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Your source for weekly kayak fishing news, education, angler interviews, and much more. Kayak Fishing Weekly is dedicated to keeping anglers informed, always learning, and highlighting those that are pushing our sport forward.
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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show series
 
On today's episode of Kayak Fishing Weekly your host Justin Largen is joined by river fishing hammer Jordan Welliver to talk about how to catch river smallmouth bass with finesse fishing techniques. Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Baits Discussed …
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In this episode of the podcast, we speak to professional speaker and community advocate Keisha Hickson, who was diagnosed with multiple myeloma in 2016. That’s a rare form of cancer that develops in a type of white blood cell called a plasma cell. We discuss navigating a rare cancer diagnosis, adjusting to a new normal and the importance of resilie…
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On today's episode of Kayak Fishing Weekly we are joined by Jake Harshman to give some river fishing power fishing tips! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Important Links: Jake's YouTube Channel: https://www.youtube.com/@JakeHarshman/featured 📌 Bait…
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This episode's guests include Dr. Tracy Dixon-Salazar, Executive Director for the Lennox-Gastaut Syndrome (LGS) Foundation, as well as Meg Alexander, Chief Strategy Officer of Ovid Therapeutics. We discuss the treatment landscape for seizure disorders such as LGS and why further research and investment is crucial. Connect with the LGS Foundation: W…
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On today's episode of Kayak Fishing Weekly we are joined by Ewing Minor & Matt Scotch to talk about big swimbait fishing from the kayak! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Important Links: Ewing's Instagram: https://www.instagram.com/ewing_minor/ Mat…
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In this episode of the podcast we sit down with Brandi Benson, a U.S. army veteran, author and patient advocate who was diagnosed with Ewing sarcoma in 2008. That’s one of rare family of cancers that develop in bones and the surrounding soft tissues. Brandi shares her story of resilience and survivorship, hoping to inspire others to share their can…
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On today's episode of Kayak Fishing Weekly we are joined by Mark Edwards to talk about finesse jigging from the kayak! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Baits Discussed (Click the link and use code SERIOUS10 for 10% off your order): War Eagle Finess…
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In this episode of the podcast we sit down with Kari Rosbeck, the president and CEO of the TSC Alliance. That’s a nonprofit dedicated to supporting people living with tuberous sclerosis complex and also driving research into promising treatment, among many other things. The TSC Alliance is also celebrating its 50th anniversary this year! Connect wi…
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On today's episode we are joined by KBF champ on Lake Chickamauga Garrett Wade! We talk about his win and how he put up some giant fish on a swimbait on the Tennessee River! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Important Links: Garrett's YouTube Channe…
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In this episode of the podcast we sit down with Ronda Thorington, the mother of child living with mixed connective tissue disease. Ronda is also a licensed professional counselor who specializes in empowering parents of children who are living with a rare or chronic diagnosis. Connect with Ronda: Website - Facebook - Instagram Editor's Note: Chroni…
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In this episode of the podcast we sit down with Murray Walz, a patient advocate who was diagnosed with the progressive lung diseases idiopathic pulmonary fibrosis (IPF) in 2019. Murray discusses the importance of support, clinical trials and why the family factor is crucial for IPF patients. Connect with the Canadian Pulmonary Fibrosis Foundation: …
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On today's episode we are joined by the first ever winner of the @KayakAdventureSeries Aaron Griffith ( @AaronsOutdoor1 ). We talk about his win and how he put up over 100" of Georgia shoal bass! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Important Links: Aa…
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On today's episode of Kayak Fishing Weekly with your host Justin Largen, we are joined by the USA Kayak Fishing Open champ, Anthony Garcia! We talk about how he came out to Lake Murray from California and won in dominating fashion! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something…
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On today's episode of Kayak Fishing Weekly with your host Justin Largen, we are joined by Bassmaster Kayak Series winner at Possum Kingdom Lake, Jason Isaacs! We talk about his win and much more. Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Baits Discussed (Cl…
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In this episode of the podcast we talk with Jennifer Angus, a patient advocate and para dressage competitor who was diagnosed with multiple sclerosis in 2014. Jennifer has long been involved with athletics having a history as a skiing instructor and is a big advocate of horseback riding as a way to heal the body and mind. Connect with Jennifer Rega…
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On today's episode of Kayak Fishing Weekly your host Justin Largen is joined by kayak angler Wyatt Hammond! One of the most underrated up and coming kayak anglers that is EXTREMELY talented. Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Important Links: Wyatt's…
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In this episode of the podcast we talk with Drs. Julie Gerberding and Courtney Silverthorn from the Foundation for the National Institutes of Health (FNIH). They're bringing us updates on the Bespoke Gene Therapy Consortium's new regulatory playbook that is designed to help get certain types of genetic therapies for rare diseases approved and avail…
