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The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation for Parkinson’s Research

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Subscribe for coverage and analysis of current neurology/brain research, patient and caregiver profiles, drug development strategy, pioneering nonprofit management and other topics of interest in a wide-ranging series of conversations that include the voices of those affected by Parkinson's as well as clinicians.
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Digital marketing and social media trends seem to change every day. It can be hard to know where to spend your time, energy, and money to make an impact. Each Wednesday, join Dana Snyder, speaker, digital strategist for nonprofits, and CEO and Founder of Positive Equation, as she interviews guests sharing real-world marketing case studies from organizations making a positive impact in the world and short-form episodes with actionable social media tips to implement right away. Whether you’re ...
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Teresa Jackson from Lean On Me Coaching, shares resources and strategies for thriving with Parkinson's. Join her and her guests to learn how to live your best life in spite of living with a chronic illness.Opinion Disclaimer:The views and opinions expressed in Parkinson’s Pathway Pals Tuesdays with Teresa, are those of the guests and do not necessarily reflect the official policy or position of Teresa Jackson and Parkinson’s Pathway Pals Tuesdays with Teresa. Any content provided by our gues ...
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Finding the right Parkinson’s treatment plan can be a trial-and-error process. The kind of medication, the dosage, the timing and lifestyle factors are all important pieces of the puzzle. In audio from this Third Thursdays Webinar, our expert panel made up of people living with Parkinson’s disease (PD), a movement disorder specialist and a research…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Could leveraging Facebook Messenger transform your nonprofit's fundraising strategy? In this episode, we sit down with Becca Lockhart and Ty Hyacinth from the Michael J. Fox Foundation to uncover the digital strategies that have catapulted …
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Get ready to unlock the secrets of nonprofit email marketing with Katelyn Baughan, a seasoned email expert who has worked with National Geographic and the Trevor Project. Katelyn and I are diving into the nuances of nurturing new email lead…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) What can we learn from the merger of two impactful nonprofits, and how can it reshape our approach to mission-driven work? Join me as we welcome back Blythe Hill, the visionary founder of Dressember, who shares the inspiring journey of her …
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Research shows mindfulness and meditation can improve some Parkinson’s (PD) symptoms and help people live a better life with the disease, but it can be tricky to put into practice. In this podcast, you’ll hear from people whose lives have been touched by PD and who use mindfulness to reduce symptoms and stress, and from a researcher who is studying…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) This week, there's another podcast I want to share with you: What the Fundraising. Mallory Erickson is talking to Caitlin Wion, a data manager at Alzheimer's San Diego. And Caitlin is revealing ALL of her automation secrets to enhance donor…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Books can spark a movement. And while I am in the midst of writing my first book (coming out in September!), I immediately knew we had to do a podcast episode about this entire process. Allison Trowbridge is the founder and CEO of Copper Bo…
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The decision-making process around deep brain stimulation (DBS) to treat Parkinson’s motor symptoms can be a complex and emotional journey. People often have questions about when – and whether – to have the procedure and what the experience is like, from the months of evaluation pre-surgery to surgery day to life with the device. In audio from this…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Is your nonprofit making the most out of email marketing in 2024? Open rates are no longer the gold standard for measuring engagement! Today we’re uncovering the secrets to successful email strategies with Scott Cohen, VP of Strategy and Ma…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Today’s case study explores how an International Women’s Day fundraising campaign empowered local communities and drove meaningful impact across 140 stores. I’m thrilled to have Amanda Young, the Marketing and Philanthropic Manager at Kendr…
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Just over a year ago, there was a major breakthrough in Parkinson’s disease (PD) research – a tool that could detect abnormal alpha-synuclein protein in the spinal fluid of people living with PD even before onset of symptoms. This discovery is already impacting the ways scientists conduct and think about Parkinson’s research. Tune into this episode…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Leveraging influential content creators, celebrities, and internet personalities, AND your board members can SIGNIFICANTLY boost awareness and fundraising for your organization. So how did the American Lung Association do it back in 2021? Y…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) What if you could turn every event you host into an unforgettable experience that leaves attendees feeling inspired and connected? I’m hanging out with Joey Goon today, President of Utopia Experience, and we’re uncovering ALL the secrets to…
