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Navigating the Challenges of Invisible Disabilities
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Join us for an enlightening discussion with Anjali Vyas from the Pune chapter of the Multiple Sclerosis Society of India. Anjali's journey, starting from her initial symptoms of optic nerve pain and vision loss to her eventual diagnosis, is a powerful testament to resilience. As a chemical engineer and IELTS trainer, she shares her compelling story and her advocacy work through her organization, Believe in the Invisible, which aims to raise awareness and support for individuals with invisible disabilities.
Crucial conversations unfold as we tackle the significant challenges in disability recognition and documentation in India. Chronic neurological conditions and congenital heart conditions often slip through the cracks in official statistics, resulting in policies that fail to provide adequate support. We shine a light on the urgent need for detailed data collection, including gender-disaggregated data, and discuss how social stigma and harmful cultural beliefs exacerbate the marginalization of individuals with disabilities, particularly women and transgender individuals.
Lastly, we dive into the labyrinthine process of obtaining a disability certificate, especially for those with invisible disabilities like multiple sclerosis. Anjali shares eye-opening insights about the bureaucratic obstacles and societal misconceptions that complicate this journey. We stress the importance of education about disability rights for both the private sector and disabled individuals. Moreover, we underline the necessity of a holistic, inclusive approach that supports individuals and their communities, fostering a truly inclusive society. Tune in for a candid and thought-provoking episode that highlights the importance of advocacy and systemic change for disability rights.
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Chapters
1. Advocacy for Multiple Sclerosis Recognition (00:00:00)
2. Data Collection Challenges in Disability Recognition (00:14:02)
3. Disability Recognition and Advocacy Challenges (00:23:51)
4. Inclusive Ecosystem Approach to Society (00:37:12)
227 episodes
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