A podcast for people who have been impacted by the diagnosis of Trisomy 13 or Trisomy 18. Educational, informational and personal experiences with these diagnoses to provide comfort, community and empowerment to those that listen. Visit extratolove.org to learn more about our non-profit organization.
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Life, love, joy, challenges and medical parenting . Medical Parents Raise Miracles.
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Sam Balegno has Down Syndrome, lives in Massachusetts and eats a lot of pizza. Jenna Balegno (his older sister) lives in California, has a dog named Norman and eats a lot of pizza. Listen in on their casual and candid phone calls to each other and get a little insight on what it means to have Down Syndrome... and more importantly... what it doesn't mean.
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Down Right Awesome
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A Podcast for Anesthesia and Critical Care Reviews, Debates and Commentary
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Mackenzie Beauvais-Nikl, the co-host of "Everybody In," experiences autism. But this podcast isn't really about that, exactly. This podcast is about conversations and connections. It's about how we are the same, and how we're different. For each episode, Mackenzie and her co-host Andrea Moore interview a different guest. Some of their guests experience intellectual and developmental disabilities, also known as I/DD, and some don't. They talk about friendship, family, adulthood, and -- when i ...
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Discover New Advances in the world of genetics, from technology like CRISPR to rare diseases to new research. For over a decade, multi-award winning podcast "DNA Today" has brought you the voices of leaders in genetics. Host Kira Dineen brings her genetics expertise to interview geneticists, genetic counselors, patient advocates, biotech leaders, researchers, and more. ***Best 2020 and 2021 Science and Medicine Podcast Award Winner*** Learn more (and stream all 180+ episodes) at DNApodcast.c ...
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This is The Fam, a podcast that focuses on encouraging, empowering and equipping families and marriages. You'll laugh, cry, and realize you are not alone! This is a real life, vulnerable and honest podcast hosted by Chris and Linda Padgett. It's real and it is for you! Support this podcast: https://podcasters.spotify.com/pod/show/the-fam/support
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Are belief and faith the same thing? Listen as Julie compares the two, and discusses that God not only wants us to have faith, but commands it! Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected fa…
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Episode 290: Post-op Cardiac Surgery Care with Mike Grant
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In this 290th episode I welcome Dr. Mike Grant back to the show to discuss post-op care for patients having cardiac surgery. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacyBy Jed Wolpaw
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Ep 212: Journey For Jazz (Trisomy 18)
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Chelsi, mom of 5 year old Jazz who has Trisomy 18 (Edwards Syndrome), joins Extra To Love: A Trisomy Podcast to share her wisdom and perspectives on how Jazz's life has impacted their family, if this journey is worth it, the importance of connecting with the trisomy community and more. You definitely don't want to miss this episode! Follow Jazz's j…
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Episode 289: Master Clinicians Part 1: Dr. Dave Berman
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In this new series on master clinicians I will be interviewing people who have been identified by their colleagues and trainees as "master clinicians", people who others go to for advice and clinical guidance, people who are masters of their craft. In this episode I welcome Dr. Dave Berman back to the show to discuss how he has, in a relatively sho…
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Ep 211: All About Communication with Audrey and Olivia! (ST)
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We are joined by Audrey Brock (M.S. CCC-SLP) and Olivia Lane (M.S. CCC-SLP) join us to share all about speech therapy, communication using AAC, and more. Although most people with Trisomy 18 or Trisomy 13 are non-speaking, that does not mean they are non-communicating. Communication can look many different ways, and speech therapists have a wonderf…
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Episode 288: Keywords Part 28: ECT and Transfusion Reactions with Tym Kajstura
57:15
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In this 288th episode I welcome Dr. Tym Kajstura to the show to do an ABA keyword episode. We discuss considerations for electroconvulsive therapy (ECT) and transfusion reactions. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacyBy Jed Wolpaw
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Ministry Moment: Blessed Is The One Who Perseveres
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In this Ministry Moment, Julie shares on resilience and the call to persevere through trials. With an encouraging call to reframe our thinking, let this Ministry Moment give you a new wind to continue to be resilient through the obstacles you are facing. Extra To Love is a non-profit organization that aims to improve the lives of people with Trisom…
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Ep 210: Evie, Held For a While, Loved For a Lifetime (Trisomy 13)
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At Extra To Love, we are firm believers that a child's value is not based on the number of their days here on Earth. Evie, who had Trisomy 13 and lived 56 days, had an impactful, love-filled life. Evie's mom, Emily, shares about how their journey changed her, how she includes Evie in her baby sister's life, and her favorite memories shared with her…
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In this Ministry Moment, Julie provides the ever-empowering reminder - If God is for us, who can be against us? In God we are strengthened and equipped to face each challenge, with Jesus - the source of our strength - walking right beside us. Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Tri…
