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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
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Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.
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CRPS/RSD continues to be ranked higher than any other pain condition known to man, including childbirth and amputation, on the McGill Pain Scale! This poorly understood disease is so brutal it has earned the nickname ”The Suicide Disease”! Awareness is so important in the battle against this invisible illness! CRPS/RSD may be rare, but it is 100% REAL! You don’t have to see it to believe it! CRPS Warriors Foundation is dedicated to raising awareness and proving the undeniable legitimacy of t ...
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A rare disease mom on a mission sharing life’s chaos. In hopes to inspire others going through a tough time.
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Uplift: Inspiring Stories to Uplift the World is a show (podcast & videocast) that transcends cultures and borders to bring you the most heartwarming, uplifting, and inspiring stories from around the globe. This show was born in the mind of Sascha Gorokhoff https://saschagorokhoff.com who was born with a rare health condition that should have left him paralyzed from the waist down, mentally challenged, and dead before the age of 7 years old. He went on to become an inspirational speaker, lov ...
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This podcast is all about testicular cancer--the survivors, medical researchers, stories from caregivers, those who didn't make it, awareness advocates, and much more. It covers the whole subject with compelling stories about this cancer--which, though rare in general, is the number one cancer hitting young men. "Don't Give Up" fighting this wildfire-like form of cancer, because great strides have been made and with more awareness and effort, we can BEAT testicular cancer for good.
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This podcast is a "best of" lineup of the top posts on strugglingtothrive.com. All material except the introduction is also available on our website in written format.
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Disclaimer: Opinions shared in this podcast may not reflect the opinions of Catalyst Pharmaceuticals, Inc. Let’s talk about rare diseases. The LEMS Aware Podcast lets you hear directly from people in the Lambert-Eaton myasthenic syndrome (LEMS) and other rare disease communities on topics that matter. We talk with patients and caregivers who want to share more than their story – they want to ignite conversations about LEMS and common rare disease experiences and needs. Join us as we talk abo ...
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“Speak Up – Kōrerotia” – a radio show centred on human rights issues. Encouraging discussion on human rights issues prevalent in both Canterbury and New Zealand, Speak Up – Kōrerotia offers a forum to promote the issues facing New Zealanders, providing a voice to affected communities. Engaging in conversations around human rights issues in our country, each show covers a different human rights issue with guests from or working with the affected communities. Analysing and asking questions of ...
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Primary sclerosing cholangitis (PSC) is a rare disease that affects the bile ducts inside and outside of the liver. There is no cure, and no treatments exist to slow the progression of PSC. This podcast, moderated by Niall McKay, explores the latest research and knowledge about PSC: from patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all! PSC Partners Seeking a Cure is a nonprofi ...
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Seth Godin is a thought leader in the marketing and business world. In this rare live recording, hear Seth as he guides thirty entrepreneurs through a workshop exploring how they can build and run their dream business.
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Lori Rohlinger is a former pastor's wife who has endured losing her husband to a rare disease but still remains positive that God has a plan for her widowed life. In her podcast, Lori shares her real life experiences from grief to joy and all the in-between. She is a single parent raising four children and learning what it looks like to move forward without the love of her life. Lori loves to share how good and faithful God has been to her, even in the midst of her Beautifully Broken life.
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The Village Global podcast takes you inside the world of venture capital and technology, featuring enlightening interviews with entrepreneurs, investors and tech industry leaders. Learn more at www.villageglobal.vc.
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In the world of news, headlines are essential, but providing in-depth analysis of news and current affairs became rare. We analyze the news and simplify complex geopolitical realities of the Middle East and wider Muslim world. To help you make sense of it all, join our host Sami Zeidan.
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Keep up with news in Central Illinois every weekday with 217 Today. Hear the day's headlines, along with one deeper dive, in just ten minutes. Learn about the people and places that make Central Illinois unique with 217 Today.
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You want the best possible quality of life for your child regardless of diagnosis or prognosis. Raising a child with medical complexities is often lonely, scary and overwhelming. Join two parents of amazing children with rare medical complexities, Emily K. Whiting and Ashlyn Thompson, to get help and grow with them into empowered advocates for our kids. Here you’ll find a community of support, encouragement, education and resources, equipping you to navigate your child’s medical complexities ...
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Holy Yes Podcast is the home for creative, faith-based entrepreneurs raising a hand to deepen their relationship with God, blaze forward in their wealth identity, and build a legacy of impact. Hosted by wealth activator, business wizard, creative director, Victoria Washington brings forward The Holy Yes Podcast. She’s the Founder of The House of Wealth Embodiment®, a global community and brand that has rapidly become the go-to space for entrepreneurs to develop their wealth identity, deepen ...
