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Content provided by CURE Epilepsy. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by CURE Epilepsy or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
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Concise summaries of everything published in the latest weekly issue of the New England Journal of Medicine (NEJM). NEJM publishes new medical research findings, review articles, and editorial opinion on topics of importance to biomedical science and clinical practice.
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A top podcast for healthcare leaders, with over one million downloads, Radio Advisory is your weekly download on how to untangle the industry's most pressing challenges to help leaders like you make the best business decisions for your organization. From unpacking major trends in care delivery—like site-of-care shifts and the rise of high-cost drugs—to demystifying stakeholder dynamics, to shining a spotlight on priorities that may get overlooked, we're here to help. Our hosts and seasoned r ...
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Flash Forward is a show about possible (and not so possible) future scenarios. What would the warranty on a sex robot look like? How would diplomacy work if we couldn’t lie? Could there ever be a fecal transplant black market? (Complicated, it wouldn’t, and yes, respectively, in case you’re curious.) Hosted and produced by award winning science journalist Rose Eveleth, each episode combines audio drama and journalism to go deep on potential tomorrows, and uncovers what those futures might re ...
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As She Rises brings together local poets and activists from throughout North America to depict the effects of climate change on their home and their people. Each episode carries the listener to a new place through a collection of voices, local recordings and soundscapes. Stories span from the Louisiana Bayou, to the tundras of Alaska to the drying bed of the Colorado River. Centering the voices of native women and women of color, As She Rises personalizes the elusive magnitude of climate cha ...
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We're trying something different this week: a full post-show breakdown of every episode in the latest season of Black Mirror! Ari Romero is joined by Tudum's Black Mirror expert, Keisha Hatchett, to give you all the nuance, the insider commentary, and the details you might have missed in this incredible new season. Plus commentary from creator & showrunner Charlie Brooker! SPOILER ALERT: We're talking about the new season in detail and revealing key plot points. If you haven't watched yet, and you don't want to know what happens, turn back now! You can watch all seven seasons of Black Mirror now in your personalized virtual theater . Follow Netflix Podcasts and read more about Black Mirror on Tudum.com .…
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Seizing Life® is a CURE Epilepsy podcast and videocast aiming to inspire empathy, offer helpful stories, and give hope as we search for a cure for epilepsy. Listen as guests share stories and insights on living with epilepsy in conversation with our host, Kelly Cervantes.
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Seizing Life® is a CURE Epilepsy podcast and videocast aiming to inspire empathy, offer helpful stories, and give hope as we search for a cure for epilepsy. Listen as guests share stories and insights on living with epilepsy in conversation with our host, Kelly Cervantes.
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1 Music Therapy for Neurologic Conditions: Understanding How It Works 25:11
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Play Later Play Later Lists Like LikedDr. Connie Tomaino, music therapist and co-founder of the Institute for Music and Neurologic Function, discusses how music therapy is used to treat neurologic conditions and explains what we know about the power of music to heal the brain.
1 Despite Medical Training, A Young Doctor’s Epilepsy Goes Undiagnosed for a Decade 33:57
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Play Later Play Later Lists Like LikedThis month on Seizing Life® Dr. Kelly Tyson shares her decade-long journey to an epilepsy diagnosis. Despite numerous visits to various medical experts through the years and majoring in neuroscience in college, Kelly was never referred to a neurologist, nor did she recognize the “episodes” she experienced as seizures. Kelly details how she managed these episodes through college, graduate school, and medical school, and reveals the surprising way that she came to realize she was having seizures.…
1 Joey’s Song Musicians: Rocking for Epilepsy Research is Personal 47:38
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Play Later Play Later Lists Like LikedThis month Seizing Life® goes on location at the Joey’s Song Freezing Man Festival to speak with Kay Hanley and John Cowsill, two musicians with personal connections to epilepsy who participated in the multiday music festival to raise money for epilepsy research.
1 Fostering a Good Relationship with Your Child’s Epilepsy Care Team 32:06
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Play Later Play Later Lists Like LikedThis month on Seizing Life® Patricia Dean, ARNP and the Epilepsy Network Specialist in the Comprehensive Epilepsy Center at Nicklaus Children’s Hospital in Miami, discusses managing the relationship with your child’s epilepsy care team.
