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Connecting ALS is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.
 
We trust doctors with our lives; they are some of the most educated and well-respected members of society. But what happens if they can't diagnose a patient? This high stake medical procedural follows patients as they suffer from bizarre, often terrifying illnesses. None of which doctors learned about in medical school. Medical Mysteries is a Parcast Original, with new episodes every Tuesday.
 
Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage o ...
 
Bruce Kramer lived a remarkably rich life because of – not despite – an incurable, always fatal disease: Amyotrophic Lateral Sclerosis, or Lou Gehrig’s Disease. He was diagnosed with ALS December 6, 2010. While the disease diminished his body, it expanded his life and spirit. He shared that experience with Minnesota Public Radio News host Cathy Wurzer over nearly five year of conversations.
 
Fantasy Baseball "A star works at being a star … that’s how you tell a star in baseball. He shows up nightafter night and takes pride in how brightly he shines. He’s Wilie Mays running so hard his hat keeps falling off; Ty Cobb sliding to stretch a single into a double; Lou Gehrig, after being fooled in his first two at-bats, belting the next pitch off the light tower because he’s taken the time to study the pitcher. Stars never take themselves for granted. That’s why they’re stars." ~Jim Mu ...
 
The Help & Hope audio testimonies addresses life's darkest circumstances that are often difficult to discuss, yet need to be faced as we help one another walk by faith. These are the real-life testimonies of people who have walked through these experiences and have found their strength in Christ.
 
Award-winning host Rachel Galvin interviews filmmakers from around the world on what it takes behind the scenes to make the movie magic happen. Learn practical tips to follow and pitfalls to avoid while navigating through your cinematic climb to the top!Check out my NEW MAGAZINE at http://issuu.com/rachelgalvin/docs/independent_streak_may--Currently, on hiatus. Listen to archives for now.
 
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This week, Mike and Jeremy talk to Senator Sheldon Whitehouse of Rhode Island to look back on the passage of the ALS Disability Insurance Access Act, which ended the five-month waiting period for people with ALS to access Social Security Disability Insurance. To learn more about the role ALS advocates played in getting the ALS Disability Insurance …
 
Listen in as I chat with my joy go-to girl, Monica Scalf, founder of Crazy Grateful about what we are taking into the New Year and leaving in 2020 so that we can reclaim our MOJO in 2021. We're sharing our personal experiences and what 2020 taught us. Join our conversation by sharing what you are bringing into the new year to live joyfully. Let's s…
 
This week's episode is a replay of one of our favorites from 2020; Mike and Jeremy talk to three families who share their experiences living with ALS during the COVID-19 pandemic and how they are managing social isolation and anxiety around the coronavirus. For tips on managing stress during the COVID-19 outbreak read https://alsadotorg.wordpress.c…
 
This week, we are joined by Lori Banker-Horner, The ALS Association’s director of clinical programs and Leslie Ryan, the Association’s director of education and professional development programs, to reflect on the delivery of clinical care in 2020 and to look ahead to the coming year. For more information on COVID-19 vaccines for people with ALS go…
 
This week, Mike and Jeremy are joined by Abram Bieliauskas, associate director of government affairs at The ALS Association, to reflect on some big wins for ALS advocates in 2020 and to look ahead at the fights to come in 2021. Check out The ALS Association COVID-19 vaccine information hub at https://www.als.org/navigating-als/living-with-als/covid…
 
The week the Covid sheltering in place began, Barbara Thompson and her husband, Mark, moved from Louisiana, where they had lived for most of their lives, to Mississippi. Barbara and Mark desire is to finish and age with grace. They now live near their son and his family. Caregiving for Barbara’s parents was a ministry priority until her mother and …
 
This week, Mike and Jeremy are joined by Dr. Clifton Gooch, chair of the University of South Florida’s Department of Neurology and a member of The ALS Association’s national board of trustees. Dr. Gooch takes us through the latest news on the COVID-19 vaccines, explains their safety and efficacy, and talks about what they mean for people with ALS. …
 
Here I chat with Brian Cuban, the younger brother of Dallas Mavericks owner and entrepreneur Mark Cuban. Brian is a Dallas based attorney, author and addiction recovery advocate. Brian shares his intimate life with addiction and eating disorders in hopes of inspiring others. He has been in long term recovery from alcohol, cocaine and bulimia since …
 