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Welcome to 'ASX BRIEFS,' the definitive podcast for enthusiasts, investors, and professionals keen on staying ahead of the curve in the Australian Stock Exchange (ASX). Hosted by Andrew Musgrave, 'ASX BRIEFS' delves deep into the heart of Australia's financial markets, bringing you insightful conversations with the minds shaping the future of investing down under. Each episode, join Andrew as he interviews a diverse lineup of fund managers, executives, and industry insiders, offering you a u ...
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André and Velrita are doing this podcast, to raise awareness of the realities of being a carer for a loved one and living with a rare misunderstood chronic condition. Who knew that becoming a mother for the first time, twenty-seven years ago would be one of the best experiences of her life? no matter how rewarding it was, she knew it would not be easy especially as a single mother. So, imagine one day, when your child is only four years and has a stroke. Without any warning, overnight both o ...
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Mrs Moneypenny, beloved Financial Times columnist, and her editor interview the world's most successful people in business, media, arts, entertainment, finance, academia and politics. Like Sir David Attenborough, the intrepid duo ventures to their subjects’ natural habitat. In their quest to figure out how this rare species of homo erectus lives and works they corner plutocrats at Davos parties and hitch a ride with America’s most famous living feminist. Fielding irreverent questions about s ...
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Twenty Something Conversations unearths and explores the trials, tribulations and triumphs of people in their twenties.
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At Factor Care RX, their commitment to individuals with hemophilia is deeply rooted in empathy and understanding. They recognize the unique challenges and obstacles that come with managing this complex condition and approach each interaction with care and compassion. Whether it's assisting with medication access, navigating insurance complexities, or simply providing a listening ear, Factor Care RX is there every step of the way.
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A place we talk about a vast array of raw and real topics concerned with the Muslim woman's experience. From intricacies of identity, marriage and motherhood, to the vast ocean of discussion on mental health and relationships, we aim to delve into it all! Instagram: @hiddenukht_ Email: yourstrulyhiddenukht@gmail.com
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Losing a child is heartbreaking. Ashley Genelin lost her son Myles when he was just 3 years old. He was diagnosed with cardiofasciocutaneous syndrome or CFC. They did their best to keep him at home as long as possible, even when caring for Myles was like running an ICU. Make-A-Wish allowed them to take this mini-ICU on the road so that Myles could …
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Scott Fleetwood, a former pulmonary hypertension patient from Buffalo, New York, shares his journey with rare diseases. He initially experienced shortness of breath while playing hockey and was later diagnosed with pulmonary hypertension and scleroderma. Scott received a double lung transplant in 2017. He discusses the initial fear he felt upon lea…
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217 Today: Urbana activists want more police oversight. But local laws hold the civilian review board hostage
In today's deep dive, we'll learn why locals say the Urbana Civilian Police Review Board is failing to uphold the mission and effect any change to policing in Urbana.By The 217 Today Podcast
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VIRIDIS MINING AND MINERALS (VMM) - Pioneering Green Mining: CEO Rafael Moreno on the Game-Changing Colossus Ionic Clay Rare Earth Project and Strategic Land Expansion in Brazil
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Unlock the secrets of cost-effective and environmentally friendly mining with Rafael Moreno, the CEO of Viridis Mining and Minerals, as he joins us on ASX Briefs. You'll learn how Viridis is revolutionizing the mining industry with their Colossus Ionic Clay Rare Earth Project in Brazil, and why the unique properties of ionic absorption to clay are …
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In today's deep dive, we’ll learn more about the Beep Baseball Tournament coming to Savoy this weekend.By The 217 Today Podcast
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217 Today: A ‘silver tsunami’ is hitting rural America as small business owners retire without replacements
In today's deep dive, we’ll learn more about how small business owners in rural areas are struggling to find buyers to keep their businesses going.By The 217 Today Podcast
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PEPPERMINT INNOVATION (PIL) - Empowering Financial Inclusion: Peppermint Innovation's Chris Kain on Transforming Digital Financial Services in the Philippines through Advanced AI and Microfinance Strategies ...
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What if you could bring digital financial services to millions of unbanked Filipinos? Join us as we chat with Chris Kain, Managing Director of Peppermint Innovation Limited, about how their bizmoto platform is changing the financial landscape in the Philippines. Chris shares their mission to drive financial inclusion by leveraging advanced AI to pr…
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In today's deep dive, we’ll learn more about recent research that suggests pasteurization may not be successful in killing the H5N1 virus, also known as the bird flu.By The 217 Today Podcast
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Ep 37.5 - It's a Convention Podlet with the Gang!