1 SCN8A and Infantile Spasms: A Mother & Researcher Pursues a New Potential Therapy 40:40
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Play Later Play Later Lists Like LikedDr. Madeleine Oudin shares her daughter’s epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms, and explains how it has impacted her work as a researcher in pursuing a new potential therapy around the SCN8A gene.
1 Rocking for Research: The Inspiration and Impact of Joey’s Song 37:33
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Play Later Play Later Lists Like LikedJoey’s Song founder Mike Gomoll shares his son’s epilepsy story and discusses the creation, growth, and evolution of Joey’s Song into the multi-artist, multi-day, “Freezing Man Festival.”
1 One Family’s SUDEP story: A Tragic Loss Drives SUDEP Advocacy and Fundraising 31:02
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Play Later Play Later Lists Like LikedIn observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor.
1 Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy 29:45
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Play Later Play Later Lists Like LikedThis month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epilepsy, Matthew has refused to be held back by seizures, studying neurosceience as a college undergraduate, and now pursuing a PhD while working in an epilepsy research lab at the University of Iowa.…
1 Post-Traumatic Epilepsy: What We Know and Where the Research is Going 28:31
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Play Later Play Later Lists Like LikedThis month on Seizing Life® we speak with Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy about the current state of research into Post-Traumatic Epilepsy (PTE) in the wake of a recent International Conference on PTE co-hosted by CURE Epilepsy.
1 The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy 34:10
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Play Later Play Later Lists Like LikedAfter losing her son to a rare form of epilepsy called NORSE, or New Onset Refractory Status Epilepticus, Nora Wong set out to get answers from doctors and researchers. When she found little information and more questions, she founded the NORSE Institute to raise awareness and fund research into this sudden and devastating form of epilepsy.…
1 The Sudden and Life-Altering Impact of Adult-Onset Epilepsy 34:43
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Play Later Play Later Lists Like LikedThis month on Seizing Life® Jon Tuteur shares his journey with adult-onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon discuses the physical and emotional impacts of seizures, medications, diagnostic tests, and medical procedures in pursuit of controlling his epilepsy. He also tells us about his forthcoming book Seizing Today: Discovering Purpose and Authenticity in a Life Changing Diagnosis…
1 Older Adults and Epilepsy: the Causes, the Signs, and the Treatments 28:27
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Play Later Play Later Lists Like LikedThis week on Seizing Life® Dr. Laura O’Dwyer joins us to talk about the fastest growing segment of people living with epilepsy in the United States – older adults. Dr. O’Dwyer explains why adults are more likely to develop epilepsy later in life, outlines the challenges of recognizing, diagnosing, and treating epilepsy in older adults, and provides valuable information for older adults living with epilepsy and their caregivers.…
1 One Woman’s Epilepsy Journey Through Childhood, Parenting, Discrimination, and Surgery 36:57
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Play Later Play Later Lists Like LikedThis month on Seizing Life® author Laura Beretsky shares her decades-long journey with epilepsy, from diagnosis at age 6, through college, parenting, fighting discrimination in the workplace, and ultimately seizing control of her epilepsy via life-changing surgery.
1 A Nurse’s Knowledge & A Mother’s Love Leads to Son’s Life-Changing Brain Surgery 34:21
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Play Later Play Later Lists Like LikedThis month on Seizing Life® a nurse and mother shares her young son’s journey from the onset of focal seizures to a devastating diagnosis of Rasmussen’s Encephalitis to a life-changing brain surgery.
1 Artificial Intelligence and Epilepsy: The Promise & Pitfalls of AI in Diagnosis and Treatment 37:28
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Play Later Play Later Lists Like LikedThis month on Seizing Life® we explore artificial intelligence as it relates to epilepsy care, how it’s impacting epilepsy diagnosis and treatment today, and what it promises for the future.
This week on Seizing Life®, we revisit several compelling conversations from the past year in our Best of Seizing Life 2023 compilation episode.
