Susan Geoghegan public
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We call ourselves the 4am Mom Club because more nights than not, our kids are awake at 4am. We both have very medical, complicated, rare, beautiful children. This is a podcast for medical and disability mamas (and the people who love them) who are facing a life they never expected. We share hope-filled stories of families, all shapes, colors, sizes and abilities, all in different phases of their medically complex or disabled caregiving journey. When Autumn Comes Podcast is a program of the A ...
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This week, we chat birthday parties during heat waves, the difference between a Canadian heat wave and an American heat wave, and who punched Suz. Welcome to the conversation! Links and resources: Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conversation: www.facebook.com/WhenAutumnComesSociety Follow us on Facebook: www.facebook.co…
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Five…Five feels like a milestone birthday, from when a little kid turns into, well…not a big kid, but a kid kid. Five is also creeping closer and closer to the age Benji’s sister, Lorelei, was when she gained her angel wings. Birthdays are bittersweet when your child has a terminal diagnosis. For Benji, for Mamma, this birthday is worthy of celebra…
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4AM: Celebration and Rage 4AM is back! Today we are chatting about celebrations, rage, and child proofing AirBnB’s. Welcome to the conversation! Links and resources: Follow Suz: @suzgeoghegan Follow Katrina: @kattymac Join the conversation: www.facebook.com/WhenAutumnComesSociety Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow…
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Medical motherhood can take its toll on you. The ups, the downs, the trauma, the lack of time for yourself…It is ok not to be ok. Even better, it is ok to ask for help. Today, Susan and Katrina sit down to discuss therapy. The hard, the good, their reasons for going. If you have ever been scared to ask for help, we hope this episode gives you the n…
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As we approach Father’s Day, we welcome back Daniel for what has now become his annual holiday visit to the podcast. Daniel first spoke with us in 2022. Check out the link below to give the original interview a listen, I promise it’s a good one. Since we last spoke, Daniel has been busy sharing his own story and helping other parent’s to do the sam…
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Most parents can relate to the sense of losing themselves at least a little bit to parenthood. We leave behind our hobbies and dedicate ourselves to caring for these tiny humans who have taken up residence in our lives. Medical and special needs parenthood takes that to a different level. How do we maintain ourselves in the midst of this defining t…
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For those of you who listened in on Season 5, I know you have been at the edge of your seats waiting for Season 6 to start! Season 5 sure was a nail biter, filled with exciting content. Can you sense the sarcasm? I had wonderful guests and lofty plans, but the weight of medical motherhood, running a nonprofit, and life in general certainly kept me …
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Amanda and Suz are talking about the latest encounter they have had with their amazing girls from Heaven. Links and resources: Follow Suz: @suzgeoghegan Join the conversation: https://www.facebook.com/groups/245467847367923 Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @WhenAutumnComesPodcast WAC is a progra…
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The internet is an interesting place. A place of connections, for both good and bad. A place for sharing knowledge, and a place for following people you have never met. Every now and again a creepy internet stalker turns out to be an actual really wonderful person. Every now and again, that really wonderful person turns into a friend. Enter Amanda.…
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When “they” say this journey is a rollercoaster, guys, whoever “they” are, they aren’t kidding. These past few months have brought struggles and hardship, along with moments of joy, and glimpses, twinklings, little birdies of hope. Suz is back for an update on life these days and why she has been radio silent on the podcast. In this episode, we hea…
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You’ve heard it before…medical parenting is not for the faint of heart, medical parenting is a roller coaster. With hospitalizations come tests, and fear, and pain. After discharge, the family processes everything that just happened, the “new normal”. For some, this happens frequently. How do you manage the in-between hospital time, waiting for the…
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Welcome back everyone! We are so excited for Season FIVE of When Autumn Comes! It has been a summer and we have a lot to catch up on. Today, Susan fesses up about what happened at the end of season four. Season four ended? Why yes it did, but not in the way we intended. You see, Susan has been a busy bee outside of When Autumn Comes, working on som…
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You and your child have what probably feels like a million appointments scheduled. Medical specialists, physical therapists, occupational therapists, speech therapists. All of these people are members of your team. Your child’s team. They are supposed to work with you and your child toward a common goal. But who decides what that goal is? And who d…
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With a heavy, yet resilient, heart Suz shares a letter on behalf of the Apricity Hope Project. She is explaining a recent “pivot” they are being forced to make. You can read the entire letter on our website: https://apricityhope.org/apricity-place-update/ Catch up with Suz: Instagram When Autumn Comes: WAC Instagram WAC Facebook Page WAC Society Fa…
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I know what you are doing as a caregiver is hard. So let’s take five minutes alone, in a quiet place, to just sit. Feel free to cry. Feel free to smile. Do whatever feels right for the next five minutes. Links and resources: Follow Suz: @suzgeoghegan Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @WhenAutumnC…
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Merriam-Webster defines grief as “deep and poignant distress caused by or as if by bereavement” or “trouble, annoyance”. The American Psychological Association goes further to include, “Grief often includes physiological distress, separation anxiety, confusion, yearning, obsessive dwelling on the past, and apprehension about the future. Intense gri…