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The time has come! Preparations for the 2024 WSA National Convention in Phoenix are in the final stretch. The gang has just a few minutes to get together, do some last minute chatting, and get ready for the Live Podcast show on Wednesday, July 10th at 4PM! If you come up to any of us and say "Croutons & Hearts," we'll give you an official Starry-Ey…
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FIRETAIL RESOURCES (FTL) - Shaping the Future of Mineral Exploration: Executive Chairman Brett Grosvenor on Strategic Ventures in Australia, Peru, and North America
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Curious about the future of battery minerals and resource exploration? Get ready for an enlightening conversation with Brett Grosvenor, the Executive Chairman of Firetail Resources, as he shares exclusive insights on the company's strategic initiatives across Australia, Peru, and North America. Discover why their 80% stake in the York Harbour Coppe…
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In this episode, Dr. Robert Frantz, a cardiologist at the Mayo Clinic, discusses current and upcoming clinical research in pulmonary arterial hypertension (PAH). He emphasizes the low participation rate of PAH patients in clinical trials and encourages patients to consider participating, as it not only benefits themselves but also helps advance med…
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38 Years of Testicular Cancer Survivorship: Boston Marathon, A Daughter, Career, and Giving Back
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Jim Hohman had a terrible cough after he ran the 1986 Boston Marathon. He went to the doctor, who also decided to conduct a general physical. That exam saved his life, Jim says, because the doctor found a lump on his testicle. He visited the urologist on Saturday and his orchiectomy surgery on Monday. After a few months, his blood tests showed a po…
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Welcome to our first double-digit episode! Dr. David Pascal joins Kimberly from Cary, North Carolina for our episode milestone. With many years of treating patients and ever-expanding knowledge, Dr. Pascal has mentored countless renowned professionals and developed his signature approach to treatment called "The Pascal Method". This has allowed him…
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In today's deep dive, we’ll learn about some of the challenges cosmetology graduates face after attending programs run by for-profit companies.By The 217 Today Podcast
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217 Today: Students at Illinois’ for-profits colleges often leave worse off than when they started
In today's deep dive, we’ll learn about a recent investigation that found students at Illinois’ for-profit colleges often leave with debt or jobs with low wages.By The 217 Today Podcast
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IDT AUSTRALIA (IDT) - Unlocking the Future of Pharma: IDT Australia's Paul McDonald on ADC Innovations, Capital Raise, and Strategic Takeover Offers
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Unlock the future of pharmaceutical innovation with our exclusive chat featuring Paul McDonald, CEO of IDT Australia. Ever wondered how a company can navigate through a dynamic market while harnessing groundbreaking technologies? Paul divulges IDT's ambitious growth plans, recent capital raise, and the critical role of their new ADC manufacturing f…
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In today's deep dive, we’ll hear how northern Illinois teachers spent a week learning how to teach their students about water and their local watersheds.By The 217 Today Podcast
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HIGHFIELD RESOURCES (HFR) - Catalyzing Potash Production: CEO Ignacio Salazar on the Strategic Impact of the Muga Mine and the Global Potash Market in Europe
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Unlock the secrets behind the next major European potash mine with Ignacio Salazar, CEO and MD of Highfield Resources, in this fascinating episode. Discover why potash is crucial for global food security and how the Muga potash mine in Spain is set to become a game-changer. Ignacio walks us through the long journey of the Muga project, from its dis…
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In today's deep dive, we’ll learn about the Mary Davis Home in Galesburg and the progress being made to comply with the Illinois Department of Juvenile Justice’s standards.By The 217 Today Podcast
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Speak Up Kōrerotia - Pūrākau - Māori stories and storytelling
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Guests Tania Cliffe-Tautari and Isla Huia discuss why pūrākau - stories and storytelling - are fundamental to Te Ao Māori, and how they are and might be utilised as tools for empowerment.
