first half is below, if you've not already heard it. If you have more questions for Dr Groysman - or indeed any of my guests - do get in touch. Dr Groysman episode on Stellate Ganglion Block Part 1 of this interview For more in…

1
91 - Q&A with Dr Groysman Part 1 48:14

10M ago48:14

48:14

Epsiode 91 of the Long Covid Podcast is a question & answer session with Dr Groysman, who you will have heard in previous episode talking about the Stellate Ganglion Block. This is part 1 of this session as it ran quite long - the link to the second half is below (or wherever you get your podcasts!) If you have more questions for Dr Groysman - or i…

1
90 - Dr James Jackson - Brain Fog, Cognitive Impairment & Brain Injury 55:14

10M ago55:14

55:14

Episode 90 of the Long Covid Podcast is a chat with Dr. James Jackson, who is a psychologist specializing in neuro psychology and rehabilitation, and an internationally renowned expert on the effects of illness, including long COVID, on cognitive and mental health functioning. This was a wonderful discussion with so much help as well as hope! Purch…

1
89 - Gina Short - Long Covid Recovery 54:10

10M ago54:10

54:10

Episode 89 of the Long Covid Podcast is a chat with Gina Short about her recovery from Long Covid. We chat through the things that helped as well as what she has learned from her experience. Suzy Bolt Rest Repair program The Fern Programme Stasis Breathing Books mentioned: The Way Out, Cured, Breaking Free For more information about Long Covid Brea…

1
88 - Dr Tania Dempsey - Chronic Disease Expert 56:26

11M ago56:26

56:26

Episode 88 of the Long Covid Podcast is a chat with Dr Tania Dempsey, expert in chronic disease and a master of finding the root cause of "mystery illnesses" We talk about her experiences both before Covid, and since with Long Covid patients. www.drtaniadempsey.com https://aimcenterpm.com/ https://aimcenterpm.com/six-surprising-places-bacteria-are-…

1
87 - Dr Mark Harper - Cold Water & Long Covid 49:42

11M ago49:42

49:42

Episode 87 of the Long Covid Podcast is a chat with Dr Mark Harper, consultant anesthetist, researcher and cold water enthusiast! We chat about cold water and all it's amazing benefits on both mind & body, as well as how you can do it safely. Chill (swims around the UK) Mark Harper website Mental Health Swims Buy Mark's book "Chill" https://blackwe…

1
86 - Harry Leeming - Visible Health 39:19

11M ago39:19

39:19

Episode 86 of the Long Covid Podcast is a chat with Harry Leeming, CEO & co-founder of Visible Health. We chat through the reasons behind Visible as well as more practically what it does & how it can benefit you! **We are aware of the latest research by PLRC, just released, on Long Covid & Menstruation which hadn't yet been published at the date of…

1
85 - Fiona Agombar - Yoga Therapy in Recovery from Long Covid 49:00

11M ago49:00

49:00

Episode 85 of the Long Covid Podcast is a chat with the fabulous Fiona Agombar, a yoga therapist, author and rest activist who specializes in teaching live online yoga for all fatigue conditions, including MECFS, exhaustion, burnout from stress, and of course, now long COVID. Restful Yoga for Fatigue with Fiona - an uplifting community page for tho…

1
84 - Caroline Pover - Spotlight on Vaccine Injuries 44:35

11M ago44:35

44:35

Episode 84 of the Long Covid Podcast is a chat with Caroline Pover and puts a bit of a spotlight on the issue of vaccine injuries. Although we don't know the full story, the vax injured seem to be close cousins of Long Covid and an issue all too often swept under the carpet. Caroline tells her story and shares a few things that have helped her. Car…

1
83 - Ryan Prior - Journalist, Producer, Author & Advocate 46:14

12M ago46:14

46:14

Episode 83 of the Long Covid Podcast is a chat with Ryan Prior, journalist, producer, author & advocate. Ryan chats about his experiences with ME and how he saw the wave of Long Covid coming long before many of us did. We chat about his thoughts on many aspects of Long Covid & chronic illness in general, as well as his new book - The Long Haul. Buy…

1
82 - Dr Jay T Wiles - Heart Rate Variability in Long Covid Recovery 52:30

12M ago52:30

52:30

Episode 82 of the Long Covid Podcast is a chat with the fabulous Dr Jay T Wiles, who is a Clinical health physiologist specialising in sports performance and holistic & integrative health. He is also board certified in biofeedback and heart rate variability biofeedback which is what we're going to be covering in this episode. We chat about what HRV…

1
81 - Dr Liza DiLeo Thomas - Patient Experience Professional & Long Hauler 45:24

1y ago45:24

45:24

Episode 81 of the Long Covid Podcast is a chat with Dr Liza DiLeo Thomas who is a Patient Experience Professional and also has Long Covid. Liza has also worked as an emergency medicine physician in New Orleans. We chat about how she has learned more about her role through experiencing an "invisible disability" such as Long Covid; seeing things thro…

1
80 - Dr Anjali Agarwal - Physio Specialising in EDS & Long Covid 46:50

1y ago46:50

46:50

Episode 80 of the Long Covid Podcast is a chat with Dr Anjali Agarwal, consultant Physiotherpist, lifestyle consultant , EDS Hypermobility-specialised Physio, Advocacy Co-Director of long covid physio & women's health specialist. We dig deep into the relationship between EDS, Long Covid, PoTS & MCAS - it's fascinating to hear how all these things c…

1
79 - Michael Towers - Chronic Fatigue Superhero 38:24

1y ago38:24

38:24

Episode 79 of the Long Covid Podcast is a chat with Michael Towers, creator of Chronic Fatigue Superhero - a series of comics depicting life with a chronic illness. We discuss the character as well as the immense amount of work that goes into making a book when you have a chronic illness. Follow Michael on Instagram Buy the book For more informatio…

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