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Every family with medically complex children is impacted in some way by advances in medicine and therapy. Some have the benefit of recent developments. Others hope for cures and treatments on the horizon, yet just out of reach when they are needed most. At some point, do we all believe we will be the ones to finally beat the diagnosis? In this epis…
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Who knew that the moment you became a mother, your whole world would change? I suppose we all did. “They” tell you about the sleepless nights, the infinite love you will have for this new human that you are in charge of. What “they” don’t warn you about is the change in your identity. Of course, the day to day routine looks different. You have a ne…
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Welcome back. Sorry I missed you the last couple of weeks. Things got a bit hectic and I know y’all get it. So today… let’s take a mental vacation and getaway for a five minute mental break. Links and resources: Follow Suz: @suzgeoghegan Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @WhenAutumnComesPodcast W…
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Do you ever have that feeling deep in your gut that you need to check on your kid, and then they are doing something they shouldn’t be doing? Have you ever thought of someone and then the phone rang? Is this just intuition or something more? Today, we sit down with Jen. Jen shares with us her daughter Teal, and the magic within her. We discuss thei…
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With Valentine’s Day tomorrow, let’s take 5 minutes together to reflect on how amazing YOU are. As parents and caregivers of medically complex and disabled children, we are often forgotten. We spend our days telling our little loves how much they mean to us - but often no one says it back. So today, let's focus on how loved you are and how incredib…
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As caregivers we are facing waves all the time. Waves of hope. Waves of grief. Waves of joy. Waves of sadness. Today we are taking five minutes of calm together to ride the waves. Links and resources: Follow Suz: @suzgeoghegan Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @WhenAutumnComesPodcast WAC is a pro…
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We can all agree that medicine has come a long way in recent decades. Parents can now receive some diagnoses before their child is even born and receive treatments that didn’t exist prior. Within our society, though there is still a lot of work to do, there have been changes as well. In 1975, the Education for All Handicapped Children Act was signe…
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Let’s take five calming minutes together this monday. You are exactly who your child needs. But it’s also okay to take five minutes for you. Links and resources: Follow Suz: @suzgeoghegan Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @WhenAutumnComesPodcast WAC is a program of the Apricity Hope Project - a n…
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Claire is making a 4AM appearance this week. Suz asks about farming - since Claire proclaimed in the last episode that she knows very little about it and wants to do it the rest of her life… Then things get awkward when she informs us that she not only works a farm, runs a nonprofit where she sends care packages to people with chronic medical condi…
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Hey there friend! I have a question. What would it mean to you to know that there is someone out there who understands firsthand what it means to live with a chronic illness? Not only understands, but has created a project with the sole purpose of spreading joy and hope to others living with similar life long illnesses. That would be pretty awesome…
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To kick off Apricity Hope Project’s Take Five program, we are bringing it to the When Autumn Comes Podcast. Our goal is to give you five minutes, once a week, where you can just “be”. Whether you are hiding in your bathroom, listening in the car, or laying in bed pretending to be asleep… try to take five minutes for yourself this week. Links and re…
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Diane joins Suz for the kick off 4AM of Season FOUR! And it’s as random as usual. Sidenote: Do you wash your new clothes before wearing them? Links and resources: Follow Suz: @suzgeoghegan Join the conversation: https://www.facebook.com/groups/245467847367923 Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast Follow us on Instagram: @Wh…
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We’ve heard the rumors…Susan and Diane had a massive fight. Diane secretly quit the podcast. They aren’t speaking and blocked each other on social media. Are the rumors true? Have Susan and Diane had a massive breakup? Surely there is some tea to be spilled here. So what’s the deal? Today, Diane is back. It is time to dispel some rumors and catch u…
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As we wrap up a year, one of my favorite guests is back for a visit. Daniel Defabio is back on the show to catch up and tell us about his newest project - a “late night style” show for those who are part of our medically complex, disabled community. Additionally, I realized that I did not explain the changed that When Autumn Comes has faced - so I …
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We are not sponsored by Starbucks but we would be thrilled if they were interested in partnering with two exhausted medical, rare disease mamas who trive on peppermint mochas and survive on caffiene. Suz and Brittany bond over coffee during this 4AM bonus content. Links and resources: Follow Suz: @suzgeoghegan @evie.thing.setd5 on instagram Join th…
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Every one of us is special. Every one of us needs connection. When we connect with people who are “like us,” how do we find connection in rarity? Where do we go for support when we are one of a very few who share a similar story? Today, I have the pleasure of introducing you to Brittany. Brittany’s daughter Everleigh has a rare disease called SetD5…
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Hey mama. Motherhood is really really hard. Medical motherhood, foster motherhood, adoptive motherhood…motherhood in all of its many forms is hard. Regardless, every journey to motherhood is unique, and yet so very similar. What do medical motherhood and foster/adoptive motherhood have in common? We’re so glad you asked. This week’s guest, Tracy sh…
