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Ep 109: Journey's journey with Trisomy 13
Manage episode 378079956 series 3483971
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The name "Journey" is the perfect name for a little girl who is described by her Mom as an answered prayer and a true blessing in her life! Listen in as her Mom, Deirdra tells the story of her birth, diagnosis, and the advocacy that has followed. Journey is a four year old girl who is quite the fashionista, and has a beautiful relationship with her sibling! Journey is pure sunshine and nothing short of an incredible testimony of God's Love!
Deirdra is the first member of ETL's Parent Advisory Counsel and we look forward to sharing more from her!
Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers.
To receive support or learn more about our mission, visit www.extratolove.org
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