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Welcome to our latest podcast episode where we dive into the exciting world of kayak fishing on a budget! 🎣 Whether you're a seasoned angler looking to switch up your game or a complete newbie eager to explore the waters, this episode is packed with valuable insights, tips, and gear recommendations to get you started without breaking the bank. Join…
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On today's episode we are joined by the Kayak Bass Fishing Champion of Lake Murray, Tim Isaacs! We talk about his winning strategy and how he approaches fishing bluegill beds with different baits and forward facing sonar! 📌 Click here to start your FREE trial of Omnia Fishing Premium PRO: https://omnia.direct/SAPremiumPRO Connect with us: 📱 Follow …
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On today's episode we are joined by the Bassmaster Kayak Series Championship WINNER at Lake Tenkiller, Drew Gregory! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Important Links: Drew's Instagram Page: Drew's Instagram: https://www.instagram.com/drewgregoryfis…
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In this episode of the podcast we talk with Kristina Robinson, a patient advocate and mother whose son, Axel, was diagnosed with hemophilia A when he was 10 months old. That’s a rare bleeding disorder, sometimes called “classic hemophilia,” that is characterized by excessive bleeding from cuts, unexplained bruising, joint swelling and more. Since h…
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This episode features Kecia Johnson, an author, music industry veteran and motivational speaker who was diagnosed with HIV/AIDS in her early 20s, and also with a rare form of stage-3 colorectal cancer at age 35. Kecia has been an outspoken patient advocate who has appeared in OutSmart Magazine, Shoutout Atlanta, many different podcasts and also a W…
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On today's episode of Kayak Fishing Weekly, host Justin Largen ( @fishes2much ) is joined by @RiverBasserDrew to talk about the upcoming Kayak Adventure Series trail and about how to catch fish shallow from the kayak! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone.…
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On today's episode, your host Justin Largen is joined by the champion of the Bassmaster Kayak series event on Lake Murray, Jake Coucoules! Jake walks us through his win and how he caught almost 100 inches on Lake Murray! 📌 Important Links: Jake's YouTube Channel: https://www.youtube.com/@UC3OI7hq2OI0kONvQ1L-D1sQ 📌 Baits Discussed (Click the link an…
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On today's episode, your host Justin Largen is joined by former co-host and 3rd place winner of the Bassmater Kayak series event on Lake Murray, Bailey Eigbrett ( @BEtheFish )! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. 📌 Important Links: Bailey's YouTube Chan…
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In this episode of the podcast, we speak with Tony Laudadio, an oncology patient advocate who was diagnosed with renal cell carcinoma and oligodendroglioma, a type of rare brain cancer. In the years after his remission, Tony also started the Tony Foundation, a non-profit that helps to support families impacted by all types of cancers with crucial f…
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On today's episode of Kayak Fishing Weekly, host Justin Largen is joined by Garrett Morgan to recap the Sam Rayburn Hobie BOS kayak bass fishing tournament and talk about whether Sam Rayburn lake may be the hottest lake in the country right now! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast…
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On today's episode of Kayak Fishing Weekly, Justin is joined by Lance McWhorter to talk about traveling on the road for kayak tournaments, the Hobie BOS upcoming on Sam Rayburn and more kayak fishing tips! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. In this epi…
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In this episode, we speak with Dr. Emil Kakkis, a physician and scientist who has spent more than 30 years helping to advance research, treatment and policy for rare disease patients. He is also the founder of both the EveryLife Foundation for Rare Diseases and Ultragenyx, a life sciences company dedicated to developing innovative treatments for ra…
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On today's episode Justin is joined by Dave Shields who placed 5th at the Hobie BOS event on the Harris Chain and talk about their event performance and of the giant bass caught at that event! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. Baits Discussed (Click t…
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On this episode of the podcast, we discuss atypical hemolytic-uremic syndrome, also known as aHUS -- a rare disorder characterized by low levels of blood platelets and blood clotting in the small blood vessels of the body. We're joined by Taylor Coffman, whose diagnosis with aHUS during pregnancy inspired her to work as a patient advocate helping t…
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On today's episode of Kayak Fishing Weekly, Justin is joined by Casey Reed to talk about fishing etiquette for kayak anglers when on the water but also at public boat ramps and much more. These are things you HAVE to know so you're not being that one person breaking an unwritten rule and making everyone else mad. Whether you're a seasoned angler lo…
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On today's episode of Kayak Fishing Weekly, Justin and Bailey sit down to talk about the three different methods of transporting a kayak (Cartop, truck bed and kayak trailer) and the pros and cons of each! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. In this epi…
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On today's episode of Kayak Fishing Weekly, we talk about some of the new rule changes to the Hobie BOS kayak fishing tournament trail as well as some winter kayak fishing tips and tricks to be safe and catch more fish! Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyon…