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We know that it is scary to learn that your child(ren) may need extra pieces of medical equipment to survive. Medical technology should never be positioned to us as a “last resort” when in reality it is often life saving game changers for our kids. Tia is here, sharing her family’s story. I met Tia and Hendrix when Benji and I were in the NICU and …
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Hey mama. A NICU hospital stay is like stepping into another world – one where there are a whole lot of questions. What do these medical terms mean? What are these numbers? How do you advocate for yourself and your baby? In the midst of worrying about your child's health and wellbeing, you’re wondering about all of this. It’s a lot. That’s why this…
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If you need a good chuckle, you will love today’s 4AM with my guest Olivia. We talk about a legit 4AM boob graze, strategies for wearing a bra while in the hospital, and a new nonprofit she is starting one day. Links and resources: Follow Suz: @suzgeoghegan Join the conversation: www.facebook.com/WhenAutumnComesSociety Follow us on Facebook: www.fa…
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Meet Olivia and her beautiful family. Her youngest son, Archer, was born with a slew of medical complications and was later diagnosed with not one, but two rare diseases: Kabuki Syndrome and RYR1. This family has had to make some logistical decisions, including career and geographic moves, to make sure their entire family is balancing the best way …
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We are kicking off season three just as everyone is kicking off a brand new school year! With that, our first guest is Beth Liesenfeld from the Parent IEP Lab. She is an incredible resource for parents who are navigating the school system for our medical and special needs kids. Today she breaks down a lot of information but she also invites you to …
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Thank you all so much for your patience as Suz navigated life without a computer for weeks and weeks. We are BACK and we are thrilled to be here for our third season! We have amazing, exciting, semi-terrifiying (if you’re Suz) BIG NEWS to share in this preview episode so give it a listen. Lastly we are sharing details about the upcoming (free) Pare…
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We know that traveling can be overstimulating for neurotypical individuals, but how does it affect our children who are already sensory sensitive? Amy, from Floyo Travel, is talking with Suz today about tips for traveling with the right mindset for special needs families who may struggle with sensory processing disorders. Topics discussed that you …
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Amy from Floyo Travel is opening up and sharing all of her tips and tricks when it comes to communication while on vacation. We talk about communication for our nonverbal children, but also communication roles as parents and caregivers. Topics discussed that you do not want to miss: What does it look like to work with a travel agent? Communication …
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This week Amy from Floyo Travel is sharing tips and tricks for cruise ship travel. She is also talking about traveling as a family with special dietary needs. Join her and Suz as they continue the When Summer Comes Series. We are keeping these episodes short and sweet, and packed full of travel tips for medically complex, disabled families. Topics …
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Amy from Floyo Travel is joining Suz for our When Summer Comes Series. We are keeping these episodes short and sweet, and packed full of travel tips for medically complex, disabled families. This week Amy is sharing travel tips related to mobility needs of families like ours. Topics discussed that you do not want to miss: Staycation practice Loosen…
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Amy from Floyo Travel is joining Suz for our When Autumn Comes - scratch that - When Summer Comes Series. We are keeping these episodes short and sweet, and packed full of travel tips for medically complex, disabled families. This week we are kicking things off by talking about the always important respite. Topics discussed that you do not want to …
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I cannot believe we are wrapping up season two of When Autumn Comes. This season finale episode is another “solo suz” episode where I talk about a few things that have been weighing heavy on me lately. Y’all know I struggle with the solo episodes because I prefer talking to someone directly in front of me - but it felt good to get these feelings ou…
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Remember that reading game we played in school that left you terrified and anxious? Yep - that one. Leah is here and we are talking about the game Popcorn in preparation for our WAC Summer Book Club. We are reading Leah’s book Loving You Big together! Join us! Link to sign up below. Links and resources: Sign up for the book club here: https://forms…
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Leah is back! Since we last met her, early in season one, she has released her debut memoir, Loving You Big. It is a story of beautiful, loving, chaos that so many of us can relate with and feel comfort in knowing that we are not alone in this journey. Leah and Suz are hosting the When Autumn Comes Summer Book Club together! Join us as we read Lovi…
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Happy Fathers Day to all the dads out there! This week, instead of having a mom share her story, we invited a dad to the show! Daniel introduces us to his family, he talks about what it feels like to be a rare disease father as he faces the ‘it’s not fair’ moments as well as the waves of grief. Daniel is one of the founders of the Rare Disease Film…
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Janice is back! Scroll back and listen to episode 5 called “Quarantine Blessings” to hear her full story. Today we are simply two bereaved medical, special needs moms talking about what has helped our grief journeys and what has not. Trigger warning: this episode is raw, candid and plenty of tears were shed. Topics discussed that you do not want to…
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We are chatting about camping today, as a follow up to Kristy’s episode this week. Diane shares a story about porkchop juice and Suz shares a story about stolen pretzels with cinderella birds. We also 100% recognize that maybe these stories are why we have both become glampers instead of campers… Links and resources: Follow Suz: @suzgeoghegan Follo…
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