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Episode 287: Perioperative Care of Transgender and Gender-Diverse Patients with Kyle Sanchez and Dan Ellis
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In this 287th episode I welcome Drs. Kyle Sanchez and Dan Ellis to the show to discuss the perioperative care of transgender and gender-diverse Patients. We discuss terminology, different medications and surgeries that you may see, preop, intraop and postop considerations. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https…
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Ep 209: Physical Therapy is Awesome! With DPTs Kaitlyn and Rianna
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Our guests this week hold special meaning to ETL, as they have been the physical therapy providers for the kids of our ETL team members and have been cheerleaders for them every step of the way. In this episode, Rianna Silverstein, DPT and Kaitlyn Evers, DPT share their perspectives on their experience treating children with trisomy 18, discuss wha…
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In this Ministry Moment, Julie encourages listeners to lean into community with the reminder that scripture repeatedly demonstrates the power of joining with others, especially in challenging times. Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Throug…
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Episode 286: Central Lines with Elisa Walsh
40:58
40:58
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In this 286th episode I welcome Dr. Elisa Walsh to the show to discuss Central Venous Catheters. We discuss where they can be placed, what can go wrong, how to teach people how to place them safely and how to confirm placement. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy…
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Ep 208: Mia Polacek and Edwards Syndrome Association (Trisomy 18)
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Jeanna Polacek, mom to 5 year old Mia who has full Trisomy 18 and co founder of Edwards’ Syndrome Association joins Extra To Love: A Trisomy Podcast to discuss their surprising birth diagnosis, the milestones Mia has reached, the relationship Mia has with her baby sister, as well as the heart and mission of Edwards’ Syndrome Association. We also di…
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Ministry Moment: Gratitude In All Circumstances
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This week Julie discusses nurturing a spirit of gratitude and choosing to see God's hand in the midst of difficulties. If you are struggling to feel gratitude, let your challenge this week to be acknowledging your blessings. When you notice the good things in your life, even something like air conditioning in the summer heat, write it down or say t…
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Episode 285: Signals Update with Andrea Dutoit
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In this 285th episode I welcome Dr. Andrea Dutoit back to the show to discuss the most recent data on program signaling and what we know about how it affected applicants' chances of getting and interview and matching. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy…
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Ep 207: Let's Talk Home Nursing with Nurse Tomi
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Home Health Nurse of 15 years and medical mom Tomi Moe joins Extra To Love: A Trisomy Podcast to share her perspective on how to identify and keep great nurses, realistic expectations for parents and more. Her experience being in many home as a nurse and also having nursing in her home for her child gives her unique and valuable insight to share. W…
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Ministry Moment: Considering Joseph on This Father's Day
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In this Ministry Moment, Julie considers Joseph's role in our saviors life, and how we can glean the importance of an earthly father from what we know about him. Like Joseph, man trisomy fathers are thrown into situations they never could have predicted. Faith in God empowered Joseph to not only accept the situation, but to be the husband Mary need…
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Ep 206: Kora, The Kindergarten Graduate! (Trisomy 13)
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Kelly, mom of 5 year old Kora, who has Trisomy 13 (Patau Syndrome) joins us to share their story of ups and downs, and the beautiful life that Kora now leads as a big sister and almost-first-grader. Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Throug…
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Episode 284: Perioperative Hand-offs with Jamie Sparling and Aalok Agarwala
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In this 284th episode I welcome Drs. Sparling and Agarwala to the show to discuss the importance of, and evidence for, perioperative hand-offs. We discuss what hand-offs are, what kinds of handoffs occur during the perioperative period, why they matter, how they can cause harm when poorly done, and how implementing good hand-offs can reduce harm. A…
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In this week's Ministry Moment, Julie encourages listeners to remember that we are doing the Lord's work every day, and reminds listeners to consider Colossians 3:23-24 - in whatever you do, work as if you are working for the Lord. Caring for a child with disabilities such as those associated with Trisomy 13 and Trisomy 18 can be taxing and can lea…
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Episode 283: Introducing The Style Points Podcast Episode on Primate Anesthesia
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In this 283rd episode I introduce a new podcast from University of Cincinnati Department of Anesthesiology hosted by Dr. John Crowe. This episode is about Primate Anesthesia and John interviews one of his colleagues who does some anesthesia for primates at the local zoo. I think they're doing great work on this podcast and look forward to more epis…
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Ep 205: Trisomy Grandmother; It Starts With Yes