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You might be interested in stepping forward for science to play a role in the next breakthrough in Parkinson’s research, but still have questions about how to actually participate. How do you pick the right study for you? How do you balance your life logistics and your medical care considerations? What rights do you have when you participate in a s…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Monthly giving is not just about a donation. It is about giving people a way to channel their purpose consistently. And in today's episode, we’re unveiling the secrets behind making compelling asks – and the most powerful strategies for rec…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) How do you magnetically attract your monthly donors? In this episode, I am diving into step three of my Monthly Giving Framework, which is all about calling in your believers. If you missed steps 1 and 2, go back and listen to Episode 131. …
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) What makes a giving program successful? Today, I’m giving you a sneak peek into the first two crucial steps from my 5-step framework (which will be featured in even more detail in my book that comes out in September!) Step 1 - Create the Pr…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) How can we make every gift transformational instead of transactional? Helen Quinn is an inspiring figure in the fundraising landscape, here to unveil how The CLEO Institute's "RISE" monthly giving program is rallying their community to face…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) How can a shift in mindset and a community of supporters revolutionize your nonprofit's funding strategies? Join me on my back patio for a candid chat about the upcoming Monthly Giving Summit on September 5th and 6th. Why is this summit imp…
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Many people living with Parkinson’s disease (PD) experience pain as a non-motor symptom. Pain can arise from stiff muscles, dystonia, nerve pain and even the disease progression itself. It’s a symptom that some find difficult to talk about, but there are options for people to find relief. In audio from this Third Thursdays webinar, listen to our ex…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) You have a monthly giving program… now what? Today’s episode will help you transform everyday community engagement into a powerhouse of support for your cause. Emily Teixeria, Executive Director of Politisit, is bringing a wealth of experie…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Today’s incredible case study is all about the power of LISTENING, with the guiding force behind Mission Partners, Carrie Fox. First, we’re going back in time as Carrie reveals the rebranding genesis of the Public Health Communications Coll…
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In this episode, hosted by Larry and Rebecca Gifford, members of The Michael J. Fox Foundation’s Patient Council and their care partners share their honest reactions to their diagnosis — from panic and denial to sadness and loneliness. This group of men and women of different ages and backgrounds offers words of wisdom about what to consider, what …
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) The research is jarring. We spend upwards of five to seven hours a day on social media. But when women leave Instagram and TikTok, they generally feel worse about themselves. Imagine a world where scrolling online leaves you invigorated, ra…
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In this raw and emotional conversation, four women with Parkinson’s living in four different countries discuss the challenges faced because of delayed diagnosis, hormonal changes, lack of information and treatment, research inequity and gender biases. They share how they live better with the disease by advocating for themselves with their health ca…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Gloria Umanah created a movement when she founded Hope Booth – shifting from dynamic event planning, to providing a beacon of hope to those facing loneliness during the 2020 pandemic. The Hope Booth remodels old telephone booths and provide…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) How can earned media create viral moments and drive impact? Today, we’re dissecting the evolution of earned media and how to measure success in the digital realm, especially for nonprofits. And there’s no one better to team up with for this…
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Join me as I speak with a panel of guests today including Molly Cupka, the Director of Sportrock Climbing Center, Alexandria and Founder of Up Ending Parkinsons. Molly is determined to spread the addictive sport that is rock climbing throughout the Parkinsons community. In addition, Molly is also dedicated to funding research and sharing simple, ev…
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Living with Parkinson’s comes with a variety of symptoms, some of which can be unexpected, and frankly, embarrassing. Drooling, bladder issues and sexual dysfunction are hard to talk about, even with loved ones or your doctor – and can affect your self-image, your intimate relationships or the way you move through the world. In audio from this Thir…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Francesca Orsomarso’s arsenal of digital strategies flips the script on traditional recruitment. In today’s case study, we’re breaking down exactly how Upstate Cerebral Palsy attracted 2,000 qualified applicants within a few months of launc…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) If you have a controversial issue or topic that your organization focuses on, sometimes it’s difficult to figure out how to market and share your mission – especially if you're getting shut down and censored by platforms for sensitive or po…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) How can a perfectly crafted cold email turn heads in the corporate world? Today, we're diving into the secrets of strategic content with the always insightful Chris Barlow. Specifically, you’ll hear how a human trafficking nonprofit managed…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) What’s the unique approach nonprofits have when it comes to landing press opportunities? In the current media landscape, we’ve been told it’s getting harder to stand out (but it doesn’t have to be!) Danielle Finck is a seasoned PR savant an…
