The Genetics Of Hope podcast

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Added four years ago

Content provided by True Spectrum Media, Artemis Joukwosky, Cray Novick, and Gareth Burghes. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by True Spectrum Media, Artemis Joukwosky, Cray Novick, and Gareth Burghes or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

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The Genetics of Hope

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Candid conversations with leading doctors, patients, researchers, and families in rare disease communities.

3 episodes

#Science #Fitness #Biology #Medicine #True Spectrum Media #Artemis Joukwosky #Cray Novick #Gareth Burghes #DNA #Rare Disease

The Genetics of Hope

updated 4 years ago

Series home•Feed

Candid conversations with leading doctors, patients, researchers, and families in rare disease communities.

3 episodes

#Science #Fitness #Biology #Medicine #True Spectrum Media #Artemis Joukwosky #Cray Novick #Gareth Burghes #DNA #Rare Disease

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Parenting a Rare Disease Child with Rare Mamas Founder Nikki McIntosh 36:51

4 years ago36:51

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36:51

Nikki McIntosh, the founder of Rare Mamas, believes there is a brave fighter inside every rare-disease mother. By sharing her learnings, tips, and resources, Nikki wants to empower other rare disease parents to shift from distress to prowess. In this conversation, we speak with Nikki about the path to diagnosis, family dynamics, parenting, and getting comfortable with not being comfortable. Also on the episode are Genetics of Hope co-directors Artemis Joukowky, Gareth Burghes, and Cray Novick.…

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Radical Optimism in Rare Disease with Dr. Kathryn Swoboda 1:03:31

4 years ago1:03:31

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1:03:31

In this episode we speak with Dr. Kathryn Swoboda, a neurologist at Massachusett's General Hospital specializing in Spinal Muscular Atrophy is in conversation with co-host Artemis Joukowsky her patient of over 20 years. Today's show focuses on SMA, a rare neuromuscular disease. We track a twenty-year journey leading to three breakthrough treatments. We talk about balancing the cost of treatment with the value of human life, what impact can newborn screening have on the treatment of a disease, and how can research for one disease affect research in other diseases.…

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Introducing The Genetics of Hope Podcast 2:19

4 years ago2:19

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2:19

From True Spectrum Media this is the Genetics of Hope podcast, a candid conversation series with the doctors, patients, researchers, families and activists who make up this Rare Disease and Biotech community of goodness. This is your host Cray Novick, and Co-host Artemis Joukowsky. We started a storytelling journey looking at how breakthrough medicines are made, from grassroots conferences, to lab benches, and FDA approvals. This is a podcast by and for the rare disease community. What is your Genetics of Hope?…

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