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On today's episode we welcome Greg Blanchard to Kayak Fishing Weekly! We talk about his OG days before YouTube, his new crazy kayak setup to help catch more fish and how expanding your bait selection can imperative to learning more and being able to adapt better to different situations. In this episode, we're covering: 🌊 Greg's confidence baits and…
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On today's episode of Kayak Fising Weekly Justin and Bailey are joined by the creek fishing master himself from Creek Fishing Adventures, John Dalton! John takes us through how he got into YouTube, how he approaches fishing creeks and how he catches fish of all species from a creek or river! John's YouTube: https://www.youtube.com/c/CreekFishingAdv…
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On today's episode of Kayak Fising Weekly Justin and Bailey are joined by arguably the best angler in kayak fishing history, Rus Snyders! We talk about how became such an diverse angler, he drops some knowledge on us for being sneaky to catch shallow water bass and even drops a big announcement on us! Whether you're a seasoned angler looking to ref…
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In observance of Alzheimer's Disease Awareness month, we sit down with patient advocate Kathi Herzog -- who was diagnosed with moderate Alzheimer's earlier this year. While not a rare condition, Alzheimer's research has informed the search for treatments in rare neurodegenerative conditions and Kathi's journey to diagosis will probably sound very f…
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On today's episode we are joined by tournament kayak angler Kristine Fischer ( @kristinefischer2289 ) to talk about her mentality in fishing, how she is so effective and she announces some HUGE plans for the future. Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. K…
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On today's episode of Kayak Fishing Weekly Justin and Bailey are recapping Justin's stellar 3rd place performance at the Hobie BOS Tournament of Champions on Lake Chickamauga. We talk about what went well, what went bad and the adjustments he made to catch more fish during this kayak fishing tournament. In this episode, we're covering: 🌊 Justin's H…
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In this episode of the podcast we discuss neuromyelitis optica spectrum disease (NMOSD), a rare autoimmune disease that effects central nervous system function and can result in symptoms such as pain, vision loss, limb weakness and numbness. Joining us are Dr. Maggie Kang and Nell Choi, mother and daughter patient advocates who talk about NMOSD and…
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On today's episode of Kayak Fishing Weekly we are joined by kayak tournament angler, Adam Riser! Adam is a wizard from the kayak and a wealth of fishing knowledge. Whether you're a seasoned angler looking to refine your skills or a newcomer eager to learn, our podcast has something for everyone. In this episode, we're covering: 🌊 Covering brand new…
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On the very first episode of Kayak Fishing Weekly, the newest show on the Serious Angler Podcast Network, Justin and Bailey introduce Kayak Fishing Weekly and what is to come for the show. In addition, they talk about the 3 reason why you should get into kayak fishing! Whether you're a seasoned angler looking to refine your skills or a newcomer eag…
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For Breast Cancer Awareness month, in this episode we're speaking with Jasmine Souers, the president and CEO of the Missing Pink Breast Cancer Alliance about some topics that aren't often covered in mainstream oncology. We discuss the individual genotypes, treatment factors and other considerations that make each case of breast cancer a "rare" expe…
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Patient Worthy's award-winning podcast is back! In this episode, we discuss Von Hippel-Lindau Disease. That's a genetic condition that causes constant tumor growth, commonly in the eyes, spine, brain and kidneys. Patient advocate Justin Corbin shares his diagnosis and treatment journey, which stretches from the 1990s today. Read more about Justin's…
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We speak to Jennifer and Chrissy from the Couraeous Parents Network, one of Patient Worthy's newest partners. CPN is a non-profit organization and educational platform that orients, empowers and accompanies families and providers caring for children with serious illness. Learn more about what they do and how you can get involved over at their websi…
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On today's episode, we sit down with two of the co-founders of GACI Global, a nonprofit organization centered around families affected by Generalized Arterial Calcification of Infancy. We also speak with the Vice President of Physician and Patient Strategies at Inozyme Pharma, which is pursuing novel therapeutics for the treatment of abnormal miner…
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Thank you for sticking with us while we took an unexpected break! We now return to our regular schedule of helping to share the stories of the rare disease community. In this week's episode, we sit down with Melissa Kennedy and Dominique Pichard of the International Rett Syndrome Foundation (IRSF). To learn more about Rett Syndrome and see how you …
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In this episode, we sit down with Tiffany Sammons and Pam Mace from our partners over at NORD to preview the upcoming Living Rare, Living Stronger Patient and Family Forum. This exciting yearly event brings together patient advocates and their families from around the world. Learn more about the Patient and Family Forum, taking place June 26 in Cle…
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In this episode, we speak with Shelley Frisbie and Dr. Kaumudi Bhawe of Cancer Commons, a non-profit dedicated to providing assistance to advanced cancer patients. We discuss why having a dedicated support team can be so helpful and why every cancer diagnosis is unique. To learn more about Cancer Commons, visit their website here. You can also conn…
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