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The biology behind what causes Parkinson’s is complex, with only about a quarter of cases with clear genetic drivers. The environment – where you live, the air you breathe, the food you eat, the world around you – plays a key role in PD. Emerging research is showing environmental exposures to things like pesticides and pollution may interact with a…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Is it time to reimagine your donor pipeline? With a track record of doubling crowds and quadrupling donors for the California Symphony, Aubrey Bergauer has been likened to the Steve Jobs of classical music. In her tenure from 2014-2019 as E…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Impact communications is so much more than a “buzzword.” What does it actually look like in practice? Tessa Danelesko is an expert in harnessing communication for social impact. She's not only an account director at Yulu, but also the Co-Ex…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) How do you go from a transitional audience of Facebook followers to a level of deep engagement where you actually get to know them? I always love sharing interesting tech and tools, which is why I’m excited to introduce you to Nick Black an…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Celebrate with me as we mark two incredible years of Missions to Movements, and what a journey it's been! Leave a review: ratethispodcast.com/m2m I'm taking this special moment to extend my deepest thanks to you, the heartbeat of this podca…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) If you think Facebook doesn't work to acquire donors anymore, this case study with Chelsea Edwards from the Colorectal Cancer Alliance will prove you otherwise. For the past three years as the Senior Director of Peer-to-Peer Giving, Chelsea…
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The drug development pipeline is key to bringing new therapies to people with Parkinson’s disease (PD). With major breakthroughs in research in the past year, including a new biomarker for PD, The Michael J. Fox Foundation’s Parkinson’s Progression Markers Initiative (PPMI) study and other initiatives can be leveraged to create better designed tria…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Meghan Walsh from Roots Ethiopia is back to bring a fresh perspective on how my Grow Your List Ads Challenge (and a killer lead magnet) helped them bring in over 800 email subscribers at $1.93 per lead! Together, we explore the creativity a…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Do you think Facebook ads are challenging and confusing? Cassie Turczyn from the Minneapolis Heart Institute Foundation is here to guide us through her journey of conquering the complexity of paid ads, resulting in over 21,000 impressions a…
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What do Parkinson’s disease and an Ironman Triathlon have in common…Dr. Sara Whittingham Dr. Sara Whittingham is an Air Force Veteran and Anesthesiologist at Cleveland Clinic, Marymount Hospital, and clinical faculty member at Northeast Ohio Medical University. She traveled the world caring for fellow service members and patients. In Nov. 2020, at …
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Navigating the intricate dance of brand partnerships and their ability to echo our deepest values is NO small feat. Enter Eric Bigger, a reality TV personality who has pivoted towards a profound mission in healing and personal development. …
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Time Hague runs the race of his life. Tim Hague Sr. overcame the odds when he went from a diagnosis of Parkinson’s disease to winning season #1 of The Amazing Race Canada. Listen in as he shares the lessons he learned from that experience. His message is wrapped in the idea of having the strength to do your best, the courage to be content with what…
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Billy Kennedy is an American basketball coach who has a winning career spanning almost three decades. He talks candidly about his diagnosis during a career change, DBS surgery and his approach to living with Parkinson’s disease.By Teresa Jackson
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Dating and beginning new relationships with Parkinson’s involve distinct challenges, joys and fears. In this frank and funny podcast, our experts discuss how they face considerations like building and maintaining confidence, disease disclosure, and the importance of self-knowledge and self-care in new relationships. They remind us all that no matte…
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) How does a successful ad funnel thrive on Facebook and Instagram? Let's crack the code together with Jennifer Spivak, the powerhouse behind The Ad Girls Agency and a top Facebook Ads Manager to watch. Jennifer breaks down the importance of …
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I'd love to hear from you! Send me a text message here and let me know what you thought about the episode. :) Today, we're exploring the depth and responsibility of trauma-informed storytelling with Maria Bryan, who will guide us through the intricate process of sharing these sensitive narratives within the nonprofit marketing world, ensuring that …
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Have you heard that exercise may slow the progression of Parkinson’s Disease? Are you curious which types of exercise may help? Please join me as I chat with Molly Cupka, Director of Sportrock Climbing Center in Alexandria, Virginia and Founder and President of Up Ending Parkinson’s. In addition, two special guests, Teresa Bennett and Michelle Sloa…
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