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217 Today: Drunk driving costs the U.S. billions in medical expenses and lives lost. One school uses a simulation to raise awareness
In today's deep dive, we'll learn about one Indiana school’s effort to raise awareness about driving under the influence among students.By The 217 Today Podcast
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Welcome to our International Podcast! VP of International Relations, Rahma Ithar Hadjal, interviews natural healthcare consultant, Janet Ewens of the UK.By CRPS Warriors Foundation
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Amy Gietzen, a patient diagnosed with systemic scleroderma, shares her journey and experiences living with the disease. She discusses her initial symptoms, the shock of the diagnosis, and the lack of information and resources available at the time. Despite facing numerous challenges, including pulmonary fibrosis and pulmonary arterial hypertension,…
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In today's deep dive, we’ll learn about the regional summit hosted by the U.S. Department of Education earlier this month.By The 217 Today Podcast
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SPARC TECHNOLOGIES (SPN) - Revolutionizing Sustainable Innovation: Nick O'Loughlin on the ecosparc Game-Changing Additives and the Future of Green Hydrogen Production
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Can cutting-edge technology revolutionize the sustainability sector? Join us for a captivating conversation with Nick O'Loughlin, Managing Director of Sparc Technologies, as he unveils the innovations that are set to transform infrastructure maintenance and green energy production. Discover how Sparc's ecosparc, a groundbreaking graphene-based addi…
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S4E37 The Hidden Emotions Behind Chronic Pain with Alec Kassin
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What Chronic Pain Truly is About with Alec Kassin From the dream of racing in the Tour de France to the harsh reality of a ruptured spinal disc, Alec Kassin’s journey is nothing short of extraordinary. At just 18, Alec’s life took a drastic turn with the onset of severe back pain that shattered his cycling ambitions and led him down a path of despa…
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In today's deep dive, we'll listen to a conversation with saxophonist Reginald Lewis about the importance of Black Music Appreciation Month.By The 217 Today Podcast
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217 Today: These farms raise thousands of butterflies and find ways to promote pollinator preservation
In today's deep dive, we’ll learn how butterfly farmers and breeders are working to raise awareness about habitat loss.By The 217 Today Podcast
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In today's deep dive, we'll learn more about what the country's largest protestant group's vote opposing In Vitro Fertilization could mean for reproductive choice across the U.S.By The 217 Today Podcast
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Alvin Rocha is a nurse care manager and pulmonary hypertension coordinator at Children's Hospital Los Angeles. He manages PH patients from birth to early adulthood. His main goal is to prepare these patients for the transition into the adult world. He is excited about the advancements in therapies and clinical trials and looks forward to attending …
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In today's deep dive, we’ll listen to a conversation with Grammy-nominated artist Syleena Johnson about her music career and ties to Champaign-Urbana.By The 217 Today Podcast
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NICKEL INDUSTRIES (NIC) - Charting Nickel's Evolution: Nickel Industries’ Justin Werner on Class 1 Nickel, Strategic Partnerships, and Operational Innovations in Indonesia
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Is the future of nickel mining in Indonesia? We sit down with Justin Werner, Managing Director of Nickel Industries, who takes us through the company's impressive journey from a humble mining operation selling raw ore to China and Japan, to becoming the world's largest listed pure nickel producer. Justin shares insights on their strategic shift tow…
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ALMA METALS (ALM) - Unlocking Australia's Copper Potential: Alma Metals MD Frazer Tabeart on the Transformative Briggs and East Kimberley Projects in Queensland and Western Australia
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Is the future of copper mining hidden in the heart of Australia? Join us on ASX Briefs as we sit down with Frazer Tabeart, Managing Director of Alma Metals, to uncover the transformative potential of their Briggs copper project in Queensland. With over 1 million tonnes of contained copper, Briggs offers not just a massive reserve but also strategic…
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FIREBRICK PHARMA (FRE) - Combating the Common Cold: Firebrick Pharma's Executive Chairman Dr. Peter Molloy on Nasodine's Revolutionary Nasal Spray and Global Market Strategy
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What if you could finally treat the common cold with a simple nasal spray? Join us on ASX Briefs as we sit down with Dr. Peter Molloy, Executive Chairman of Firebrick Pharma Limited, to uncover the groundbreaking journey of Nasodine, a povidone iodine-based nasal spray aimed at combating the common cold. Dr. Molloy takes us through the development,…
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POLYMETALS RESOURCES (POL) - Revitalizing the Endeavour Mine: Polymetals Resources' Executive Chairman David Sproule on Strategic Royalties and Partners to Transform Silver-Zinc Production in New South ...
