))
Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy and idiopathic hypersomnia. Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss. Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story." Everyday ...
…
continue reading
1
Christine's Journey: Mental Health and Work Life
1:06:47
1:06:47
Play later
Play later
Lists
Like
Liked
1:06:47
Can navigating life with narcolepsy impact your mental health and career? Join us on Narcolepsy Navigators as we explore these pressing questions with our special guest, Christine from Northern Ireland. You'll hear firsthand about her journey with narcolepsy type 1 and cataplexy, and how symptoms manifest uniquely in her jaw. We share our personal …
…
continue reading
Can you imagine trying to balance parenting, a creative passion, and a chronic sleep disorder? Join us on Narcolepsy Navigators as we explore this challenging reality through the inspiring life of Katie, a 30-year-old mom from South Dakota. Diagnosed with idiopathic hypersomnia (IH) in early 2022, Katie shares her journey of self-discovery and the …
…
continue reading
1
Henry's Narcolepsy Journey: A 13-year Battle
35:49
35:49
Play later
Play later
Lists
Like
Liked
35:49
What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009. In this episode, Henry opens up about his trial-and-error process with medi…
…
continue reading
1
Adapting to the Unpredictable: Natalie's Narrative
42:00
42:00
Play later
Play later
Lists
Like
Liked
42:00
Nobody wants to embark on a journey across the turbulent seas of narcolepsy, but Natalie, a German mother and teacher, offers her moving story of doing just that. In her world, the emergence of narcolepsy in her late twenties was only the start of a journey marked by delayed diagnosis, developing cataplexy, and the struggle with ineffective sleep a…
…
continue reading
1
When Sleep Interrupts Life - Sakhara's Story
46:20
46:20
Play later
Play later
Lists
Like
Liked
46:20
Discover the untold stories of life with narcolepsy as Sakhara Johnson joins us for an intimate conversation about her journey. We peel back the curtain on her day-to-day battles, from the initial misdiagnoses and the arduous path to discovering she had severe narcolepsy, to the ongoing struggles with treatments and their impact on her personal lif…
…
continue reading
1
A Deep Dive Into Idiopathic Hypersomnia with Ross
1:07:45
1:07:45
Play later
Play later
Lists
Like
Liked
1:07:45
This has been a highly anticipated episode for us here on the Narcolepsy Navigators podcast. Our hosts Kerly and Liz, are both taking on an incredibly deep and detailed dive into what living with Idiopathic Hypersomnia is really like and what is actually the difference between narcolepsy and IH? Chapters (01:57 - 05:22) Living With Idiopathic Hyper…
…
continue reading
1
Navigating the World with Narcolepsy: Liz's Travel Tales
56:12
56:12
Play later
Play later
Lists
Like
Liked
56:12
In this engaging episode, host Kerly Bwoga chats with Liz, who shares her experiences of traveling with narcolepsy. Diagnosed at 18, Liz offers a candid look into the highs and lows of her travel adventures, providing valuable insights for anyone facing similar challenges. Chapters: Welcoming Liz and Introduction [0:00] Liz's Narcolepsy Diagnosis a…
…
continue reading
1
Meet The Host: Kerly's Narcolepsy Journey
43:23
43:23
Play later
Play later
Lists
Like
Liked
43:23
In this episode, host Kerly opens up about her narcolepsy journey. She discusses the early signs, the path to a proper diagnosis, the challenges she faced in her education, and her reasons for founding 'Narcolepsy Navigators' and 'Naps for Life'." Key Topics: Kerly's Experience with Narcolepsy and Cataplexy during Festive Seasons [0:00] The Road to…
…
continue reading
1
Understanding Narcolepsy and Idiopathic Hypersomnia: A Deep Dive with Kerly Bwoga
11:45
11:45
Play later
Play later
Lists
Like
Liked
11:45
In this episode, our host Kerly Bwoga founder of Naps for Life Narcolepsy, delves into the complexities of narcolepsy and idiopathic hypersomnia. She discusses the symptoms, diagnosis, and treatment options for these sleep disorders, and highlights their impact on daily life. Key Topics Introduction to Narcolepsy Navigators [0:10] What is Narcoleps…
…
continue reading
