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Special Guest Jessica Kenley, talks about EB and her books
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Jessica Kenley was born in 1981 in Buffalo, NY. She lost two of her children, Ethan Tyler and Kaylee Marie, to the Junctional-Herlitz subtype of Epidermolysis Bullosa during their infancy. She is a licensed veterinary technician and has since had 3 healthy children. She wrote the book "Kidowed" to describe the struggles, sorrows, and triumphs of her first two children's painful and short lives. In her second book, "Walking the Mile", she attempts to resume her life with a new husband, a new town, and a new baby. She describes her journey through the struggles with undiagnosed and stigmatized mental and physical illness, resulting in addiction, alcoholism, and the abandonment of her family and society as a whole. And finally--the light at the end of the tunnel.
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