This week Mike and Jeremy are joined by Dr. Jill Yersak, vice president of mission strategy at The ALS Association, who walks us through some of the highlights in ALS research from 2020, how ALS researchers persevered through the pandemic, and what has her excited heading into 2021. For more information about research funded by The ALS Association,…
 
This is the story of Harry Agganis - The Golden Greek. #Boston #RedSox #Terriers #tragedy #MLB Sources: https://www.baseball-almanac.com/deaths/harry_agganis_obituary.shtml https://www.findagrave.com/memorial/3608/harry-agganis https://sabr.org/bioproj/person/harry-agganis/ https://lynnjournal.com/2018/06/28/harry-agganis-story-reads-like-a-greek-m…
 
Today we’re bringing you a special two-part episode from another Spotify Original from Parcast. If you enjoy it, check out Cults on Spotify, or wherever you listen to podcasts! John Alexander Dowie was a discontented minister who rose to become a leading figure in Australia’s faith healer movement. The ambitious preacher railed against modern medic…
 
Today we’re bringing you a special two-part episode from another Spotify Original from Parcast. If you enjoy it, check out Cults on Spotify, or wherever you listen to podcasts! John Alexander Dowie was a discontented minister who rose to become a leading figure in Australia’s faith healer movement. The ambitious preacher railed against modern medic…
 
This is one of the sweetest stories to come out of the 2020 pandemic. In this heartwarming episode, I chat with Nina Ambrose, who like many was devastated when lockdown rules prevented her from seeing her dad Roger, 77, who moved into a care home in January. After being furloughed from her job, Nina took on a volunteer position at the care home so …
 
This week, Mike and Jeremy are joined by Sen. Lisa Murkowski (R-Alaska), to discuss the ACT for ALS bill, the Senate’s push to double funding for the ALS Research Program at the Department of Defense to $40 million, and why she became a leader in the fight against ALS. To learn more about ACT for ALS, go to https://www.als.org/stories-news/strength…
 
In this conversation with Sharon Betters, Miho Kahn and her husband share the story of Miho’s journey into a world of drugs, violence and abuse. At the age of fourteen, Miho pushed against the boundaries of her parents’ quiet life and struck out on her own, telling her sister, “Don’t try to find me.” As you listen, you might think, “This story coul…
 
This week, Mike and Jeremy honor Veteran’s Day by talking to John Hartwell, who reflects on his military service and living with ALS during a pandemic. To learn more about the connection between military service and ALS, go to https://www.als.org/navigating-als/military-veterans This episode was produced by Garrett Tiedemann and is brought to you b…
 
The life and career of Fred Hutchinson #Tigers #Reds #MLB #WWII #Cardinals #Detroit #Cincinnati #Rainiers #HutchAward Sources: https://tht.fangraphs.com/the-final-year-of-fred-hutchinsons-life/ https://www.lookoutlanding.com/2019/7/5/20682442/how-fred-hutchinson-saved-baseball-in-seattle-mariners https://www.baseball-almanac.com/players/player.php?…
 
In this Veteran's Day episode, I talk to two military veterans as they share what is getting them through their greatest battle yet - ALS. Military veterans in the US are twice as likely to develop ALS - a fatal disease with no cure. Chuck Schretzman and Tony Vick are two soldiers living with this horrific disease. Here I chat with Chuck, Tony and …
 
This week, Mike and Jeremy kick off Family Caregivers Month with Grace Whiting, president and CEO of the National Alliance for Caregiving. Grace shares insight from the Alliance’s Caregiving in the U.S. 2020 report and reflects upon caregiving during the COVID-19 pandemic. To learn more about ALS caregivers, read https://www.als.org/stories-news/jo…
 
This week Mike and Jeremy commemorate Respiratory Care Week by welcoming back Dr. Lou Libby, a practicing physician with Oregon Clinic and the lead Pulmonologist at The Providence ALS Center. Dr. Libby, a member of The ALS Association’s national board of trustees, catches us up on the latest in respiratory health and the impact of the ongoing COVID…
 
In the closing days of the 2020 election, Mike and Jeremy are joined by Lee Page, senior associate director of advocacy at Paralyzed Veterans of America, who provides guidance on casting in-person votes while dealing with mobility challenges and a global pandemic. For more information about Paralyzed Veterans of America, go to https://pva.org/ Chec…
 