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On this episode of Extra To Love: A Trisomy Podcast , we're talking to Jennifer Springer, Director of Operations for ETL. Jennifer is connected to the trisomy community through her granddaughter, Sage, who had trisomy 18. Jennifer talks about the choice to be the "village" that is needed to raise a child with disabilities, her love for the trisomy …
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Julie Hawkins, Extra To Love Board Member and a Director of Children's and Family Ministry, begins a new feature on the ETL Podcast, Ministry Moments. It is our hope that each Ministry Moment provides the uplifting encouragement you need to continue seeking God's face through uncertainty. Extra To Love is a non-profit organization that aims to impr…
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Episode 282: Navigating Applying in Anesthesiology with Tricia Pendergrast
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In this 282nd episode I welcome Dr. Tricia Pendergrast to the show to discuss how to navigate the process of applying for residency in anesthesiology. We discuss how to set yourself up for success, how to figure out how competitive you are, when to consider an away rotation, when to consider dual applying, and how to figure out how to best use your…
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Ep 204: Speaking Life Over Eloise (Trisomy 18)
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Lacey Ponder, mom of Eloise who lived 14 months and had Trisomy 18, discusses the shock of their birth diagnosis, the decision to focus on speaking life over her daughter, and how she finds comfort in the truths of the gospel as a bereaved mother. Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 an…
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Episode 281: Glycemic Control in the ICU with Traci Grucz
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In this 281st episode I welcome our SICU pharmacist, Traci Grucz, to the show to discuss glycemic management of critical ill patients. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacyBy Jed Wolpaw
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Episode 280: Keywords Part 27: Shock States and A Tribute to Dr. Gillian Isaac
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43:20
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In this 280th episode I share the shocking and tragic news that Dr. Gillian Isaac died suddenly and unexpectedly a few weeks ago. She was an incredible human being, teacher, doctor, wife and mother. She will be missed more than I can say by more people than we can possibly count. I know that she would want us to continue with these keyword episodes…
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Episode 279: What does an Anesthesiologist Do with Phil Carullo
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In this 279th episode I welcome Dr. Phil Carullo back to the show to discuss what, exactly, an anesthesiologist does and how we fit into the perioperative experience for patients. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacyBy Jed Wolpaw
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In this 278th episode I discuss what you need to know about liver physiology for your exams. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacyBy Jed Wolpaw
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Ep 203: Siblings of Children with Trisomy
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Families are often told to consider the burden their child with special needs will have on their neurotypical children. What better way to remove the stigma than to allow the opportunity for their siblings to speak on their experience! Five children ranging in ages 13 to 17 joined the Extra to Love podcast to discuss their prospective of having a s…
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Episode 277: Keywords part 26: Adrenal Diseases with Gillian Isaac
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In this 277th episode I welcome Dr. Gillian Isaac back for another ABA keyword episode. We discuss Adrenal Diseases and the questions you're likely to see about them on your exams. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacyBy Jed Wolpaw
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Episode 276: Perioperative URIs in Kids with Rita Saynhalath
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41:47
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In this 276th episode I welcome pediatric anesthesiologist Dr. rita Saynhalath to the show to discuss how to manage kids presenting for surgery with a recent URI. We discuss the evidence for proceeding versus postponing, whether the type of virus matters, and how to handle COVID infections. Advertising Inquiries: https://redcircle.com/brands Privac…
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Episode 275: Healthy Cooking with Myles Snider
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46:42
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In this 275th episode I welcome Chef Myles Snider to the show to discuss how busy professionals can cook tasty, healthy meals for themselves and their families. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacyBy Jed Wolpaw
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Ep 202: Cecilia's Resilience (Trisomy 13)
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Audrey Mercier gives a glimpse into the life she has with her daughter, Cecilia "Cece" who has Partial Trisomy 13. She was vulnerable with her heart and journey. She has just completed her first year of medical parenthood and is doing an incredible job! You can find her on facebook and instagram @reslilientmama_co. Extra To Love is a non-profit org…
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Emma, Jenn and Amber announce some exciting changes and goals for 2024 with services offer from Extra to Love. Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connect…
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Episode 274: Anaphylaxis and Other Perioperative Hypersensitivity Reactions with Jonathan Kay
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51:23
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In this 274th episode I welcome Dr. Jonathan Kay (JK) to the show to discuss perioperative hypersensitivity reactions. We focus on the diagnosis and treatment of anaphylaxis and also discuss antibiotic allergies and how to deal with the ever present allergy to PCN. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redci…