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1 Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom 26:16
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Play Later Play Later Lists Like LikedThis week on Seizing Life® Annette Adkins, who has lived with intractable epilepsy since 2014, discusses the impacts of epilepsy on her professional and personal life, and how it led her to participate in a clinical trial for a new procedure that has brought her seizure freedom.
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1 Rare Epilepsy Organizations: Fostering Community and Advancing Research 20:20
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Play Later Play Later Lists Like LikedThis week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, in an episode recorded at Epilepsy Awareness Day at Disneyland this past November.
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1 Infantile Spasms: The Facts, The Research, and The Hope for the Future 30:51
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Play Later Play Later Lists Like LikedThis week on Seizing Life®, in recognition of Infantile Spasms Awareness Week (December 1st – 7th), we speak with epilepsy researcher Dr. Chris Dulla about infantile spasms – what we know, what recent research has revealed, and how current research may lead to better detection and treatments.
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1 Epilepsy in Women: Challenges, Concerns, and Considerations 40:15
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Play Later Play Later Lists Like LikedThis week on Seizing Life® we speak with Dr. Elizabeth Gerard about impacts, challenges, and concerns specific to women living with epilepsy. From puberty to menstruation, contraception, pregnancy, and menopause, Dr. Gerard provides information and insights on managing epilepsy as a woman through all stages of life.…
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1 NYC Marathoner Achieves Seizure Control and Runs for Epilepsy Research 30:31
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Play Later Play Later Lists Like LikedThis week on Seizing Life® we speak with Peter Burpee who experienced absence epilepsy in childhood and tonic clonic seizures in his teen years, but has gained seizure control and will be running in the upcoming NYC Marathon to raise money for epilepsy research.
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1 Searching for Answers, Providing Support, and Understanding Grief After the Death of a Child 39:08
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Play Later Play Later Lists Like LikedThis week on Seizing Life® in observance of SUDEP Action Day on October 18th, we speak with Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, about the program he directs conducting research into both Sudden Unexpected Death in Pediatrics (SUDP) and the grieving process of bereaved parents.…
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1 Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book 28:50
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Play Later Play Later Lists Like LikedThis week on Seizing Life® Kate Kostolansky shares her daughter Charlotte’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book designed to help newly-diagnosed families and those around them better understand infantile spasms.
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1 An Extraordinary Life of Autism, Epilepsy, and Advocacy 34:35
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Play Later Play Later Lists Like LikedThis week on Seizing Life® we speak with Barbara D’Amora about the life of her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal. Barbara recalls the early days of Nick’s life and how a program “unlocked” Nick, allowing him to communicate with the world around him and igniting a passion for advocacy that Nick pursued until his passing from a seizure earlier this year.…
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1 A Young Woman’s Journey with Jeavons Syndrome 26:39
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Play Later Play Later Lists Like LikedThis week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.
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1 Pursuing Effective Epilepsy Treatment and Running for Research 33:05
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Play Later Play Later Lists Like LikedThis week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.
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1 From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey 26:16
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Play Later Play Later Lists Like LikedThis week on Seizing Life® Mariah Mayhugh discusses her epilepsy journey, from hiding childhood absence seizures to becoming an active and creative advocate for epilepsy awareness, education, and representation.
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1 A Teen Uncovers the Emotional Impacts of Childhood Seizures 20:49
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Play Later Play Later Lists Like LikedThis week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.
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1 Comprehensive Epilepsy Centers: An Insider’s Guide 33:53
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Play Later Play Later Lists Like LikedThis week on Seizing Life® Dr. Dave Clarke gives us a thorough overview of the specialists and services available at comprehensive epilepsy centers and offers advice about when and how to access these centers.
This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage.
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Seizing Life
This week on Seizing Life®, father and therapist Bud Hager discusses being the caregiver to a young daughter with a rare and complex medical condition. Bud discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease, and how it has transformed his life in both tangible and philosophical ways.…
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1 Epilepsy Researcher Compounds Lab Work with Fundraising 33:22
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Play Later Play Later Lists Like LikedThis week on Seizing Life® Dr. Patrice Jackson-Ayotunde, an organic chemist and Associate Professor of Pharmaceutical Sciences at the University of Maryland Eastern Shore (UMES), discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts.
