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Olivia: Dumping The Bucket | Pivoting as a Rare Disease Family
Manage episode 343158576 series 2836113
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Meet Olivia and her beautiful family. Her youngest son, Archer, was born with a slew of medical complications and was later diagnosed with not one, but two rare diseases: Kabuki Syndrome and RYR1. This family has had to make some logistical decisions, including career and geographic moves, to make sure their entire family is balancing the best way they can.
Topics discussed that you do not want to miss:
- Two rare genetic syndromes that do not play well together
- The Teeter Totter: spouses handling tough news
- Born at the start of the pandemic… plus career shifts, and postpartum depression
- The language of trauma
- The lady in the grocery store
Links and resources:
- Learn more about Archer and Kabuki Syndrome
- WAC is a program of the Apricity Hope Project: apricityhope.org
- Freebies for you: www.SuzGeoghegan.com/Freebies
- Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast
- Join the WAC Society to talk about all things pod related: www.facebook.com/WhenAutumnComesSociety
- Follow us on Instagram: @WhenAutumnComesPodcast
- Catch up with Suz: @suzgeoghegan on insta
Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories from other members of our medical and disabled community.
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