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Episode 273: Anesthesia for Fetal Surgery with Caitlin Sutton
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In this 273rd episode I welcome Dr. Caitlin Sutton to the show to discuss Anesthesia for fetal surgical procedures. We discuss some common procedures, how the anesthesia is done and why, what can go wrong and how to prepare, and what the future holds. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/priva…
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Episode 272: Supporting Mothers in Anesthesiology with Kinza Berical
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In this 272nd episode I welcome Dr. Kinza Berical to the show to discuss her work developing support systems for mothers who practice anesthesiology. We discuss navigating pregnancy and prenatal care, breastfeeding, mentorship around pregnancy loss, IVF and childcare. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://re…
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Episode 271: Keywords Part 25: Lower Extremity Nerve Blocks
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37:40
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In this 271st episode I welcome Dr. Gillian Isaac back to the show for another ABA keyword episode. We discuss lower extremity nerve blocks. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacyBy Jed Wolpaw
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Episode 270: Dexmedetomidine as an Adjuvant with Drs. Douglas and Soloniuk
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55:12
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In this 270th episode I welcome Drs. Michael Douglas and Leonard Soloniuk to the show to discuss the use of dexmedetomidine in spinals, epidurals and nerve blocks. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacyBy Jed Wolpaw
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Episode 269: New Frontiers in Preop Assessment and Optimization with Dr. Jeanna Blitz
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In this 269th episode I welcome Dr. Jeanna Blitz to the show to discuss the newest, most evidence based approach to preoperative assessment and optimization of patients. We discuss the use of biomarkers, alternatives to RCRI and using METS alone and assessment and optimization of frailty, nutritional status, anemia, psychological status and functio…
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Episode 268: The State of Fellowships In Anesthesiology
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In this 268th episode I welcome Drs. Carullo, Kostibas, Isaac, Banks and Segna to the show. They are our peds, cardiac, OB, critical care and regional fellowship directors and we discuss the state of fellowships in anesthesiology. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy…
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Episode 267: The Anesthesia Patient Safety Foundation (APSF) with Alli Bechtel
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In this 267th episode I welcome Dr. Alli Bechtel to the show to discuss the Anesthesia Patient Safety Foundation where she works as their podcast host. We discuss the APSF top 10 priorities, what they include and what guidance clinicians can get from them. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/…
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Ep 111: You can still have a full life despite the diagnosis!
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Charity joins Emma and Amber on this episode to talk about the way she juggles her many hats and accomplishments. Charity has a heart to serve and give Maggie a life well lived and loved! The diagnosis her daughter has wasn't the end, but a beautiful revelation of things that really matter in life! Extra To Love is a non-profit organization that ai…
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Episode 266: Live from ASA 2023! Post-op Delirium and Patient Monitoring with Drs. Culley and Eichorn
54:20
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This special 266th episode was recorded before a live audience at the Anesthesiology 2023 Annual Meeting in San Francisco. I interviewed Dr. Deb Culley about post-op delirium and Dr. John Eichorn about the history and future of patient monitoring. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy…
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Jenn, Emma, and Amber discuss the events and emotions leading up to the very emotional first birthday of their children with Trisomy. We are often told the chances of even getting one is slim to none, as the first has come to pass, they discuss what it feels like as each birthday for their child comes back around. Asher is a little boy who will be …
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Episode 265: Keywords Part 24: Nitroprusside and Nitroglycerin, hemoglobinopathies part 2
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In this 265th episode I welcome Dr. Gillian Isaac back to the show to do another ABA Keyword episode. We follow up on the last one by discussing Nitroprusside, Nitroyglycerin and their effect on hemoglobin Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy…
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Ep 109: Journey's journey with Trisomy 13
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The name "Journey" is the perfect name for a little girl who is described by her Mom as an answered prayer and a true blessing in her life! Listen in as her Mom, Deirdra tells the story of her birth, diagnosis, and the advocacy that has followed. Journey is a four year old girl who is quite the fashionista, and has a beautiful relationship with her…
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Episode 264: TAAA Repair with Dr. Mimi Wynn
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In this 264th episode I welcome Dr. Mimi Wynn to the show to discuss anesthesia for TAAA repair. We discuss preoperative concerns, intraoperative management, postoperative concerns especially spinal cord ischemia, and how to reduce the risk of that dreaded complication. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://…
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