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1 A Daughter’s Diagnosis Inspires Concerts for Epilepsy 32:37
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Play Later Play Later Lists Like LikedThis week on Seizing Life® we speak with Matt Perrone about his epilepsy onset and treatment journey, the impacts of seizures and medication on his mental health, and how his daughter’s diagnosis at the age of four spurred him to create EpiPalooza, a multi-band concert aimed at raising awareness and funds for epilepsy research.…
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1 The Crucial Role of Nurses in Epilepsy Care 29:08
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Play Later Play Later Lists Like LikedThis week on Seizing Life® we welcome Lucretia Long to the podcast to discuss the present and future of epilepsy care and treatment. Lucretia is an Advanced Practice Registered Nurse (APRN) and a Certified Nurse Practitioner (CNP) at The Ohio State University Wexner Medical Center who has been working with epilepsy patients for over 30 years. She shares her vast experience and perspective on a range of areas within epilepsy care, treatment, and patient information.…
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1 Teen Tennis Player Remains on Court Despite Seizures and Stigma 29:40
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Play Later Play Later Lists Like LikedThis week on Seizing Life® we speak with Reid Rainwater and his father Ryan about the sudden onset of epilepsy that Reid experienced as a freshman in high school, his journey to controlling tonic-clonic seizures, and how epilepsy and stigma have impacted his education and tennis career as one of the top young players in Oklahoma.…
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1 From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey 28:04
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Play Later Play Later Lists Like LikedThis week on Seizing Life® mother and epilepsy advocate Collen Jendreas joins us to share her young son Owen’s epilepsy journey from initial onset to a diagnosis of Lenox Gastaut Syndrome (LGS), and discuss how two particular interventions have made a significant impact on Owen’s quality of life.
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1 From Desperation to Hope: The Founding and Future of CURE Epilepsy 40:35
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Play Later Play Later Lists Like LikedThis week on Seizing Life Susan Axelrod, CURE Epilepsy founder, and Barbara Kelly, the founding Research Chair, discuss the past, present, and future of the organization and epilepsy research.
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1 Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research 31:34
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Play Later Play Later Lists Like LikedThis week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research.
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1 Epilepsy Can’t Stop Young Girl’s Competitive Spirit 37:28
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Play Later Play Later Lists Like LikedThis week on Seizing Life®, Christy and Lawrence Tsane share daughter Christiane’s epilepsy diagnosis and explain how they manage her seizures while nurturing her love of competitive running.
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1 After Decades of Seizures, an Epilepsy Diagnosis Begins to Provide Answers 33:12
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Play Later Play Later Lists Like LikedThis week on Seizing Life® Ara Carbonneau shares her difficult and remarkable decades-long journey to an epilepsy diagnosis. Years after recovering from meningitis as an infant, Ara began experiencing seizures as a teenager. Yet, she continued to pursue her dreams, attending college and graduate school, earning her teaching certificate and masters degree, getting published and building a career.…
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1 Recent Advances in Diagnostic and Surgical Tools for Epilepsy 20:41
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Play Later Play Later Lists Like LikedThis week on Seizing Life® we take a look at diagnostic and surgical tools that assist physicians in localizing and removing areas of the brain that produce seizures. In an episode recorded this past November at Epilepsy Awareness Day at Disneyland, Kelly speaks with several exhibitors to learn more about current and emerging technology that is helping to improve the lives of those with epilepsy.…
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This week on Seizing Life® epilepsy advocate and mother Kate Neale Cooper and podcast host and mother Kelly Cervantes share their experiences parenting children with epilepsy and offer advice on advocating for your child’s epilepsy care.