Listen in on my chat with two young men 29 and 32, who already know an ALS diagnosis will be in their future. Hear their unique perspectives on life as they know a terminal illness is coming. Daniel Barvin and Tucker Olson both made the decision to do genetic testing and have tested positive to a familial ALS genetic mutation. These guys open their…
 
This week, Mike and Jeremy talk to Dr. Sabrina Paganoni, co-director of MGH Neurological Clinical Research Institute and principal investigator of the CENTAUR trial evaluating the effects of Amylyx Pharmaceutical’s AMX0035 on people living with ALS. Dr. Paganoni explains the results of that study, which were published in the October edition of Musc…
 
Eddie Gaedel, a little person known for a string of celebrity gigs, became a participant in one of the most outlandish publicity stunts in baseball history, when in 1951, he came to bat for the hapless St. Louis Browns. Although Eddie gained a great deal of notoriety for the stunt, a few years later, he was the victim of a murder that remains unsol…
 
Pam Benton started noticing small changes in her pastor husband. Though Wilson had retired, he had agreed to serve as interim pastor in another church for eighteen months. Eighteen months turned into five years. Pam’s concerns grew when Wilson started using notes for his sermons. Since both of their mothers had Alzheimers, Pam and Wilson did not he…
 
On this week's episode we welcome in the hosts of the podcast Born 2 Battle, Chris Beckette and Nathaniel Palone, to discuss the origin of their show and their plans to continue raising awareness for ALS. You can find Born 2 Battle wherever you listen to podcasts or directly on Chris' website, https://www.beckettesbattle.com/ To learn more about Ch…
 
I chat with Becky Curran Kekula who is finding ways to change how little people and all people with disabilities are perceived in the media, corporations and everywhere. Becky also happens to be a little person who is proud to identify as part of the disability community. Hear how Becky’s life working at the worlds leading entertainment industry to…
 
To kick off National Physical Therapy Month, Mike and Jeremy are joined by Dr. Shannon Terrell, a physical therapist at Kaiser Permanente Skyline Medical Offices in Colorado. Dr. Terrell lays out the role a physical therapist plays in an ALS clinical environment and discusses how the practice is embracing expanded access to telemedicine. For more i…
 
Yankee legend Lou Gehrig. The Dead Ball Podcast is created by Tim Scott. This week’s episode was written by Nina Innsted and Tim Scott. Chuck Walters is our technical consultant and audio editor. If you’re enjoying the podcast, take a moment to leave a rating or review on your favorite pod catcher, it helps other baseball lovers find the show and t…
 
This week, Mike and Jeremy chat with ALS advocate Sunny Brous, who shares how she finds hope and maintains connections during what has been a rollercoaster of a year. To learn more about Sunny's journey, visit her website at https://sunnystrong.com/ And follow her on Instagram @sunnystrongals This episode was produced by Garrett Tiedemann and is br…
 
You don't wanna miss my chat with this 36 year old who has experienced so much loss yet has gained such a valuable perspective on life and happiness. ALS has taken her ability to talk, walk, move and breath on her own. In her book, Pursuit Of Happiness: From Heels to Wheels, Mayuri Saxena shares her five pillars of truth that she discovered in her …
 
Twenty-one surgeries by age thirteen. Years in the hospital. Verbal and physical bullying from schoolmates. Multiple miscarriages as a young wife. The death of a child. A debilitating progressive disease. Riveting pain. Abandonment. Unwanted divorce. How can one woman survive let alone thrive when she experiences such crashing waves of pain? In thi…
 
This week, Mike and Jeremy are joined by Donnie Graham and Jan Steinbock, who tell us how they are facing wildfires and a global pandemic with ALS. For more information about natural disaster preparedness, read https://www.als.org/stories-news/hurricane-season-starts-today-are-you-prepared-for-an-emergency For help building your own emergency prepa…
 
This week, Mike and Jeremy continue the discussion around Amylyx Pharmaceutical’s phase 2 clinical trial results of AMX0035, which was shown to slow down progression of ALS in trial participants. They are joined by Dr. Kuldip Dave, vice president of research at The ALS Association, to gain insight into how AMX0035 fits into the broader context of t…
 
The short life and impressive career of Roberto Clemente #Clemente #21 #Pirates #MLB #Baseball #Pittsburgh Dead Ball is created by Tim Scott. Written by Nina Innsted Researched by Haley Gray and Tim Scott. Technical Consultant/Audio production by Chuck Walters. To learn more, or talk with like minded baseball fans, join the Dead Ball Discussion Gro…
 
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