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What if one strategic decision could drastically alter the financial landscape of a mining project? Join us on ASX Briefs as we welcome David Sproule, the Executive Chairman of Polymetals Resources, to unpack the revitalisation of the high-grade Endeavour silver-zinc mine in Cobar, New South Wales. David shares the captivating history of Polymetals…
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Ep. 9 Possibilities of Quantum Neurology with Dr. Skylar Bakko
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After witnessing his family chiropractor save his mother's life as a child, Dr. Skylar Bakko chose to dedicate his life to helping those suffering from pain and chronic illness. Along with his Doctor of Chiropractic, he completed hours of study on Brain-Based Wellness, including Quantum Neurology, Applied Kinesiology, Developmental Functional Neuro…
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In today's deep dive, we’ll listen to a conversation with Nate Widelitz, the director of the Five Cities Baroque Festival, about bringing Western classical music to the area.By The 217 Today Podcast
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RIMFIRE PACIFIC MINING (RIM) - Pioneering Critical Mineral Advancements: Rimfire Pacific Mining's David Hutton on Scandium Recovery and Strategic Expansion in New South Wales
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19:47
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Unlock the secrets of critical minerals with our guest, David Hutton, Managing Director of Rimfire Pacific Mining. Discover how Rimfire is pioneering the exploration and recovery of scandium, cobalt, and copper in New South Wales. From the aerospace sector to clean energy advancements, scandium is revolutionizing industries, and Rimfire’s Murga Sca…
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INTELLIGENT MONITORING GROUP (IMB) - Transforming Security Services: Intelligent Monitoring Group's Dennison Hambling on Strategic Acquisitions and Market Leadership in Australia and New Zealand
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Get ready to be inspired as we sit down with Dennison Hambling, the Managing Director of Intelligent Monitoring Group, who shares the transformative journey of his company in the security and risk management sector. How do strategic acquisitions like ACG Integration and Everjazz propel a company to reclaim its industry leadership? Dennison unravels…
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In today's deep dive, we’ll learn more about the city of Galena’s first poet laureate.By The 217 Today Podcast
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Encore: Secrets of Public Speaking and Oral Communication from Renowned Speaking Coach
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Michael Balaoing, founder of Candlelion, joins Village Global co-founder and partner Ben Casnocha on this episode to discuss: - The importance of the acronym WTF (what’s the feeling?) when you’re giving a presentation. - The four roles that you take on as a speaker: captain, pilot, guide, and game show host. - The five questions to ask when seeking…
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In today's deep dive, we’ll learn more about how people in various areas of Chicago are coping with the overwhelming number of cicadas.By The 217 Today Podcast
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In today's deep dive, we'll learn more about why the promise of precision agriculture to revolutionize farming is still years away.By The 217 Today Podcast
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Ep 37 - Weekend for Williams Live with Barb Nelson and Tayden Larsen
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Recorded Live on June 1st, Jen and Brendan and joined by Producer Joel and WSA Vice President of Programming Sarah Giddings during their marathon Weekend for Williams fundraiser. The podcast was also part of a POWER HOUR where all donations were doubled thanks to Barb Nelson, the owner of Brinkley's Boutique. Barb joined the gang to talk about all …
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BELARAROX (BRX) - Leading the Charge in Mineral Exploration: Belararox Limited MD Arvind Misra on Copper and Lithium Ventures and Strategic Innovations
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Join us on this episode of ASX Briefs as we talk with Arvind Misra, Managing Director of Belararox Limited, about their cutting-edge approach to mineral resource exploration. Belararox is making strides in copper and lithium mining, with their TMT project in Argentina standing out for its promising assay results and strategic location among industr…
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In this episode, Dr. Dunbar Ivy, a pediatric cardiologist at the University of Colorado, discusses the upcoming World Symposium on Pulmonary Hypertension, where experts from around the world will gather to discuss the progress made and future directions. Dr. Ivy highlights the work of the pediatric pulmonary hypertension task force, which aims to d…
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217 Today: Most teenage overdose deaths happen at home, CDC data shows. Here’s what parents need to know
In today's deep dive, we’ll learn about what parents and young people need to know to prevent an overdose death.By The 217 Today Podcast
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217 Today: Bird flu continues to spread. Scientists worry states aren’t testing enough to know the extent of it
In today's deep dive, we'll learn more about how the bird flu continuing to spread is worrying scientists that states are not testing enough to know about it.By The 217 Today Podcast
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217 Today: Why the number of Illinois high school grads earning ‘college and career pathway endorsements’ is skyrocketing
In today's deep dive, we’ll learn more about what college and career pathway endorsements are and what they mean for students.By The 217 Today Podcast
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ELSIGHT (ELS) - Revolutionizing Defense Connectivity: Elsight Limited CEO Yoav Amitai on the Halo Platform's Impact on Unmanned Systems and Strategic Partnerships
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What if your communication systems could guarantee unwavering reliability, even in the most unpredictable conditions? Join us on ASX Briefs as we sit down with Yoav Amitai, CEO of Elsight Limited, to uncover how their groundbreaking Halo platform is revolutionizing connectivity for unmanned systems in the defence and homeland security sectors. Yoav…
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