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1 Kids Ask Docs the Darndest Things About Epilepsy 38:09
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Play Later Play Later Lists Like LikedThis week on Seizing Life® kids who either have epilepsy or who have family members with epilepsy ask pediatric neurologists about epilepsy. Dr. Kristen Park of Children’s Hospital of Colorado and Dr. Adam Numis of the UCSF Benioff Children’s Hospital answer questions on a wide variety of topics related to epilepsy in an episode recorded live at Epilepsy Awareness Day at Disneyland this past November.…
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1 Managing Epilepsy with the Stress of The Holidays 19:41
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Play Later Play Later Lists Like LikedThis week on Seizing Life® we discuss managing epilepsy with the added stress of the holiday season. As the holidays roll around, family and personal commitments can feel like obligations, and can bring with them additional stress. Dr. Eva Alden, a Neuropsychologist at the Mayo Clinic joins us to explain the connection between stress and seizures, and offers advice, insights, and recommendations for those with epilepsy and their caregivers to help cope with stress and seizure triggers during the holidays.…
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Seizing Life
1 A Mother Shares her Daughter’s Journey from Infantile Spasms to Brain Surgery 32:14
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Play Later Play Later Lists Like LikedIn honor of Infantile Spasms Awareness week (Dec. 1 – 7, 2022), this week on Seizing Life Monica Diaz-Greco shares her daughter Emma’s epilepsy journey from initial onset and diagnosis of infantile spasms through a VNS implant and brain surgery.
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The BMJ brings you interviews with the people who are shaping medicine and science around the world.
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Concise summaries of everything published in the latest weekly issue of the New England Journal of Medicine (NEJM). NEJM publishes new medical research findings, review articles, and editorial opinion on topics of importance to biomedical science and clinical practice.
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A top podcast for healthcare leaders, with over one million downloads, Radio Advisory is your weekly download on how to untangle the industry's most pressing challenges to help leaders like you make the best business decisions for your organization. From unpacking major trends in care delivery—like site-of-care shifts and the rise of high-cost drugs—to demystifying stakeholder dynamics, to shining a spotlight on priorities that may get overlooked, we're here to help. Our hosts and seasoned r ...
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Flash Forward is a show about possible (and not so possible) future scenarios. What would the warranty on a sex robot look like? How would diplomacy work if we couldn’t lie? Could there ever be a fecal transplant black market? (Complicated, it wouldn’t, and yes, respectively, in case you’re curious.) Hosted and produced by award winning science journalist Rose Eveleth, each episode combines audio drama and journalism to go deep on potential tomorrows, and uncovers what those futures might re ...
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Emergency Medicine Cases – Where the Experts Keep You in the Know. For show notes, quizzes, videos and more learning tools please visit emergencymedicinecases.com
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As She Rises brings together local poets and activists from throughout North America to depict the effects of climate change on their home and their people. Each episode carries the listener to a new place through a collection of voices, local recordings and soundscapes. Stories span from the Louisiana Bayou, to the tundras of Alaska to the drying bed of the Colorado River. Centering the voices of native women and women of color, As She Rises personalizes the elusive magnitude of climate cha ...
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Learn the Spartan mindset. Founder & CEO of Spartan Race and NY Times best-selling author, travels the globe seeking and answers authors, academics, athletes, adventurers, entrepreneurs, CEOs and thought leaders. It will shift your thinking, make you laugh and and give you the tools you need. He’s on a mission to find the secrets to success in all aspects of life. Not only does Joe interview epic people, he has brought together an amazing panel to break down and analyze every aspect of these ...
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Lyngso Fitness Academy presents: The Missing Piece, an audio offering about the mission, mindset and mechanics of completely transforming your life.Ever wondered what is holding your back from your best life? Your best self? You know that something is missing.Welcome to the Missing Piece. Hosted by Paul Lyngso, this podcast provides you everything you need to finally achieve the next level of satisfaction in your life. By transforming your life from the inside out, Paul offers actionable ste ...
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Come dive into one of the curiously delightful conversations overheard at National Geographic’s headquarters, as we follow explorers, photographers, and scientists to the edges of our big, weird, beautiful world. Hosted by Peter Gwin and Amy Briggs.
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Move more of your body more often and in more interesting ways with the Get-Fit Guy! If you want to begin an exercise routine and don't know where to start, or if you've been working out for a while and aren't getting the results you want, Kevin Don will give you the tips you need to reach your fitness and movement goals. Get expert information on the latest fitness trends and advice on everything from toning your arms to running a 5K or simply building more movement into your day. With his ...
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